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when can i expect to drop the supplemental ebm?

post #1 of 4
Thread Starter 
This is long- I apologize!

A little backstory first:

Ds was a 33 weeker who never learned to latch and suck at the breast. I EP'd for him til 13 months when he was started on an amino acid formula. He was initially thought to be a lazy preemie, but later it was decided (due to multiple other medical and developmental issues) that he has an unspecified metabolic disorder. he can't tolerate any intact protein, and eventually became intolerant of my milk (even when I was on a 4-food elimination diet). He is now 28 months old and still on medical formula.

Fast forward to dd, 5 weeks. She was a 37 weeker, born precipitously, and ended up with massive facial bruising (the worst the hospital had ever seen) because she flew out so fast and was posterior. She was quite jaundiced (we presume it was from the bruising) and was on a bili blanket for her first 10 days.
We did not supplement with formula during her jaundiced period because my son's medical issues *all* began when I had to start supplementing him with formula (around six months, an ounce or two per day). Dd was extremely sleepy and difficult to nurse for the first week, and especially the firs four days. During that time, she went from a birth weight of 6lb 8oz to 5lb 14oz. I am fairly certain she had pain when she nursed, based on the bruising and swelling.

Since she was nursing poorly, I began triple feeding (nurse, bottle feed ebm, then pump). She started gaining eventually, jaundice cleared, and she is now 7lb 6oz (her length has increased by 2.25 inches since birth).

I have since dropped to 3 pumping sessions per day, which gives me about 12-15 oz total. Since dd has reflux (she is on prevacid), she will gulp down up to 4 oz if I let her, then vomit everything. I try not to top her off after every nursing session, but I limit the bottles to 2 oz when I do.

She still needs a nipple shield when nursing about 90% of the time. She falls asleep at the breast very easily, then wakes up hungry and pissed 20 minutes later. I think she is a bit weak still to fill herself up. I have an infant scale and need to do pre and post-nursing weights, but haven't yet.

She has been evaluated for tt by 2 lc's and our ped, since my son had a serious tongue tie. Her latch has been deemed good. I do find it harder to let down when she's nursing than I do with a pump- that's what EPing for over a year can do, I guess. I do compressions while she nurses, which helps. Her jaw is moving every few sucks, so she seems to be swallowing. If she's sucking weakly I wake her up, relatch, etc.

Anyway, I know I am lucky she is able to nurse at all, but it's getting cumbersome to continue to pump and bottle feed her as well. It's compounded by the fact that my son takes his medical formula from a bottle and only recently became strong enough to hold it himself. He still requires a lot of help, so I often find myself holding 2 kids and 2 bottles.

I selfishly want a trouble-free breastfeeding relationship, I suppose to make up for my EPing time. I would like to figure out how to know when to start phasing out the ebm bottles- I don't want to cause weight loss, so I am wary of doing it when she clearly isn't able to nurse strongly enough to satiate herself at every feed.

Any idea on how old/big she will need to be for that to work?

FTR, she has obvious sensitivities to dairy and, sadly, fenugreek. Fenugreek was my magic bullet last time. I have not tried dom, but she seems so sensitive that I am wary. I keep thinking that I probably have good supply, based on my pumping output. I just don't want this to devolve into an EP situation, as I have a special needs toddler to deal with this time. Formula is not an option, since that was the beginning of her brother's many problems.

Thanks for any insight you can provide!
post #2 of 4
I'd probably go ahead and try now and since you have an infant scale at home weigh her twice a week. Maybe give it a week's trial and if she's gaining poorly go back to bottles. My DS got much stronger and more awake at 6 weeks (he was born at 40wks), so maybe in a few weeks this won't be a problem.
post #3 of 4
If your dd can't tolerate fenugrec you could try blessed thistle, oatmeal and domperidone - dr jack newman has some tea recipes etc noted out on his website too, you could even try contacting him www.drjacknewman.com, in this situation you are the one who knows your dd best and able to judge what she's capable of doing, I think you need to watch and judge that one for yourself.

It's not at all selfish to want something that'll make life easier for you - it's perfectly natural - don't be so hard on yourself. You may also want to consider seeing an oesteopath or chiropactor, or cranial therapy - it may help strengthen her suck, six weeks can seem like a long time but things can take time to heal, my mother always talks about this I was born with a broken nose and cracked jaw - don't you just love forceps - anyway she always blames my injuries for an unsuccessful breastfeeding experience - anyway I just wonder if something like that would help both of you.

