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just feeling worn out

post #1 of 12
Thread Starter 
Theodore is 4 now.

still no offical Dx. Looks like SPD / anxiety / physical brain immaturity / and the expressive speech delay he is Dx with.

do we have a "run ragged tired sighhhhhhh" of a smilie

He is getting MORE emotional.

On one hand he is getting much better, longer attention span, more coorraptive and so on .. but then the flip side is his "emotional times" and "silly time" and his "out of conrtol times" seem to be STRONGER -- like more consentrated...instead of being a bit of a gooph all the time, he is more "normal" some and a lot "less normal" other times.

but the non-normal times are getting so much harder to work though / deal with / control.

he is getting harder for me to maintain. A lot of more of it is physical containment, rather than "keeping him on an even keel" -- jsut kinda buffering the uneven keel -- yk?

Also as Charles needs more from me, it is getting harder to strech to maintain Theo (or flat out control him sometimes). I mean I am only one being with two arms. both boys are hevey and strong. Charles wants to look around too, or he is intrested in this or that too -- so it is not any longer "just carry Charles along" and deal with Theo

(and Charles is very vocal about his wants and has more temper than Theo ever has / had)

his sadness is longer lasting, he cries harder and longer and is upset again and again by the same thing. his silly time is 110X more -- running faster, lasting longer, more combing, jusdt MORE

I KNOW he feeds off me and i am having a harder and harder time not personally feeling stressed -- with him and with the two of them. i just feel pulled all the time, i feel like i am not doing my best for either, and i feel stressed ---- i know Theo feeds off that and it just sets him off in a cycle that effects me and os on

I mean -- over all he is more mature and more "together" and wow he is doing so much better is ST and on the school stuff we do at home. But now when he is "out there" he seems farther out.

I don't know just feeling worn down ....

.i tried to talk to mom on the phone, he tore all the sheets off the bed, jumped from the glider to the bed, fell .. dumped 2 baskets of clean laundry and was laughing like th ejoker all the time ... and there is no reaching him when he is like that. I finally put him in his room, he screamed -- 90 seconds later he was seaking into my room giggaling uncontrolable ..

just feeling defeated
post #2 of 12
I find 4 to be a bit challenging anyway. Actually, the whole 2-4y range. Having 2 there myself right now... Is there a mother's day out program or something similar that you could try for a bit to at least get a break? Isaac just started preschool very part time (couple of hours a day for 4 days a week) building up to full time when I am gone this summer. Already, it has made a huge difference in my ability to deal with the hard times. Knowing that I will get a break from the intensity, combined with an actual break, is really good for me. I remember feeling this way with the older boys as well (all high needs in their own way), so I think it is probably part of that natural separation process that occurs as they get older combined with the extra stressors of a high needs kiddo.
post #3 of 12
Thread Starter 
Quote:
Originally Posted by queencarr View Post
I find 4 to be a bit challenging anyway. Actually, the whole 2-4y range. Having 2 there myself right now... Is there a mother's day out program or something similar that you could try for a bit to at least get a break? Isaac just started preschool very part time (couple of hours a day for 4 days a week) building up to full time when I am gone this summer. Already, it has made a huge difference in my ability to deal with the hard times. Knowing that I will get a break from the intensity, combined with an actual break, is really good for me. I remember feeling this way with the older boys as well (all high needs in their own way), so I think it is probably part of that natural separation process that occurs as they get older combined with the extra stressors of a high needs kiddo.
no prrgram that Theo can go to. (or both of them)

not in the rural area where we live.

we try to go to lib group -- but i have to stay (all the moms stay) and Theodore can't really handle it anyway -- it is a PITA ...

i just feel totally drained all the time ...

