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The thrush that will NOT go away.

post #1 of 14
Thread Starter 
I've tried everything to get rid of this thrush, but it's still here. I am immunocompromised. so I'm an easy target to begin with, but though I've had battles with thrush previously, this case began when DS was 2 days old, and is STILL HERE at nearly 3 months.. It's really impacting my ability to nurse him because I'm not holding on to any ability to just clench my teeth or breathe through nursing him anymore- it truly feels like someone is driving white hot poker through my breast and though I can rationalize that such things aren't reality, the pain is.

So, super-resistant thrush strategies please? The hardest thing to change is my diet- but it's a lot better than it was.
post #2 of 14
I'm sorry things have been so rough I had a long-standing battle with thrush as well, from about 3 weeks until my dd was about 2 1/2 months. At first I didn't realize what it was, and by the time I finally did it was full blown. What really helped me was washing nursing bras often in hot water, applying Lotrimin directly to my nipple, and taking Diflucan. In the end I think I went through 3-4 rounds of Diflucan ( in fact my midwife left me a long standing prescription so if I need it I dont have to call her!) before it really went away. Occasionally I'll notice redness/soreness now, and I immediately apply some Lotrimin and that seems to keep it at bay. I hope some of this can help you and that things improve soon!
post #3 of 14
I don't really know about thrush-( besides cutting out sugar and yeast) but I just have to commend you for sticking through the pain! You're a good mom!!!! My LO was latching on incorrectly for 10 days- and it felt like someone was sticking a needle in me... I don't know how you have dealt with this for three months!!!!
post #4 of 14
I dealt with a previous bout by taking grapefruit seed extract and applying a topical compounded Rx cream. But it is back. Again. No suggestions or tips. Only commiseration. At least my DD is 2.5. If this ends our nursing relationship on one side (only one side is affected), we will be sad, but I won't have to supplement, our nursing relationship won't end, etc. I am sorry.
post #5 of 14
Quote:
Originally Posted by confustication View Post
I've tried everything to get rid of this thrush, but it's still here. I am immunocompromised. so I'm an easy target to begin with, but though I've had battles with thrush previously, this case began when DS was 2 days old, and is STILL HERE at nearly 3 months.. It's really impacting my ability to nurse him because I'm not holding on to any ability to just clench my teeth or breathe through nursing him anymore- it truly feels like someone is driving white hot poker through my breast and though I can rationalize that such things aren't reality, the pain is.

So, super-resistant thrush strategies please? The hardest thing to change is my diet- but it's a lot better than it was.
confustication

yeast infections can be so painful.

I had a breast yeast infection for more than a year, but it was complicated by:
--an allergic reaction to several of the treatments (including 2 of the ingredients in APNO)
--eczema
--not treating the problem for long enough (so it could get a little better and then get worse again).
those might be things to look at. I wasn't able to really address the yeast issues until I found out it was yeast plus other things (and got rid of the treatments that I having an allergic reaction to) and maintained a consistent treatment for a several months. My doctor was concerned about too long a course of any one medication, so we did alternate oral medications (Diflucan for a month followed by ketoconazole for month followed by Diflucan for a month, etc.). I also did use a topical cream as well as grapefruit seed, etc.

I hope you feel better soon!

And congratulations on the birth of your baby!
post #6 of 14
I would have to say GSE would be your best bet to acidify your body. And then Threelac probiotics. Super pricey but the GSE followed by the Threelac was what finally killed it for me, and I had years of whole body yeast-related issues.

I did Dr. Newman's protocol, followed by two weeks of GSE in the highest doses, then 2 weeks of Threelac. If I ever feel a bit yeasty, I do the GSE followed by Threelac and it's gone.
post #7 of 14
Where do you get the Threelac probiotics from? What form are they in?
post #8 of 14
post #9 of 14
Thread Starter 
We're slowly making progress, but I've had to totally eliminate all the good stuff from my diet. The horror!

It's slightly better though, and while there is still some thrush pain, I'm now struggling with maintaining supply - cutting out all the yummy stuff cut out a bunch of calories, and my supply always tanks when I don't eat far more than any normal human should. *sigh*

Oh and scabbed nipples are not fun. My current mantra is 'this too shall pass'. I really would have given up on breastfeeding altogether if I didn't have two older kids worth of success. Oh, and I'm too lazy to make a bottle at night.
post #10 of 14

Hello Mamas,

 

I've had thrush that WON'T GO AWAY FOR 3 YEARS now and am STILL NURSING. I have done everything to get rid of it, have finally made peace with it (it's still there though much decreased) and thought I'd share my experiences for those who have tried fluconazole, gentian violet, GSE etc. to no avail.

 

Disclaimer: I'm not saying you will have thrush for 3 years. A lactation consultant I saw with 30 years' experience says I'm only the second mom she's seen in her entire career who has not been able to get rid of it. And I'm not saying that you should keep nursing. How could I know that? I'm also not saying that what has worked for me will necessarily work for you. It seems that all of our bodies respond differently! But here's my real world experience, for those of you who are sick of reading the same old stuff over and over again that doesn't correspond to your reality.

