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Ten weeks of blood in stool... help.

post #1 of 11
Thread Starter 
At six weeks of age, DD caught viral meningitis. The day she started running a fever, her diaper had large streaks of bright red blood. The streaks continued for the next couple of days. The bleeding was attributed to a viral cause at that time.

At her two month appointment the bleeding had decreased to being tiny dots in her diaper. The ped at that point suggested eliminating milk from my diet. I have eliminated all milk protein for five weeks now. She is now over three months old.

She is not colicky, rarely spits up (like once a month), sleeps all night (well... at least six hours in a row). To me, she doesn't fit the typical allergy baby profile. Poop looks good for the most part. Yellow and seedy. Just dang specks of blood.

I have been a religious label reader. We have traveled a couple of times since starting this and have eaten at fast food restaurants. I have ordered non dairy items... but I know with a restaurant there is a cross contamination risk. Could that continue to cause the bleeding? The only other thing I can think of is communion bread at church. Would that be enough to continue the bleeding?

I feel like if it was a dairy allergy I should have seen some improvement, though. I have seen no improvement up to this point. Would the possible cross contamination risk and tiny bite of communion bread be enough to see no improvement at all? We almost always eat at home and I have read every. single. label.

I'm considering dropping soy or going on the TED. If I do the TED, do I do it until the bleeding stops? Or just for two weeks period? How do I correlate a food journal with reactions when the only thing I'm seeing is blood in the stool? My understanding is the bleeding does not correlate with allergenic food... that mucousy green stools or fussiness, spitting up, etc correlate. Is that true?

I'm at a loss of what to do. Our ped has been supportive of waiting out dietary changes at this point. I just don't know how long this can continue? Can she just keep bleeding indefinitely? Will this just resolve at some point?

Please help...
post #2 of 11
Can you find out if there is dairy in the communion bread? If you're having it once a week, then it could be enough. You said you have eliminated all dairy "protein". Does that mean all dairy or just the protein. Many babes with milk intolerance react to all parts of the milk, not just the protein, so I didn't know if it was just semantics or if you are in fact eliminating all milk.

You could do an ED instead of a TED (which I think is too harsh for a BFing mama). Take out the top 4 (dairy, gluten, soy, corn) instead.

No skin issues? behavior issues? allergic shiners? ear infections? just the blood? Does the doctor know how long it takes the bleeding to stop typically with meningitis?
post #3 of 11
Thread Starter 
All dairy... sorry for any confusion. No skin issues, behaviour issues, etc. Never a sickness other than the viral meningitis. Ped thinks we're past the point that the blood could be related to that.

I've only had the communion bread twice in the last month due to traveling the other weekends. Would I see no improvement if that does in fact contain milk protein?
post #4 of 11
Well some people do say that milk can take 2-4 weeks to get out of the system, so if there is milk in the bread and you're consuming it, it's possible. But it doesn't seem probable.

I'd say go off gluten next and see if that's the culprit. Or off the top 4, and then if it goes away (again, it could take up to 4 weeks), add things back in one at a time (one a week) to see which is the culprit. At this point, I think it's dairy AND something or something else by itself (I'm guessing gluten but it's purely a guess).

Does the doctor have any other possibilities besides food?
post #5 of 11
Thread Starter 
He has not mentioned any other possibilities at this point. I think he's been pretty convinced it's a dairy allergy.

Is there any way I can "test" dairy? After being off of it for five weeks can I trial it and rule it out? Or is there no way to do that since it stays in the system so long?
post #6 of 11
I'd think communion bread should not contain any dairy. The tradition is to recreate the bread of the last supper, which was made of wheat and water alone. (There's argument about whether it was leavened - Catholics say "not", so their communion is a wafer of wheat and water only.) You could ask your church about its ingredients. In any event, I can't imagine it could amount to much.

If things haven't gotten better in five weeks, I'd be asking the doctor to start thinking again. And, I'd get a blood count on my LO to make certain the blood loss hasn't lead to anemia.

Hope your LO is healed soon.
post #7 of 11
Thread Starter 
Our church uses regular bread... so it could contain dairy. But, I've taken the smallest possible piece. The bleeding has been super small amounts... so I'm really hoping her h&h is unaffected. Sigh.
post #8 of 11
Since the onset is so clearly related to the meningitis, I'd be doing two things:

1) gut healing - I'm not sure what is appropriate for a baby of that age, but Pat (WuWei) has some threads here with ideas for infant probiotics and drops of water kefir. Coconut oil and cod liver oil for you. A virus kickstarted our food reactions as well, and I think gut healing measures can help recovery.

2) Get a second opinion on whether meningitis could have any long term intestinal impacts (or anything they used to treat the meningitis???).
post #9 of 11
Thread Starter 
They used iv antibiotics to treat the antibiotics. I can't remember which ones now (I was really in a blur when all that happened). I could easily ask the ped, though. He has been very open to anything I want to talk to him about and is willing to research anything.
post #10 of 11
A stomach virus set off my dd blood in stool as well. what really worked for me was taking digestive enzymes, eliminating dairy, soy, wheat and corn and taking probiotics for me and babe. She was blood free for about 4 months, but recently started again with small amounts. I think she had accidental ingestion from my 4 year old (he eats lots of butter and it gets all over his hands).
post #11 of 11
Well you could test the communion bread, by either finding out the ingredients (the church should know who bakes the bread, to find out) or go without the communion bread for at least one month, to find out if it's truly dairy only. It could still be more than one thing irritating her intestinal lining after the meningitis/abx. After my DS supposedly outgrew his dairy/soy intolerances at 13 months, at 18 months he had a horrible stomach virus (no abx) and ended up with the intolerances back, so it's possible that it just set the immune system into overdrive and it's reacting to anything that's hard to digest.
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