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Our test results.... updated #12, #21, #146 - Page 7

post #121 of 426
1/29/10 at 1:04pm
I think GSE is anti-bacterial, so it'll wipe out a wide swath of bacteria, bad and good, so you'd want to be supplementing with a probiotic separate from the GSE--I don't know how far away, I'm really not sure how frequently GSE is supposed to be used.
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post #122 of 426
1/29/10 at 1:38pm
Quote:
Originally Posted by changingseasons View Post
Yeah- I hope it's that simple too.

hmm... she doesn't seem to have any trouble with sugars at all, only the grains. Not that we eat much regular sugar- but we do eat a lot of honey.
Honey is SCD safe - it doesn't need the small intestine enzymes (disaccharidases) to be broken down, cause it's already monosaccharides
post #123 of 426
1/29/10 at 1:43pm
Quote:
Originally Posted by changingseasons View Post
Thanks- good to know. I thought that I had read something bad about GSE... but I have no idea where, or what it was...

Here is some of the controversy related to GSE. Many mamas have had positive results, however. There is a long list of natural antifungals, antibacterials, antiparasitic, antimicrobials foods and spices to consider also.

Caution: not all are appropriate for pregnant or nursing mothers!!



Pat
post #124 of 426
1/29/10 at 2:36pm
In autism circles, GSE is used for yeast, but isn't as good for bacteria for most people - oil of oregano is good for bacteria, is that safe for you?
post #125 of 426
1/29/10 at 3:02pm
Our ND was really particular about which herbs, etc. get used for effectiveness against which bacteria or yeast. In fact, there were specific recommendations that came with my stool analysis, and a list of herbs, telling exactly which ones could work against the enterobacter cloacae and which were not effective. So I don't think I'd go wild and just try anything on the lists...
post #126 of 426
1/29/10 at 3:15pm
Thread Starter 
Huh. I thought that I just read that GSE was good for bacteria, but not for yeast. I've read too many things this week though.

I think that the test results came with suggested conventional and natural treatments, and I think they test for sensitivity to each treatment as well. I'm guessing that's why he said GSE. I guess I'll see once I get the test results, or after our appt on Tuesday.
post #127 of 426
1/30/10 at 3:46am
Thread Starter 
Ok... have to stop talking about this in the chat thread too, because I'm getting confused on where I've posted stuff.

Stupid question.... is there any reason to think that I might also have an issue with this bacteria? Or DP? Or has it just gotten out of control because of DD's jacked up immune system? And if so, what specifically allowed this bacteria to take over? How do we prevent it from happening again? (obviously, we can take probiotics... but that's not something that I want to do long-term- at least not the pill form anyway.)

So at this point (this may all change after I see the doc on Tuesday and look at the test results... which they never mailed me ), I'm looking at doing the Gastromycin and Pharmax HLC Mindlinx. And continuing calcium. And restricting super-high oxalate foods (like chocolate and blueberries. ) I think that's it for now.
post #128 of 426
1/30/10 at 9:39am
In our case, I don't think I have the gut issues DS has. I think what happened for him is he got low in zinc, stopped digesting a lot of foods, and that let a ton of garbage flourish in his gut. I think for him, long term maintenance involves digestive enzymes, supps to try to prevent future deficiencies, daily kefir, and probiotics weekly or so, more often if he's sick, reacting, etc.

So I definitely think it's possible for them to have gut bacteria issues when you don't. But no guarantees . What happens when you eat starches?
post #129 of 426
1/30/10 at 1:51pm
Thread Starter 
hmm... I've had a lot of gassiness in the past year or so, but it's not consistent. I noticed it when I was using a lot of coconut milk (especially with coconut milk ice cream), and for a while I suspected buckwheat and/or honey. But then other times I'd eat buckwheat and honey and be fine. So I'm not sure what other variables are going on. But there's definitely something up with my gut too.


So... last night at 2am I got woken up by getting slapped in the eye. HARD. DD was obviously in a lot of pain.. I just don't get why she thinks it's me hurting her and feels the need to fight back. Anyway- she had the worst gas I think she's ever had yesterday, so obviously the potatoes were not a good idea for a week straight. This morning we're having lamb burgers and bone broth for breakfast. I have no idea what else to feed her.
post #130 of 426
1/30/10 at 2:09pm
I'm sorry, CS . I've woken up getting attacked too, and it's awful.