Good luck
post #4 of 4
wow...your post sounds eerily familiar. my son (11) was 30 wkr and had feeding issues. he didn't take solid foods until almost 3 yrs old.

my youngest lo is 6 wks old and was born at 35 wks. she was 6 lbs 7.9 oz 19 1/2" lost down to 5lbs 14 oz in the nicu. she was in there for 17 days and didn't even get to attempt feeds until day 7. she was a lazy nurser, whether we used bottles or the breast, and sometimes she would have negative outcomes on the breastfeeding! we would weigh her before feeding, feed her, weigh her again only to find that she either didn't gain or lost a few grams. it was all very frustrating.

then we were told that she had risk factors for osteopenia of prematurity (aka rickets) and were literally guilted into fortifying her breastmilk with human milk fortifier and eventually neosure infant formula. i was told things like 'your milk just isn't enough' and 'you are doing things all wrong' when i would insist that my milk was good for her and she would tell me when she needed it and how much. when we weren't there at her bedside, she was gavage fed while laying in her crib. we had asked that she not get any nipple besides mine, but she was given bottles during the night one night.

we fought tooth-and-nail with those people until we finally relented and decided to play there game in order to get them to release her. we had thought about checking her out ama, but were threatened with cps/dhs so we just gave in and bottle fed her ebm with the fortifier.

she came home at 2 1/2 weeks on all bottle feeds. a few days after she came home, i started introducing the breast. she was still lazy, so we used the SNS and the nipple shield. i found that that did nothing to increase her suction or her hunger as she would just sort of lay back and let the milk drip in.

i decided to try her with the nipple shield and eventually she got hungry enough to latch on to the shield and nurse. i don't know how much she got, but she had milk on her lips so i knew she was getting something. she burped, latched back on for a few minutes and then slept for a few hours until i woke her for another feeding.

i was then nursing her with the shield on the right side, pumping the left side, and then every other feeding topping her off with the ebm fortified to 24 calories. she was (is) getting the vitamin drops and vit d supplements as well. it was, to say the least, exhausting, confusing and frustrating. at least i could take comfort in the fact that dh could help feed her when i felt like i might drop? nope. he could feed her but i still had to pump.

we went to the lc at the health dept. about a week later. she was 4 weeks by this time and we had slowly started weaning from the shield. i would latch her with the shield, get the milk flowing and the nipple drawn out, and then unlatch her, remove the shield and latch her again. she was getting very frustrated with this arrangement. the lc said to pump for a few minutes until i felt letdown and then try to latch her.

we did this and it seemed to work, so then we started working on her latching onto the left breast with the nipple shield. she would fight it, but eventually she got the left breast to actually release the milk! i would feel letdown every time and sometimes it would spray her at first, but she just wasn't strong enough to get the milk to come out after the initial spray (that would usually choke her and/or make her vomit!). meanwhile i was still nursing her on the right side, using the nipple shield on the left side, pumping after every feeding, and topping her off with the ebm with fortifiers.

it took us about a week longer to be able to ditch the shield on the leftt side but i did it the same way as i had the right side. we ended up only using the sns about 6 times because i didn't feel like it helped stregthen her any. when she was about 5 wks old, we got to about 80% breast feedings, with the bottles thrown in when i was exhausted (daddy feeds) and for her vitamin supplements. i just watched her during her feedings and afterwards to see how long she could nurse at one time and how long she could go without needing to nurse. i also could feel her suction getting stronger as time went on and knew that she was strong enough to pull milk from my breast. she was sucking the bottles down in gulps and in record time by then, so that was another indicator that she was ready to start nippling at the breast.

then the sore nipples returned. i was sore in the beginning from the pump, and now i am sore again from relearning to breastfeed. i honestly believe my left breast was 'stingy' because it was used to the pump and i am one of those cases where the baby wasn't being as effective as the pump.

we also ended up with vomiting and green poops. i asked my ped about them and she said to just pump and bottle feed or switch her over to all formula to straighten her out (GRRR). we decided to try block feeding and after a few days we are seeing bright yellow poops and the vomiting has decreased significantly. i believe wholeheartedly that she was OVER eating due to the over supply and the spraying letdown. she was also getting huge gas bubbles at first and then her tummy would hurt so she would comfort nurse and get more milk and then when we would lay her down, milk would literally run out of her mouth!

ETA: we are having latch issues, too. i blame the bottles for that one!!

anyway, sorry for the novel. i was hoping that by typing this all out you might be able to mimick what we did or at least try some of the things we did. my best advice would be to watch your lo and see how she responds to all bf. you are amazing for pumping for so long for your son! i only made it about 6 months and then put him on the medical formulas. don't give up!
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