Do you do the PKU test? - Page 3

[lia_joy]

  There are thyroid issues in DH's family, so based on that alone, I felt it was an easy decision.  We got a check up (and signatures for our birth certificate paperwork) with the family dr  a couple days after our UCs and the Dr had us wait  to get it done at the hospital.  I think it was around 2weeks old if I remember correctly. I remember thinking it was odd cause people talk about having it done at birth, and i can't remember the reason she gave for waiting... anyway, I hate how they prick the babies & i'll be looking into the urine test because I'd much prefer that, but either way we'll do it cause I know at least some of the stuff it tests for, our kids will be at risk.

[SeaChellsRun]

I know this is an old post but I would like to add why we will NOT do PKU again. I found out after the fact of DD getting PKU done that the blood is put into a state DNA database without my consent or knowledge. We're still furious that this was done but shouldn't have been surprised as it was a free states test, so I should have known something was up.

http://www.cchfreedom.org/issue.php/14

PDF with more info

www.edwatch.org/pdfs/Genetic%20TestingParents'%20Rights.pdf

[BaileyB]

Originally Posted by homemademomma 

Originally Posted by inertia

Almost every state stores the DNA information from the PKU test in a database that is used for scientific research.

Really? Do you have a credible link to back that up? What kind of research are they doing?



I did not vaccinate my children, and they were both born at home, but I opted to get the metabolic screening because the tiny amount of pain caused by a heel prick is absolutely immeasurable compared to the pain that an undiagnosed metabolic condition could cause. My classmate's nephew has PKU that was untreated for a number of years, and he has severe damage as a result.

I don't have a link for the research that they do but I have heard that many many many times. Also, I think it is really cool that you are/were a surrogate! How awesome!

[homemademomma]

Originally Posted by BaileyB 

I don't have a link for the research that they do but I have heard that many many many times. Also, I think it is really cool that you are/were a surrogate! How awesome!

Thanks BaileyB! I think it is pretty cool too. As far as the DNA thing, i would rather the gvt experiment on my kid's DNA than risk he or she suffering the life long cognitive disabilities that come with something like untreated PKU. JMO.

[ChristSavesAll]

GAH! I had a whole response that got gobbled up by the internet monsters! So now I'll make it short.

Had a horrid experience with my first dd and that test, did not test dd2 and don't plan on testing future babe due in July/August. We supplement high dose iodine regularly which lack of is the main cause of metabolic disorders, which starts during pregnancy. We also use homeopathy for any health issues or illnesses we do encounter, though thus far and been minimal.

A Review on the Metabolic Disorders of Iodine Deficiency

http://scialert.net/abstract/?doi=pjbs.2011.412.424

[BlessedOne]

With my two UCs I didn't do it and I don't plan to do it with this UC either. My first child was a hospital birth and of course had it.....my second child was a birthing center birth and I would have opted out of it had I the option....but it was required by state =(