Mothering › Forums › Health › The Case Against Circumcision › UPDATE to prior post - concern about circ against wishes
New Posts  All Forums:Forum Nav:

UPDATE to prior post - concern about circ against wishes

post #1 of 16
Thread Starter 
I posted here this past summer, describing my worry that our twins (if boys) could be circ'd against our wishes during a potential NICU stay. This is an update to that story/thread; if I could find it, I'd link to it, but anyway ...

We welcomed TWIN BOYS four weeks ago, at 32.5 weeks' gestation. I developed severe HELLP syndrome, went into liver & kidney failure, and had an emergent (not crash) C-Section at 4 am on a Sunday morning.

Babies spent 24 days in the NICU at our hospital. We felt we had outstanding nursing care there. Both are home, growing, and INTACT

Anyway, in our 24 days there, I learned a but about circs in the NICU, and wanted to share some of my random musings. I think that NICU staff, nurses in particular, could be a great source of support to the intact movement, as they are so critical to medical and social care during a NICU stay.

Anyway - in no order:

1. Out of the 15-ish nurses we had care for one or both of our boys, only ONE was pro-circ, and she said she knew she was the only one in the NICU. She was nice about it, explained why (her dad and uncle were circ'd as 40+ year olds and were negative about being intact based on their experiences), but did not push at all. Other than that, every single nurse we encountered was totally, completely supportive of our decision to keep our boys intact.

2. The neonatolgists and nurse practitioners were also very, very supportive. When we got to the day-before-discharge meeting with them, the (male) neonatologist said, kind of sheepishly, "circs?" like he was cringing and expecting me to say "yes.' When I said (simply, not even vehemently), "no" -- he was visibly relieved, said "Yea!" and high-fived the NP. They were both actively, visibly happy that we were leaving the boys as they came.

3. My OB, who knew we were not going to circ, popped her head in our little "cubbie" to say hi as she was getting ready to do someone else's son's circ, and she said, "I actually hate circs. I have no idea why people do this. I am so glad you guys are not doing it!"

4. We were ALMOST witnesses to one circ in the next cubbie. I was so upset by the whole THOUGHT of it, I asked that OB to move to a different area as I didn't want to hear him cry. The OB did as I asked. I was shocked at how much the baby cried, despite having had a penile block and tylenol. I mean, uncontrollably for 2+ hours, then episodically (probably when he moved or urinated) for the remainder of his stay.

5. Related to the baby mentioned in #4, the OB gave a pretty darned balanced pro/con sell to the parents. Well, it was the mother and grandmother, not the dad. In fact, I would say it was slightly anti-circ, but unfortunately the mom still wanted it done and signed the consent. Interestingly, the mom and grandma cleared out and weren't present for all the chatter between the nurses, NPs, and neonatologists about their decision to circ, and feeling really sorry for the baby, and trying really hard to comfort him afterward. It was very, very obvious that the NICU staff was pretty strongly anti-circ.

6. One of the areas that might help our argument against circ is understanding why these medical providers are against it. The most commonly given reasons were (a) risk of bleeding, which is really serious in a preemie !! and (b) interruption of the nursing relationship. Two also mentioned the parallel between FGM and circ, but those were the exception not the rule. In other words, the nurses were convinced by two real risks of circ'ing, not swayed by potential/theoretical long-term risks/benefits. I often hear people justify their position on circ based on "looks" or STD benefiits that are not relevant to a newborn -- instead, for the nurses in our NICU, the real, short-term risks of blood loss and feeding challenges were more compelling. Maybe that would also be true for parents of full-term newborns, who are also at risk for these immediate health issues.

7. Last thing - a couple of the nurses commented to me that they were amazed that parents would get so worked up over a shot or blood draw (e.g. heel prick) to their preemie, yet would still sign the consent for a circ. Do they really think it doesn't hurt?? or that the shot is worse?! Maybe they're just present for the shot, and not for the circ, so it seems less bad. Or maybe they think the "anesthesia" used for the circ really helps (it doesn't, based on what we witnessed!) One couple had their twin sons circ'd and then they both sobbed when they realized how upset the babies were, I would say inconsolable, and I heard the mother say to the father that she wished they had not done it, as the babies were refusing to nurse and could not be quieted/comforted. It broke my heart. I think this is probably more common than people realize -- parents just agree to the circ "just because" (e.g., for some "soft" reason, w/o really considering the real pros and cons) and then later wonder if it was right/worth it.

