Ugh. Freaking out about Lyme is what got me here. Ds was 7 or 8 weeks old & Dd2 was 3 1/4 yrs, tandem nursing. I felt good for the first 8 weeks & then had some crazy symptoms pop up - like burning skin all over my scalp, neck & upper arms - felt like a really bad sunburn. Could barely walk because the bones in my feet hurt so much (felt like all of the padding was gone & I was walking on bones.) My knees hurt like crazy, I suddenly had more floaters in my vision. This was spring of 2006.
Then, I started Googling. Biggest mistake EVER. The only places my symptoms matched up were the Lyme boards (which are scary as hell) & the menopause board (Power Surge.) I found out Lyme could be passed through breastmilk.
Knowing what I know now, it probably makes sense that hormones (or a lack of) could explain my symptoms.
I weaned Dd2 in June at 3.5 yrs so I might not pass to her whatever was wrong with me (my Lyme obsession.) I wasn't ready, she wasn't ready & it was really painful, emotionally. I laid in bed & cried, nursing my newborn, hoping I wasn't passing Lyme on to him.
By fall 2006, I had *severe* muscle pain & weakness. It hurt to push a shopping cart & was nearly impossible to do so.
But I had so many good reasons for my symptoms - like, my knees & feet hurt because I wore my heavy Ds in a front carry all day every day & my body wasn't used to that.
My chiro did x-rays & my neck was a mess which could explain burning from a pinched nerve or something.
The only think I couldn't explain was the floaters. I've always had a couple, but it became like a spider web. My ND says it's from adrenal fatigue & I've found some info about it possibly being from low blood pressure, so maybe it is?
My holistic doc treated me for Lyme, 8 wks of Amoxicillin & during the last 2 weeks, we added Biaxin (which really messed with Ds' gut, but not mine.)
I didn't feel any different.
Then I paid $650 OOP for an IGeneX western blot & co-infection panel. It was overall negative with some suspicious bands. I saw a LLMD who said I didn't have Lyme. So I still don't really know the answer to this one, but I don't know if I can handle the stress of digging any more. I don't think I'd take abx for it since I would have had it for so long.
Sometimes I think, it MUST be Lyme. I used to be a garden designer & worked in tall grasses pulling weeds & planting. I was completely ignorant about the severity of Lyme & how debilitating it could be. I live in a HIGHLY endemic area, right up there with parts of NY state & CT.
But nothing is cyclical for me. Nothing. I still have the floaters & they seem to be worse when my adrenal symptoms are worse (like dizziness upon standing, feeling tired, stronger sensitivity to carbs). I still have the muscle pain & weakness, but it's hard to say, after 3 years, if it's gotten better or if I've just gotten used to it. This is also a symptom of adrenal fatigue.
So every time I remember that nothing is cyclical for me, nothing has gotten worse, I feel like it can't be Lyme. I have ZERO joint pain. My initial joint pain only lasted maybe 2 months or so & could easily be explained by wearing Ds in a front carry with crappy Birkenstocks (I'm really flat-footed & my ankles pronate inward without super arch support, which affects the knees & everything else.)
SOOOO...I feel like I can't beat that horse any more.
Heavy metals - I dye my hair, but that doesn't matter because I don't have to use head hair, right?
I am still nursing though. I think that will skew the results, no?
Is Epstein-barre a simple test? I think it often cross-reacts with the Lyme bacteria, making the diagnosis difficult. Do you know how that works?
I don't know. My ND isn't surprised that it's taking so long. I DO feel better than I did. I need to email him anyway, so I'll ask some questions. Part of me is feeling like I could use a new (professional) perspective. Not that I don't adore my ND & I think he's fabulous at healing adrenal fatigue, but sometimes a fresh perspective is useful. I've been thinking of TCM for a while.
Hey Tanya, have you read Primal Body, Primal Mind yet? I just finished the chapter on leptin & am very much intrigued. Turns out leptin is THE king of hormones, it controls *everything* - insulin, adrenals, ACTH, and everything on down. I have to read more, but this is interesting to me.
So, (big sigh), I don't know. You're absolutely right. I've been working hard at this, still have stressors (can I send exdp to the moon?) but I feel like I should be out of zone 7 by now.
Thanks for the perspective.