ok so maybe this has been covered before but I just now started coming to this forum and i'd love some thoughts from you all.
a little history: my daughter who is 5 has SPD pretty severely (though it waxes and wanes). her symptoms started early on with GERD and from there went into full blown screaming, never sleeping,and serious trouble nursing the older she got. by months she refused to be nursed at all and wouldn't let anyone or anything touch her face or she would scream for hours (literally!) etc... by 15 months she would ran fast and scream loud and laugh hard, but she spent most of her time screaming and have a communication level at a 6-9 month old (couldn't transfer from hand to hand, little eye contact, no words, no signs, etc....).after much OT and a lot of dietary changes she is a lot better at 5. in a lot of ways is completely average as far as motor skills. she still have very in turned feet and trips constantly (she has more scars than I can count from falling while running!) she is celiac and has a host of other food intolerances. sleeping problems etc...she has other issues too but those are the biggies.
my 8 month old son was born with a sacral dimple and I didn't think much of it at all. he soon started showing the same symptoms as my daughter. severe reflux, constant fussiness, the whole thing. except right away I put myself on the Elimination Diet thinking it would help to find out his allergy trigger and stay away from it. it did for a while, but now it seems it help some... but not enough.(I only have a handful of foods I can eat!) the older he gets the worse his symptoms get (just like my daughter). he doesn't scream all day unless I eat an offending food, and his communication is MUCH better than her (but i also know a lot more about this stuff so we use a lot of the therapies we used for my daughter right from the get go). He nurses pretty well, but i have no introduced ANY solids into his diet b/c I'm terrified. when we gave solids to my daughter she quickly got much worse and we ended up having to give her formula b/c my milk dried since she wouldn't nurse. the things got really bad! knowing that I've worked hard to keep the relationship with my baby boy going strong and Im terrified to introduce solids b/c he seems allergic to everything! I don't even know what to give him so he's sustained on breastmilk. anyhow he never sleep well. he wakes every 30-90 mins crying, and he doesn't nap, he had horrible reflux and he's sensory seeking like my daughter. he was siting at 5 months, crawling at 5.5 months, standing at 6.5 months and it trying to walk now at 8 months. (same as my daughter)
I'm really worried about him. I don't think an OT would see what I see only b/c I feel we do a good job of doing therapies and diet to keep things at a reasonable calm (even though we never sleep around here!). he's extremely high need.
recently I heard that a sacral dimple (even though it's not terribly deep looking) can be connected to neurological problems and i'm curious if anyone knows anything about that. I'm not even sure who to ask! I know the doctor would poo-poo my question anyhow. but it's a concern to me.
TIA for any thoughts or wisdom you all could give me!
a little history: my daughter who is 5 has SPD pretty severely (though it waxes and wanes). her symptoms started early on with GERD and from there went into full blown screaming, never sleeping,and serious trouble nursing the older she got. by months she refused to be nursed at all and wouldn't let anyone or anything touch her face or she would scream for hours (literally!) etc... by 15 months she would ran fast and scream loud and laugh hard, but she spent most of her time screaming and have a communication level at a 6-9 month old (couldn't transfer from hand to hand, little eye contact, no words, no signs, etc....).after much OT and a lot of dietary changes she is a lot better at 5. in a lot of ways is completely average as far as motor skills. she still have very in turned feet and trips constantly (she has more scars than I can count from falling while running!) she is celiac and has a host of other food intolerances. sleeping problems etc...she has other issues too but those are the biggies.
my 8 month old son was born with a sacral dimple and I didn't think much of it at all. he soon started showing the same symptoms as my daughter. severe reflux, constant fussiness, the whole thing. except right away I put myself on the Elimination Diet thinking it would help to find out his allergy trigger and stay away from it. it did for a while, but now it seems it help some... but not enough.(I only have a handful of foods I can eat!) the older he gets the worse his symptoms get (just like my daughter). he doesn't scream all day unless I eat an offending food, and his communication is MUCH better than her (but i also know a lot more about this stuff so we use a lot of the therapies we used for my daughter right from the get go). He nurses pretty well, but i have no introduced ANY solids into his diet b/c I'm terrified. when we gave solids to my daughter she quickly got much worse and we ended up having to give her formula b/c my milk dried since she wouldn't nurse. the things got really bad! knowing that I've worked hard to keep the relationship with my baby boy going strong and Im terrified to introduce solids b/c he seems allergic to everything! I don't even know what to give him so he's sustained on breastmilk. anyhow he never sleep well. he wakes every 30-90 mins crying, and he doesn't nap, he had horrible reflux and he's sensory seeking like my daughter. he was siting at 5 months, crawling at 5.5 months, standing at 6.5 months and it trying to walk now at 8 months. (same as my daughter)
I'm really worried about him. I don't think an OT would see what I see only b/c I feel we do a good job of doing therapies and diet to keep things at a reasonable calm (even though we never sleep around here!). he's extremely high need.
recently I heard that a sacral dimple (even though it's not terribly deep looking) can be connected to neurological problems and i'm curious if anyone knows anything about that. I'm not even sure who to ask! I know the doctor would poo-poo my question anyhow. but it's a concern to me.
TIA for any thoughts or wisdom you all could give me!
. I hope that katwrangler stops by with some more info for you, but just wanted to say that according to our urologist, the neurological issues associated with a sacral dimple would usually be bladder, bowel and lower limb related. DD had an MRI at 10 months to rule out spinal abnormalities because she had a sacral dimple along with bladder issues.
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