Where, along the line of pregnancy and birth, is the opportunity to educate parents FULLY on what circ is and isn't, and what the real risks and benefits are, and what happens during the procedure? Seems like some portion of parents might decline if they had to watch a video of what really happens. Why doesn't this happen?

Bottom line is that I think my worry was quite inappropriate, in retrospect. I think our boys were "safer" from circ'ing in the NICU than they would've been in the regular nursery. OK, true, they'd have been most safe with me/at home/rooming-in, but that wasn't an option given how things went for me in the end. But all is well that ends well, and we have two perfect, intact little boys asleep in the nursery this morning, and I am sooo thankful to those wonderful NICU nurses for looking out for them.

I hope this gives some food for thought to those who are really intactivitsts. I would be happy to discuss further at any time (whenever I have time: I have four boys now! all intact, of course )

I also hope this gives some other parent facing NICU time some peace of mind regarding a son's "safety" from circ'ing while there.

Cheers! -- Ginny
post #2 of 16
I really like hearing stories like yours, it gives me hope. If I might suggest, when you have time, you should write a nice letter to the staff thanking them for this support and their position. Perhaps let them know there are groups working to educate parents that they might be interested in getting involved with. BTW, what part of the country are you in?
post #3 of 16
Congratulations on your beautiful twin boys! I love it when intactivists have boys and lots of them.

What a beautiful NICU story. I'm so glad that you had a easy time of it and were not pressured by the doctors or nurses.
post #4 of 16
Thank you for sharing all of that, and congrats on your twins!

As much as I detest circumcision on ANY infant, I cry a little more inside when I hear of preemies having it done. DD1 was a 31 weeker, and after knowing about everything she'd already gone through, the thought of having such a painful, useless procedure performed on a baby who has already gone through so much makes me physically ill. Haven't they been through enough? (Again, I get upset about circumcision with full-term healthy infants too, it's just because of my own experiences with a premature baby that it affects me even more)
post #5 of 16
congratulations of your wonderful new boys

Im so glad to hear of the attitudes in the hospital where you delivered. I am from the UK where circ is almost unheard of (except in the Jewish communities) and it still shocks me everytime I hear about it, but circ a preemie????? wow....I didnt even know that any Dr would entertain the idea, it makes me feel sick to my stomach actually, all those daily struggles many of those little babies have and they add on a painful operation ...wow...it honestly astounds me.
post #6 of 16
Congratulations on your healthy twin baby boys! Hope you're getting enough sleep! Thanks for the positive story of your NICU stay and the anti-circ staff attitudes.

I second the above posters suggestion to write letters of thank you and feedback to the staff there. It's great that they were so supportive of not circing, and they need to be commended for that. But there is always a further step that you might be able to encourage them to take, to make an even greater impact and change. The biggest one I can think of is to encourage the doctors to take the step to simply stop doing circumcisions, and to educate parents as to why they don't do them. One of the most frustrating things is when a doc says s/he "hates" doing circs, but still does them. They have not quite gotten the ethical bottom line yet, or have a bunch of lame excuses going on in their heads that they need to get over.

doctorsopposingcircumcision.org has a brochure for doctors called "Does Being Born A Healthy Male Require Surgical Correction?" that debunks the various reasons doctors give for doing circumcisions. Might be a good one to pass along. They also have one on Conscientious Objection for physicians that spells out the ethical issue and the support that exists for physicians who choose not to do circumcisions.

Again, congratulations, and thanks for the update!
post #7 of 16
I wish our NICU staff was as supportive. We got tons of pro-circumcision chatter when my grandson was in there, the neonatologist was vehemently against leaving babies intact. Definitely write a letter telling them how wonderful they are!
post #8 of 16
Congratulations on having beautiful, healthy twin boys!

My own twin boys were born at 33.3 weeks, and spent 3 weeks in the NICU here. I believe I read you're in Colorado? I'm from Colorado, but had my boys in Upstate NY, and I think things are probably a whole lot more progressive out there than they are here.

