x-posting in Special Needs
I don't even know if someone will throw us a baby shower, but I'm trying to think positively about the future, so i'm trying to think about these things.
Baby will have at least the giant omphalocele (all/most of the abdominal organs in a sac outside the abdomen), and more than likely some other problems. This will mean a NICU stay (or stays), and a lot of special issues. We won't be using newborn size clothes, because of the omphalocele, and we'll probably need only very specific clothes. We will need a special car seat, special feeding stuff, and will be using a hospital pump rental. So none of that stuff will be going on the registry.
Would it be weird or off-putting for the invitations to specify that because of baby's special needs, the registry needs to be followed precisely, unless someone is getting something like art? And would it be weird to request gift cards to the health food co-op near the children's hospital? I have food allergies, and the food at children's is really terrible, and we're going to be spending a lot of time there. When my dd was admitted there for 8 days last year, I ate almost exclusively from the co-op (they have fridges and microwaves for the families), and it was $$$.
Anything else anyone liked or wish they'd done/had for their baby showers for special kids?
I don't even know if someone will throw us a baby shower, but I'm trying to think positively about the future, so i'm trying to think about these things.
Baby will have at least the giant omphalocele (all/most of the abdominal organs in a sac outside the abdomen), and more than likely some other problems. This will mean a NICU stay (or stays), and a lot of special issues. We won't be using newborn size clothes, because of the omphalocele, and we'll probably need only very specific clothes. We will need a special car seat, special feeding stuff, and will be using a hospital pump rental. So none of that stuff will be going on the registry.
Would it be weird or off-putting for the invitations to specify that because of baby's special needs, the registry needs to be followed precisely, unless someone is getting something like art? And would it be weird to request gift cards to the health food co-op near the children's hospital? I have food allergies, and the food at children's is really terrible, and we're going to be spending a lot of time there. When my dd was admitted there for 8 days last year, I ate almost exclusively from the co-op (they have fridges and microwaves for the families), and it was $$$.
Anything else anyone liked or wish they'd done/had for their baby showers for special kids?
s
