test after test

[mama516/419]

I m getting so frustraed by the emmotional roller coaster that all the testing my son is going threw is putting us all through. My poor baby boy. He started what has only been diagnoised as Invoulntary Biliemia for almost a year now . He has under gone blood work , chest Xrays, Cat scan , Ear tubes and today an upper GI scope with biopsys and every test has come back normal. When the doctor tells us " everything looks great" were so relived and happy - until it settles in that we still dont know why hes throwing up 4X a week and invevtably this just means we have to go to a new test with more meds and IVs . Just really looking to hear I am not alone in this

[MotherWhimsey]

There are a lot of us here who's kids have gone through a bunch of testing. It's not easy to watch your kid have to go through it all. I hope you guys get some answers eventually.

How old is your son?

[sbgrace]

it is so hard when we finally got to some answers it got easier or at least different emotionally. I hope you start getting some too soon.

[earthmama4]

My third DS threw up 2-3 times a week or more for a few months when he was a preschooler. We couldn't figure it out! The dr eventually thought it might be neurological and ordered an MRI, but my instincts told me it was more emotional/psychological, related to anxiety and sensory issues. He had started with a new babysitter who strongly encouraged him to eat his vegetables. Being a compliant kid, he'd squirrel them in his cheeks until I picked him up. Eww. He would sometimes vomit at her house, but actually more often it would be in the middle of the night, hours after the offending food was spit out. Once I discovered what was happening I decided to send him with a lunch from home everyday - healthy food that I knew he liked. Vomiting went away, overnight! Almost a year later, the first week of Kindergarten, the vomiting returned. I found out the teachers made the kids take one bite of everything on their tray before could go to recess. Once I let them know that really won't work for DS and why, no more vomiting. And we would check the menu carefully and sent lunches on days where the cafeteria food choices wouldn't work for him. DS has powerfully sensitive senses, his sense of taste and smell are way keener than mine, and I think offensive tastes, smells, and textures truly overwhelmed his neurological system and his body responded in a reasonable way - to get that stuff out! So I guess in a way the dr was right, it was neurological...just nothing that would show up on an MRI!

I don't know if anything in my story rings true for your son, but if he has sensory issues, picky eating, anxiety, difficulty with transitions....I'd keep that in mind. Good luck finding your answer!

[theretohere]

mama, that does sound frustrating!