Originally Posted by Pandme
yeah, I suppose once these results come back in a week or so, they'll tell me what further tests to have. Hypercalcemia was mentioned to me, so I'm sure they will want to test calcium levels.
I am wondering what they measured. Can you call and see if they measured 1,25-dihydroxy-vitamin D? That's a hormone and fluctuates and isn't an accurate picture of vitamin D.
I do think something is up if
that test was 25 (OH) D and was accurate. You shouldn't have that level regardless of sun exposure with what little you were taking in.
It's important to know that high calcium is 10 or above, no matter what the lab slip says. And parathyroid disease is consistent with kidney stones and does affect vitamin D levels. However, it causes low levels as the body tries to suppress calcium. I suspect they mentioned hypercalcemia as a possible result of what they think might be toxic levels of vitamin D and not that they were searching for a cause. But they do need to find the cause. And as someone else mentioned Scleroderma is the only thing I know of that causes high levels. There may well be other things. But I wanted to mention that sometimes Scleroderma is asymptomatic. Keep your head while you go forward but do get an answer if that test comes back high again and make sure it's the right test.
I think everyone with kidney stones should probably have blood calcium checked to make sure the kidney stones aren't caused by Parathyroid disease.