I hope that your DAN doc has a plan on Tuesday that helps quickly. I have to say, in your shoes, I might be considering the Nystatin (or whatever abx he was talking about), as a way to get more quickly to a place where starches might be possible to eat.
post #131 of 426
1/30/10 at 5:37pm
Thread Starter 
Ok- DD is still having really stinky gas- over 24 hours since we ate potatoes. Now I'm wondering if it was the honey bothering her rather than the potatoes (I'm mixing the calcium in honey- the really stinky gas started after we started the calcium/honey mix... sigh.) If so- do I assume that it's feeding the bad guys, or that it's killing them off? There isn't anything in the calcium supp that should be bothering her, but who knows. Is there anything about calcium itself that would shift things in her gut?

Ugh. Tuesday canNOT get here fast enough.
post #132 of 426
1/30/10 at 5:51pm
Die off often has symptoms get worse before they get better - but it's hard to know if you're actually causing die off or just feeding the wrong things!! Hang in there, just a few more days...
post #133 of 426
1/31/10 at 3:07am
It would appear that there's a lot of variation in the oxalate content of breastmilk:
http://mobile.journals.lww.com/jpgn/...&article=00002
if you scroll down and look at the testing results, it ranged from 40 to 160! My mind is boggling over here at the implications of that and things like, say, cavities in a 12mo... Is it time to spin off an oxalate thread? Or just keep it all here?
post #134 of 426
1/31/10 at 2:34pm
Thread Starter 
Quote:
Originally Posted by whoMe View Post
It would appear that there's a lot of variation in the oxalate content of breastmilk:
http://mobile.journals.lww.com/jpgn/...&article=00002
if you scroll down and look at the testing results, it ranged from 40 to 160! My mind is boggling over here at the implications of that and things like, say, cavities in a 12mo... Is it time to spin off an oxalate thread? Or just keep it all here?
Interesting stuff. Too much for my brain this morning... but interesting.

Yeah- feel free to start a new thread! We've got all sorts of topics going on in this one, and we'll probably have more on Tuesday.
post #135 of 426
1/31/10 at 8:00pm
Quote:
Originally Posted by whoMe View Post
It would appear that there's a lot of variation in the oxalate content of breastmilk:
http://mobile.journals.lww.com/jpgn/...&article=00002
if you scroll down and look at the testing results, it ranged from 40 to 160! My mind is boggling over here at the implications of that and things like, say, cavities in a 12mo... Is it time to spin off an oxalate thread? Or just keep it all here?
Doesn't surprise me at all - DS clearly reacted when I ate high sals, so those definitely passed in breastmilk, basically in proportion to what I ate.

CS, the oxalates fighting bacteria we were talking about upthread - Oxalobacter formigenes. I've been noodling on that one, since there's no probiotic supp avaialble with this strain. It's a commonly occurring soil organism - I'm wondering if soil based organism probiotics (like here), might possibly contain this strain? Or just go eat dirt ... (I know they said most kids colonize this bacteria around 3yo, and I'm wondering how they do it...)
post #136 of 426
1/31/10 at 9:55pm
Thread Starter 
Wait... what? Oxalates fighting bacteria? Did I just completely miss talking about that?
post #137 of 426
1/31/10 at 10:07pm
Quote:
Originally Posted by changingseasons View Post
Wait... what? Oxalates fighting bacteria? Did I just completely miss talking about that?
it's talked about in the lowoxalate.info site, i think. see here: http://www.lowoxalate.info/research.html

and here: http://www.ncbi.nlm.nih.gov:80/pmc/articles/PMC124017/

edit: here's the page to the company working on that strain-specific probx: http://www.oxthera.com/products.php doesn't look like it's available yet, though?
post #138 of 426
1/31/10 at 10:13pm
Quote:
Originally Posted by changingseasons View Post
Wait... what? Oxalates fighting bacteria? Did I just completely miss talking about that?
LMAO - wasn't it you posting about it upthread???? :nana
post #139 of 426
1/31/10 at 10:20pm
Thread Starter 
lol- I totally read that wrong (I think- I'm really confusing myself now.) I read your first sentence as meaning that oxalates will fight bacteria, not that there is an oxalate-fighting bacteria (a bacteria that fights oxalates), which is what I now think you mean.
post #140 of 426
1/31/10 at 10:39pm
Quote:
Originally Posted by changingseasons View Post
lol- I totally read that wrong (I think- I'm really confusing myself now.) I read your first sentence as meaning that oxalates will fight bacteria, not that there is an oxalate-fighting bacteria (a bacteria that fights oxalates), which is what I now think you mean.
Yup ... but after 7 pages, I could be making stuff up instead of remembering it .
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Mothering › Mothering Discussion Forums › Health › Health and Healing › Allergies › Our test results.... updated #12, #21, #146