Originally Posted by TanyaLopez
Meta, speaking of you, you HAVE been working hard and doing LOTS of good stuff, more than most folks. Have you considered an ongoing physical stress that's still working on you? Chronic lyme or epstein-barre, heavy metals (ever considered a hair test?), um, I'm sure there's other stuff as well. This has been a really long slog for you, and even with life stresses (some of them pretty rough), it still seems slow going. Money's always an issue, I don't know much about testing for chronic infections, but the hair test is about $85 from Direct Lab Services, and your doc could probably get it for you cheaper, he can order directly from Doctor's Data, and he'll get the cheap HCP price (he needs to get an account set up, but I think that's just some paperwork).
Ugh. Freaking out about Lyme is what got me here. Ds was 7 or 8 weeks old & Dd2 was 3 1/4 yrs, tandem nursing. I felt good for the first 8 weeks & then had some crazy symptoms pop up - like burning skin all over my scalp, neck & upper arms - felt like a really bad sunburn. Could barely walk because the bones in my feet hurt so much (felt like all of the padding was gone & I was walking on bones.) My knees hurt like crazy, I suddenly had more floaters in my vision. This was spring of 2006.
Then, I started Googling. Biggest mistake EVER. The only places my symptoms matched up were the Lyme boards (which are scary as hell) & the menopause board (Power Surge.) I found out Lyme could be passed through breastmilk.
Knowing what I know now, it probably makes sense that hormones (or a lack of) could explain my symptoms.
I weaned Dd2 in June at 3.5 yrs so I might not pass to her whatever was wrong with me (my Lyme obsession.) I wasn't ready, she wasn't ready & it was really painful, emotionally. I laid in bed & cried, nursing my newborn, hoping I wasn't passing Lyme on to him.
By fall 2006, I had *severe* muscle pain & weakness. It hurt to push a shopping cart & was nearly impossible to do so.
But I had so many good reasons for my symptoms - like, my knees & feet hurt because I wore my heavy Ds in a front carry all day every day & my body wasn't used to that.
My chiro did x-rays & my neck was a mess which could explain burning from a pinched nerve or something.
The only think I couldn't explain was the floaters. I've always had a couple, but it became like a spider web. My ND says it's from adrenal fatigue & I've found some info about it possibly being from low blood pressure, so maybe it is?
My holistic doc treated me for Lyme, 8 wks of Amoxicillin & during the last 2 weeks, we added Biaxin (which really messed with Ds' gut, but not mine.)
I didn't feel any different.
Then I paid $650 OOP for an IGeneX western blot & co-infection panel. It was overall negative with some suspicious bands. I saw a LLMD who said I didn't have Lyme. So I still don't really know the answer to this one, but I don't know if I can handle the stress of digging any more. I don't think I'd take abx for it since I would have had it for so long.
Sometimes I think, it MUST be Lyme. I used to be a garden designer & worked in tall grasses pulling weeds & planting. I was completely ignorant about the severity of Lyme & how debilitating it could be. I live in a HIGHLY endemic area, right up there with parts of NY state & CT.
But nothing is cyclical for me. Nothing. I still have the floaters & they seem to be worse when my adrenal symptoms are worse (like dizziness upon standing, feeling tired, stronger sensitivity to carbs). I still have the muscle pain & weakness, but it's hard to say, after 3 years, if it's gotten better or if I've just gotten used to it. This is also a symptom of adrenal fatigue.
So every time I remember that nothing is cyclical for me, nothing has gotten worse, I feel like it can't be Lyme. I have ZERO joint pain. My initial joint pain only lasted maybe 2 months or so & could easily be explained by wearing Ds in a front carry with crappy Birkenstocks (I'm really flat-footed & my ankles pronate inward without super arch support, which affects the knees & everything else.)
SOOOO...I feel like I can't beat that horse any more.
Heavy metals - I dye my hair, but that doesn't matter because I don't have to use head hair, right?
I am still nursing though. I think that will skew the results, no?
Is Epstein-barre a simple test? I think it often cross-reacts with the Lyme bacteria, making the diagnosis difficult. Do you know how that works?
I don't know. My ND isn't surprised that it's taking so long. I DO feel better than I did. I need to email him anyway, so I'll ask some questions. Part of me is feeling like I could use a new (professional) perspective. Not that I don't adore my ND & I think he's fabulous at healing adrenal fatigue, but sometimes a fresh perspective is useful. I've been thinking of TCM for a while.
Hey Tanya, have you read Primal Body, Primal Mind
yet? I just finished the chapter on leptin & am very much intrigued. Turns out leptin is THE king of hormones, it controls *everything* - insulin, adrenals, ACTH, and everything on down. I have to read more, but this is interesting to me.
So, (big sigh), I don't know. You're absolutely right. I've been working hard at this, still have stressors (can I send exdp to the moon?) but I feel like I should be out of zone 7 by now.
Thanks for the perspective.