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Originally Posted by beachbaby  Anybody still around? After a good month or so, things have been tough lately. Just feeling defeated and worried about the future (school, social issues as DD gets older). And feeling not-so-supported by most of those I've chosen to share DD's dx (now articulation disorder in addition to SPD)with....really ignorant and silly comments like saying that she has a speech delay b/c she's an only child and 'has so many adults who do things for her'. Um, ok. 
Just feeling  and needing to connect with mamas who understand. |
DS (nearly 4) has the same diagnosis -- articulation disorder and SPD. Apparently they often go hand-in-hand, though research hasn't figured out why yet. Regarding both speech and behavior, I got stupid comments about ds's older sister being so articulate that she spoke for him, or that it was because he's my youngest, so we baby him.
To which I say: Piffle.
Unless a person has lived with us, 24-7, for at least two weeks, they simply don't know the ins and outs of ds's needs. I do, and sometimes that means it looks like I'm being too tough on him and sometimes it looks like I'm being too easy on him. He's always changing and I'm always figuring things out, but I still know what works and when for him better than anyone else and quite frankly, if anyone feels the need to say something snarky when he's having a rough day, they can suck it.
General update on us:
DS is seeing an OT twice a week and it's made a huge difference. He's rejoined a number of activities that he couldn't handle sensory-wise just six months ago and he's learned a lot of coping skills and more socially-appropriate and safe ways to meet his sensory needs. Having someone come to our house just to play with him is also really fun for him and he loves having that special activity to look forward to, though he does resist some of the exercises she asks him to do. We're working on increasing his stamina -- he really fluctuates in energy levels and it makes it hard for him to keep up with the world around him sometimes.
His sleep has hit the toilet again, but we figured out why after the first week. He's teething! Somehow I completely blanked out those last sets of molars and mentally assigned teething to babyhood, despite my experience to the contrary with dd. Never even thought about it in relation to my almost 4-year-old. Once those teeth finally break through, I'm hoping the sleep comes back and he stops chewing on everything in sight.
Oh, and clothes? Clothes are The. Enemy. "Mama, I don't want to get dressed. I hate getting dressed." No kidding, sweetie. I got that one figured out somewhere during week 2 of the daily screaming fit and 45-minute saga around picking out a pair of pants. Last year it was the Snow White ballgown that he wore every day for 5 months. Now it's footie pajamas all the time, or "bootiful" clothes that feel good. This definition changes hourly, of course.
Glad to hear the OT is helping so much. And 
about the 'bootiful' clothes. My DD is all about the 'FAAAAAAAAAAAANCY' clothes, too. 
She gets so mad, though, when she wears a tutu out in public and people call her a princess. She asks me to make signs for her to wear that say 'I am NOT a princess!' LOL!