Here they seem to just presume you are circing, at least the consent forms for it simply appeared by my sons' isolettes when they were about a week old. Only one of the nurses seemed really supportive of my decision not to circ. She was DS 1's nurse the evening I saw the consent forms. She just sort of went on about how barbaric and horrible they were, and how it was the only thing in nursing that ever actually made her pass out. She wrote a big NO on the form, and made sure it was clearly noted in his chart that he was not to be circed.

The nurse for DS 2 acted sort of put out, tried to insist that I needed to sign on the form if I didn't want it done, and didn't bother to put it in his chart. Therefore, the following week another nurse was asking if I was going to have it done, and later tried to tell me that I would have to "pull back the foreskins and clean under them later on" when she was helping me to give DS 1 a bath.

I never really felt completely safe until after I got the boys out of there in one piece, though the other nurses tried to poo poo my worries. The attitudes of most of the nurses seemed to be casually indifferent to the whole circ thing.

I was never actually exposed to any NICU circs. They said they do them very early in the morning, and I doubt I would have been allowed to be around for one anyway. The only circs I was exposed to were the ones that my OB did in his office. I was around for a few of those since I was there so much (being high risk). I know they use anesthetic (I heard a nurse trying to comfort a weeping mother by telling her "he'll have a shot of Lidocaine so he won't feel anything.") I know for a fact that the anesthetic was not effective. I actually heard a circ take place while I was waiting in an exam room. The sound was very faint and distant due to the soundproofing, but it was a very intense wailing. My mother was in the waiting room, and she confirmed that he had gone in for a circ and that he had come out screaming his head off.

I will just add that when I brought my babies home from the NICU, they were remarkably calm and easygoing babies that hardly ever cried, and were very alert and engaged from the beginning.

Despite the fact that they went through some pretty painful and traumatic things in the NICU, I think the fact that they avoided the MAJOR trauma of circumcision made a huge difference for them. I can't help imagining what if would have been like if I had instead brought home a couple of traumatized babies in extreme pain and with open wounds on them. Also, my DS 2 was not quite 4lbs when he came home. It just seems incomprehensible that they would actually do that to such a tiny and frail baby as he was then. (Both very big boys now.)

Anyway, thanks for sharing your experience, and I wish you much happiness with them.
post #9 of 16
Quote:
Originally Posted by glongley View Post
One of the most frustrating things is when a doc says s/he "hates" doing circs, but still does them. They have not quite gotten the ethical bottom line yet, or have a bunch of lame excuses going on in their heads that they need to get over.
This is just what I was thinking--it's not like there is anything requiring them to do it (right?).

Very interesting post--thanks and congrats to the OP. The stories of circed preemies are harrowing, actually making me feel physically upset. At times, when I hear stuff like that, I want to block it all out and am tempted to stop reading about this subject, but I feel a kind of duty not to pretend this is not happening, and that I should hear about it to help inform my speaking out against it.

The OP wrote:

Quote:
I often hear people justify their position on circ based on "looks" or STD benefiits that are not relevant to a newborn -- instead, for the nurses in our NICU, the real, short-term risks of blood loss and feeding challenges were more compelling. Maybe that would also be true for parents of full-term newborns, who are also at risk for these immediate health issues.
Just thought I'd put my two cents in about this. While I certainly recognise these short term risks, for me it is just the opposite: it is the long term issues revolving around sexual function upon reaching sexual maturity that are by far the most compelling for me. Fortunately, all of it is on the same side of the scale, so I don't have to choose--but as I mentioned in another thread, if somehow magically it was keeping a boy intact that put him through intense pain as a newborn, and circing him which prevented the pain, I would still go the intact route because I know how important it is to me as a man to have my natural sexual function. JMO, and I don't know how common this attitude is (might be more likely to be found among people who, like me, are intact fathers of intact boys; do we have others on this board?).
post #10 of 16
Yay! It doesn't take long for a NICU, nursery nurse to enounter the ugliness of circ complications. That's why so many of us are intactivists. Glad to hear about your experience!
post #11 of 16
thanks for sharing your experience. You made some really great points... I only have time to read your post though... and send warm welcome to your lucky little boys! Take care!
Jessica
post #12 of 16
Quote:
Originally Posted by vachi73 View Post
6. One of the areas that might help our argument against circ is understanding why these medical providers are against it. The most commonly given reasons were (a) risk of bleeding, which is really serious in a preemie !! and (b) interruption of the nursing relationship. Two also mentioned the parallel between FGM and circ, but those were the exception not the rule.
Now that they understand it's risky and unneccesary, we just need to figure out how to get through to them that it reduces function and pleasure-receptivity. They'll be marching in the streets.
post #13 of 16
Thread Starter 
Hi again! Thanks for your encouraging and supportive responses. To answer the very few questions/points that have been raised:

(a) I am in the metro Denver, CO area. I won't name names of my hospital (even though my review would be great!) or doctor, though - I think that might get me locked/blocked/otherwise break forum rules.

(b) I wanted to clarify that *I* find the longer-term pros of being intact to be very, very compelling ... but also to share that our NURSES -- whose #1 job it is to care for babies in the here and now -- found shorter-term benefits to be most compelling. This is partially related to the nature of their work versus the nature of parenting, of course ...

However, in the event that some intactivist effort were to be leveled at health care workers, and/or parents of newborns, maybe the shorter-term benefits (say, year one of life, maybe?) might be a way to gain some immediate traction. I can tell you that, when making our decision to leave DS#1 intact, my DH did a TON of research (despite having been born in the UK, he is - sadly, IMHO - circ'd), and found a great article on WestLaw -- I think it was a law review article somewhere!! -- that compared first-year pros and cons of circ and found compellingly that the risks in the first year of life were FAR greater from circ than non-circ. That was the cherry on top of the argument for him, and ultimately what made him pro-intact.

[Well, actually, I think what made him an intactivist was being witness to that circ in the NICU. Terrifying. He has mentioned it several times with this tragic, sad look on his face. And today, in reference to one of the (zillion) ways in which we are not like "other parents," he said to me, "well, we don't cut the tip of the penis off our boys either ..." True that.]

(c) I so wish I had had the gumption to "call" my OB on her circ stance and practice being incongruous. However, it was such a fleeting moment, and I just didn't think quickly enough. To be honest, I had the most ridiculous, high-maintenance pregnancy, I don't want to rock the boat anymore (seriously, my chart is way more than 2" thick ... and I've only been a patient there for 15 months, one pregnancy. I would not be surprised if they have the phone company block my number when I dial, LOL. I have had EVERY complication, usually in the middle of the night naturally ... but I digress).

(d) regarding circ'ing a preemie, IMHO, it should NEVER be done. OK, true enough, I think it should never be done on any baby, but somehow it's even WORSE on a preemie. If you've never seen the size of the penis on a 4-lb 32-weeker, it's pretty darned small. I heard the one pro-circ NICU nurse jokingly refer to it as "pencil sharpening," and that gives you an idea of the relative size and shape. They are SOOOO tiny (babies and penises!), and they bleed like crazy from any little wound. I SO wish the parents had to watch the video first so they'd understand what they were actually consenting to (sorry for poor sentence structure; not that much sleep these days!)

(e) last, thank you for so many well wishes on our beautiful twin boys. We may be the only ones we know with intact boys, but we are SO GLAD they are all in one piece. Lucky them, and lucky for their future wives/girlfriends/partners/whatever they ultimately "have" LOL -- hard to imagine when they are 5 lbs each and all they do is eat/sleep.

Cheers!
post #14 of 16
Thanks for the update! Congrats again
post #15 of 16
Congrats!
post #16 of 16
Sorry to hear they had such a rough entry. I hope you're doing better. SO glad your boys are home, and intact!
Thanks for your observations! It seems like if the staff was really allowed to express their opinions about circ, there would be a lot fewer in the NICU! I especially like the part about the immediate risks of circ for new babies, instead of getting all wrapped up in the "what if's" of a sexually active man.
New Posts  All Forums:Forum Nav:
  Return Home
  Back to Forum: The Case Against Circumcision
Mothering › Forums › Health › The Case Against Circumcision › UPDATE to prior post - concern about circ against wishes