 

What I wish I had done a lot earlier: Candex. I get it at The Vitamin Shoppe. It's expensive ($40-50/month) but I'm not worried about harmful side effects and it really helps me. I take the maximum dosage (4/day). A really good probiotic rubbed on my nipples. After trying many, many brands, I use a powder form of All Flora from a company called New Chapter. Plus I take it orally. Eventually I started putting it on right after nursing, every time, and after a month or so it seemed to have helped. Now I just put some on if I feel it starting. I also found 9 garlic pills a day (3 3xday) to help. (I started with 6 a day (Pat Gima?), which didn't make any difference for me; I felt the difference when I increased to 9.) Finally, I wish I had brought the literature for b-fing mothers to my visits to my doctor a lot earlier. I would read about things, go to the doctor and find that they'd never heard of such things, and my resolve would crumble and I'd go home with the things I'd just read were likely to be ineffective. Finally I started bringing in references and pointing to them in the examining room and my doctor was willing enough (more or less) to go along.

 

What I wish I hadn't wasted my time and money and life energy and stress on: 1. Crazy yeast diets. I tried them all. Lots of various lacto-fermented foods. Avoiding lacto-fermented foods. No sugar, no yeast, no vinegar, no fruit, no mushrooms, no tomatoes.... Then about 6 months ago I said f*** it and started eating normally again. I think it might have mattered for me a little, tiny bit. Certainly not worth all the energy and stress. And guilt. 2. Naturopaths who suggested supplements that aren't considered safe for breastfeeding, like iodine and DHEA and a tea-tree-based oil to rub on my nipples. 3. Treating my pumped milk like toxic waste. Apparently Tom Hale found yeast was not able to grow in breast milk. 4. Feeling guilty for not being able to get rid of it. When my son stopped nursing all the time, my thrush symptoms decreased dramatically overnight. (And I'm not talking about because I was spending so much less time nursing.) I believe my body was one gigantic and fabulous yeast factory, and what I did to try to change that just didn't have much effect. 5. All that obsessive washing of towels after every use and stuff. Did it for a while...even though we live on the third floor and have coin-op washers. Didn't seem to matter at all when I stopped, except I felt less crazy.

 

Things I experienced that I never heard of anyone else experiencing: 1. One of my lactation consultants said "Well, you probably don't have Raynaud's AND oversupply AND thrush." But in fact I did. 2. For me, the pain was mostly during latch on except during the worst glass-coming-through-the-nipples times. I also had zinging pains I described as "electrical" that surged through my breasts. 3. I took fluconazole for 19 weeks. And in fact I think it did finally help toward the end. That was when I experienced my first pain-free time. But my doctor was extremely freaked out about the possibility of liver problems and freaked me out enough that I stopped taking it, even though I'd had several liver tests that showed no problems. 4. Getting angry at people who suggested I eat yogurt. 5. Marital stress due to how difficult it was to nurse...sometimes when the pain was at its worst I'd have to have my husband get beside me so I could dig my nails into him as my son latched on, and in general I needed his help all the time because it was SO HARD and grueling.

 

So here is what my whole thrush journey has looked like, in case it is helpful to you: First vaginal yeast infection of my life (non-itchy) for last 5 1/2 months of my pregnancy (wouldn't go away...little did I know!). First diagnosed with thrush 2 months after son's birth. First pain-free period (9 glorious days!) when son was 11 months old due to who knows what, though maybe 19 weeks of fluconazole. On garlic, Candex, and probiotics, I graduated to being pain-free for a while at a time, punctuated by thrushy outbreaks of varying severity every 2-3 weeks or so. (They weren't predictable.) But around this time I started having itchy vaginal yeast infections. Oh joy. Things stayed the same till my son's molars finally came in when he was 2 1/2 and he suddenly started nursing a lot less. Now I'm mostly pain free and it has been gradually decreasing since then, though I know it's still there...still have vaginal infections and put probiotics on my nipples proactively every once in a while.

 

When I stop breastfeeding I'm planning to use pau d'arco. (I used it for a few months after being informed it was safe for b-fing by a lactation consultant and it worked great! But then I was told by various health professionals that it wasn't safe.) Also olive leaf extract. I'm hoping they'll help me get back to my non-yeasty pre-pregnant self.

 

Best wishes to anyone who has had tough enough experiences to find this useful. You are one tough mama.

post #11 of 14

I had thrush, also, and just wanted to say it's great that you're persisting with bf'ing.  I went to my ob, my son's ped, a LLL leader, WIC consultations...tried APNO, lotrimin, garlic, Nystatin, grapefruit seed extract, gentian violet...and nothing worked.  My ob claimed never to have heard of nipple/ductal thrush, and because I was so confused and a first-time mom with little support and information I let the thrush end my nursing relationship with my son.  I felt such relief because I didn't have to cry and grit my teeth when son was hungry, but now that I'm expecting #2 I feel regret that I wasn't able to tough it out.  Congratulations, you are tough ladies.

post #12 of 14

I'm sorry you were so unsupported too. Best wishes this time around. Maybe you won't get it at all. If you do, I do believe that if I had been able to jump on it right away (rather than having my doctor dismiss it and say of my lactation consultant's suggestions, "That sounds like a bit of an overreaction, don't you think?") I would have had a more normal experience and gotten rid of it quickly.

post #13 of 14

I had a bad case of it when DD1 was a baby and what worked for me was a compounded Rx cream and then washing my nipples with vinegar and putting powdered probiotics right on them.  It made a paste that would dry there.  I would leave it on when my DD would nurse so that she got the probiotics as well.  Worked wonders.  To keep it away I did a super-strict candida cleanse diet for 10 weeks.  It sucked.  I hated it, but it was so worth it.  As a side benefit it made me drop 10-15 lbs.  :)

post #14 of 14

Glad that worked for you. Didn't for me. I ate nothing but lemon juice and meat for 3 months (or so it felt like!).

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