Aimee
post #4 of 12
I thought about how rural you live after I posted, sorry it wasn't helpful. Is there a teenager that you could hire to entertain him or them for a bit? Even for you just to take a real shower vs the mad dash kind? That's what I did before I could leave the boys at preschool. Let's see, if you go to church what about a ladies' class? Our church offers one during the day with childcare--we have a little lesson, then lunch out together, all child free. It is an amazing break. For me, it was/is the intensity of the behavior that drove.me.up.a.wall. Or MOPS, a Christian Mom group with childcare. These have been my sanity this past year (Isaac is...intense ). The ladies' class is intellectual and stimulating, the MOPS is usually more girl fluff. I know how it is, just needing a break. I'll try to brainstorm some more.
post #5 of 12
Thread Starter 
Quote:
Originally Posted by queencarr View Post
I thought about how rural you live after I posted, sorry it wasn't helpful. Is there a teenager that you could hire to entertain him or them for a bit? Even for you just to take a real shower vs the mad dash kind? That's what I did before I could leave the boys at preschool. Let's see, if you go to church what about a ladies' class? Our church offers one during the day with childcare--we have a little lesson, then lunch out together, all child free. It is an amazing break. For me, it was/is the intensity of the behavior that drove.me.up.a.wall. Or MOPS, a Christian Mom group with childcare. These have been my sanity this past year (Isaac is...intense ). The ladies' class is intellectual and stimulating, the MOPS is usually more girl fluff. I know how it is, just needing a break. I'll try to brainstorm some more.
it is ok

we go to Chruch, and he (they) go to nusery -- as long as it is only them two or maybe one other child .. if there are several kids Theo can't handle it ... and frankly there are few that can handle him "wound up" (me, a good momma buddy of mine who has spent a ton of time with him over 2 years, my mom -- that is it really. DH can get him out of the situation, but not really calm him or work with him). So if there are too many there i have to take him out, or stay in there too ...

other than that. SHRUG

We do have a couple of teens who babysit / mother's help (the DD of teh momma buddy above) ... buttttttttttt it is touch and go to say the least.

it is ok.

don't stress.



i just need somewhere to talk, i know there really is not a answer -- at least at now.

I am meeting with our SW this week -- i hope -- we have to find so ways to work with him ...

i wish we had a decent DX so that i had some direction as to what he needs, what will ":click" him ...

i don't know
post #6 of 12
I think that age is really hard. Andrew started getting easier after five and gets better and better in time. He's still difficult but at four I posted here often feeling like I wouldn't make it.

Does Scott ever take over and just let you get away?
post #7 of 12
Thread Starter 
Quote:
Originally Posted by sbgrace View Post
I think that age is really hard. Andrew started getting easier after five and gets better and better in time. He's still difficult but at four I posted here often feeling like I wouldn't make it.

Does Scott ever take over and just let you get away?
Scott does take them -- much more in nice weather (they go stomp around and "hike" or to the park) and the bad weather that has us all house bound menas that Scott can't take them outside or so do outdoor stuff.

i think that the fact they have not been able to play outside since BEFORE CHRISTMAS is an issues too -- he is just a ping pong ball right now.

But the thing is -- Scott or the mother's helper -- they can only take Theo when he is in a good place. when he is emotional or wound i am the only option -- he will not go to anyone else and no one else can reach him ....maybe scott if i am at work -- but the best Scott can usally do is maintain him and try to direct the wound-ness into play or whatever -- Scott can't really calm him. now if Theo is hurt or whatever Scott can comfot THAT no prob -- but not the big emotion stuff. ............so the out come is that when he is really intense -- it has to be me.

i love my boy and i love being able to care for him -- but

whewwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwww
post #8 of 12
Quote:
Originally Posted by Momma Aimee View Post
Scott does take them -- much more in nice weather (they go stomp around and "hike" or to the park) and the bad weather that has us all house bound menas that Scott can't take them outside or so do outdoor stuff.

i think that the fact they have not been able to play outside since BEFORE CHRISTMAS is an issues too -- he is just a ping pong ball right now.

