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Midline defects?

post #1 of 15
Thread Starter 
What exactly are midline defects? I've noticed reference to them around these forums, but can't find information now (and what I'm finding via Google is a little over my head).

I ask because my 7.5 month old daughter has a tongue tie (not clipped, not interfering with nursing and she can extend tongue quite far), and has now just been diagnosed with a heart defect - atrial septal defect ("hole in the heart") - I am wondering if there is something related about these two things and if there is anything else we should be aware of/looking for.
post #2 of 15
Thread Starter 
bump.
post #3 of 15
I think there was one on the allergy sub-forum a while back, and how it related to food allergies, I think. My DH has an ASD as well (but he just found out last year when he was 41).
post #4 of 15
post #5 of 15
Thread Starter 
Wow that's alot of info, thanks! The second two links don't work though.

Can anyone break it down to the bare basics for me, to start?
post #6 of 15
Quote:
Originally Posted by Limabean1975 View Post
Wow that's alot of info, thanks! The second two links don't work though.

Can anyone break it down to the bare basics for me, to start?
I fixed the links.

Dr. Fuhrman warns:
DO NOT take multivitamins
that contain folic acid.
and
If you are pregnant,
DO NOT take prenatal vitamins!


Basically about 50% of the population doesn't process folic acid (which is synthetic B9) effectively. We require 5-methyltetrahydrofolate (5-MTHF) the natural form, or else we have a lot of diseases and disorders, such as

Downs syndrome, blood clots, cardiovascular disease, chronic fatigue, IBS, anxiety, fibromyalgia, depression, migraines, strokes, homocysteine, dementia, schizophrenia, nerve pain, Parkinson, miscarriage, infertility, Alzheimers, non-Hodkins lymphoma, gastric cancer, kidney failure, addiction, alcoholicsm, obesity, heavy metals, diabetes, Leiden Factor V, OCD, bipolar, aggression, liver dsyfunction, renal dysfunction, pulmorary fibrosis, autism, breast cancer, colorectal cancer, adenoma, endometrial cancer, lung cancer, spina bifida, neural tube defects, preeclampsia, placental abruption, hypothyroid, psoriasis, etc.

[there are nuances to the different types of folate, but bottom line, we must have sources of bio-available folate. ]

What foods provide folate?
Romaine lettuce, spinach, asparagus, turnip greens, mustard greens, liver, collard greens, broccoli, cauliflower, beets, lentils, squash, black beans, pinto beans, garbanzo beans, papaya, string beans.
http://www.whfoods.com/genpage.php?t...trient&dbid=63


Also, many medications interfere with the utilization of folate:

Also, many medications interfere with the utilization of folate:
Medications that can help deplete the body's supply of folate include: anticancer drugs like methotrexate; cholesterol-lowering drugs; anti-inflammatory drugs like sulfasalazine; biguanide drugs like buformin, phenformin, or metformin used in the treatment of diabetes; birth control pills (oral contraceptives); diuretics like triamterene; and antibiotics. While the anti-convulsant drug phenytoin (sold under the brand name of Dilantin or Phenytek) remains somewhat controversial in terms of its impact on folate.


Birth defects often occur due to the absence of adequate food folate, generally not the absence of synthetic B9 (folic acid), which is in prenatals and added to foods such as cereal and bread.


More specifically, there are issues with the methylation detox pathway.



Pat
post #7 of 15
Thread Starter 
JUst looking through those threads...she also has an extended crease/butt cleavage, that curves a bit to one side. Related?
post #8 of 15
Quote:
Originally Posted by Limabean1975 View Post
JUst looking through those threads...she also has an extended crease/butt cleavage, that curves a bit to one side. Related?




Pat
post #9 of 15
Quote:
Originally Posted by Limabean1975 View Post
JUst looking through those threads...she also has an extended crease/butt cleavage, that curves a bit to one side. Related?

Ack-my DD has this too! Does this mean something is wrong that I should be aware of? She doesn't seem to have any food allergies nor is she tongue-tied (I think!?!)
post #10 of 15
Thread crashing.

So I have been terrible about following the big thread. However, I ate the same with all three kids. It's the middle one with Lipomyelomeningocele and tethered spinal cord, neurogenic bladder and bowel. Why would it affect one child and not all three? Granted with baby#3 I was put on prescription strength folic acid. But not with the other two.
post #11 of 15
Pat,

I am having a really hard time agreeing with Dr. Fuhrman. What scientifc studies is he basing this on? Not taking Folic Acid goes against everything I have read. Incluiding Duke Genetics and the Spina Bifida Association.

http://www.chg.duke.edu/diseases/ntd.html
post #12 of 15
Thread Starter 
Quote:
Originally Posted by acupuncturemomma View Post
Ack-my DD has this too! Does this mean something is wrong that I should be aware of? She doesn't seem to have any food allergies nor is she tongue-tied (I think!?!)
As far as I understand, each of the midline defects can exist on their own and it does not necessarily mean anything else.

No sign so far of allergies in my DD.
post #13 of 15
Quote:
Originally Posted by KatWrangler View Post
Pat,

I am having a really hard time agreeing with Dr. Fuhrman. What scientifc studies is he basing this on? Not taking Folic Acid goes against everything I have read. Incluiding Duke Genetics and the Spina Bifida Association.

http://www.chg.duke.edu/diseases/ntd.html
Anne, I started a thread with the links to the references.
REAL folate is much better than folic acid


Pat
post #14 of 15
Quote:
Originally Posted by KatWrangler View Post
Why would it affect one child and not all three? Granted with baby#3 I was put on prescription strength folic acid. But not with the other two.
The issue is the effectiveness of liver detoxication (perhaps also due to hyperhomecysteine levels), which is based upon toxin exposure and nutrient availability (stomach acid, etc.), in addition to the genetic code which is shared from each parent with each individual child.


Pat
post #15 of 15
Quote:
Originally Posted by WuWei View Post
The issue is the effectiveness of liver detoxication (perhaps also due to hyperhomecysteine levels), which is based upon toxin exposure and nutrient availability (stomach acid, etc.), in addition to the genetic code which is shared from each parent with each individual child.


Pat
Pat what about whole food prenatals? Like new chapter or mega food??
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