But the thing is -- Scott or the mother's helper -- they can only take Theo when he is in a good place. when he is emotional or wound i am the only option -- he will not go to anyone else and no one else can reach him ....maybe scott if i am at work -- but the best Scott can usally do is maintain him and try to direct the wound-ness into play or whatever -- Scott can't really calm him. now if Theo is hurt or whatever Scott can comfot THAT no prob -- but not the big emotion stuff. ............so the out come is that when he is really intense -- it has to be me.

i love my boy and i love being able to care for him -- but

whewwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwww
I know you posted you live in a rural area, but are there any play areas in driving distance? I hate McDonalds, but in the winter in the Northeast, I take my kid to the play area or the mall early in the day and let him run laps. When he was younger, I found a play group in a local community center that let the kids run in the gym, use the tumbling mats, and play with their scooters inside. I'm forever grateful to the mom who started that play group.

My son has ADHD/SPD/ and had a speech delay. Until, his receptive language developed, it was really hard. He was a bundle of sensory seeking, loud, anxious, loving energy. He was like a raw nerve and everything rubbed him the wrong way. He fell apart and screamed and was unable to tell us why. Winter was always the worst time of year. I'm not sure when he changed, around 4 or so, but it did get better.
post #9 of 12
Quote:
Originally Posted by Momma Aimee View Post
But the thing is -- Scott or the mother's helper -- they can only take Theo when he is in a good place. when he is emotional or wound i am the only option -- he will not go to anyone else and no one else can reach him ....maybe scott if i am at work -- but the best Scott can usally do is maintain him and try to direct the wound-ness into play or whatever -- Scott can't really calm him. now if Theo is hurt or whatever Scott can comfot THAT no prob -- but not the big emotion stuff. ............so the out come is that when he is really intense -- it has to be me.

i love my boy and i love being able to care for him -- but

whewwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwww
What happens if you are not there? Do you think your DH would eventually be able to deal with it and calm him? Is your DH generally a well-adjusted, patient person? If so, I suggest you let him learn what works well for him as a dad to reach his son, learn his own ways to calm him. I know you may be able to best, but it is important that your DH also learns some skills and coping techniques so that you don't burn out. It helps their relationship too. He will only be able to learn what works best for him through some trial and error with you not around as an option for either DH or DS.

For example, I get my baby to sleep by nursing him down. It works best, no crying or tears, most nights. But there are times it isn't working, and I am burned out, and there are times I need to be away from home at bedtime. DH can get DS to sleep too, but he does it very differently than me. He figured it out back when DS was having bad food reactions and was horrible to get to sleep and I needed a break and some sleep before I lost my mind. I would go into the bedroom and turn our fan on full blast facing the wall (for the white noise) so I wouldn't hear DS and DH would take him. I would feel like a horrible mean mama for doing this because he would SCREAM for the first few minutes for me. BUT DH coped, he paced, and patted, and sung to him, hummed and rocked. He found out he could sit on the couch and pat him, but not the chair, he could hold him over his shoulder, but not cradled in arms, etc, basically he found ways to comfort DS that worked for them. He never could have done that if I was there. Mama is an easy option, but mamas burn out, mama's need sleep, and showers, and adult conversation, and to go to the store alone sometimes. At least this mama does! And it helps me be a better mama afterwards. So I don't think it is a selfish thing. We have to take care of ourselves so we can care for them.
post #10 of 12
Thread Starter 
sigh

feeling really worn dwon

trying to find more answers on theo
post #11 of 12
Quote:
Originally Posted by Momma Aimee View Post
sigh

feeling really worn dwon

trying to find more answers on theo
I'm with you, Aimee. Hang in there! Keep searching..the answers are out there.

Hugs,
mrsfru
post #12 of 12
Thread Starter 
started a new thread

http://www.mothering.com/discussions...8#post15175478

also we are going to do Feingold Program even though i am scared t death because of his very limited eatting and his frequent not eating
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