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How worried would you be about ASD in my 14 mos DS?

post #1 of 8
Thread Starter 
I have avoided posting this, but its on my daily thoughts, so I am just going to throw it out there and see what others have to say. Sorry its long!

Here's the family history - three boys from my first marriage, DS1 is 13 and has Aspergers, just dx in December 09. The psychologist who tested DS1 thought that my other two were likely on the spectrum after my parent interview, though they have not yet been tested. But after weeks of reading and research, I am certain that DS2 (11) also has Aspergers. and DS3 (8) is likely mild PDD-NOS. Their father and I are divorced, and he is a very rigid, black and white thinker who has anxiety and is socially awkward. So I want to say the gene component is his fault but who knows. I can be a little ADD-ish and hyper-focused on one topic, and eye contact in certain situations can be difficult for me, so who knows!

Anyway, my current DH and I have one child together who is now 14 months old. Some of DH's childhood descriptions have made me wonder about spectrum-issues though he seems almost totally NT to me now. Our baby has had GI issues related to food sensitivities from his first day of life. His whole first year I have been trying to get him stabilized in that area. Interestingly, the best information I have found as to the root causes of IgG / GI problems is the information for biomedical treatments for ASD. When he is having a food reaction, in addition to the GI symptoms, he has weird behavior; he cries differently, doesn't sleep well, wiggles the back of his hand against his mouth and makes a "underwater" sound, he opens and closes his hand next to his face while nursing, and makes a deep growling vocalizations during play. I know all babies do "weird" things now and again, but these behaviors are gone when he is not reacting to foods and back when he's reacting. His best diet right now for controling his GI and behavior/sleep is GFDF and low salicylate - both also treatments for ASD. This kind of freaks me out in and of itself.

Developmentally he seems pretty on target, at least as far as standard milestones go. His language development is normal, he babbles with inflection and uses several words. He says no, and shakes his head in response to a question. He is smiley, warm and affectionate with us all. He is interested in other kids. He plays peek a boo and patty-cake. He like books, both to look through on own and to be read to. He will sometimes point to a familiar animal on the page if I ask him, "Where's the doggy?" or something like that. He pretends to talk on the phone, and pretends to make the toy bunny hop, goes vroom, vroom with the toy car, etc. His fine motor skills are excellent, and his gross motor skills seem good as well, though he is not yet walking. He loves to play ball and will throw it with accuracy to us and will hold out his hands for us to throw it back.

Here are my areas of concern after reading ALOT about the earliest red flags for ASD. He points at things to ask for them, and he will look at things we point to, but he usually doesn't look back at our face to see our reaction. For example, the street sweeper went by and I took him to the window. I pointed to it, down the street a ways, and he looked at it and made sounds, like "wow" but he didn't ever look back at me to "share" it. Its one of the things I have read he should do, and he doesn't usually. He also doesn't consistently respond to just his name, I have to say more to get his attention. He doesn't look or point at me when DH says, "Where's mama?" or vice versa when I ask, "Where's Daddy?". We've been trying for weeks to get him to do it and he just won't. Yet when he wants me, he will crawl around and call for me, "Ma? Ma?" so he definitely knows who I am. In fact, he is very attached to me and doesn't like me to leave for any reason. He will often call out my name just to check on my whereabouts, so its weird that he won't look at me when DH asks him that. He will look at other stuff that we ask about, like if we say, "Where are the chickens?" he looks out the back window for them. He doesn't really do stuff to "show off" for us, like if he does something funny, and we laugh, he'll laugh too, but he doesn't really do it again to get us to laugh. I can't recall him bringing a toy to me to show me, or pointing to show me something of interest, but he will point to show me something he wants to hold or play with, or eat and then look at my face and say "Ma?" and sometimes pat his chest to indicate he wants it. Its really cute.

So there you have it. Do you see red flags? Would you be worried? I almost called EI today to schedule an eval for him, but after going over their online developmental milestone checklist, he's doing everything and then some and I think they are going to as to why I am bringing him in.
post #2 of 8
I am no expert, but he sounds fine to me. He is only 14 months, right? I don't think there is a baby alive who does everything exactly as they are "supposed" to. I mean, if you are really concerned you could ask about it since you have 3 others on the spectrum and just say you want an early eval based on that. I don't think anyone would question that.
However, he sounds pretty typical to me.
post #3 of 8
earthmama,

My LO is also 14 months old and he sounds very much like you describe your DS. My family has some ASD going on too, so I've been on the lookout.

But anyways. We have had Early Intervention in to eval our DS because he has feeding and oral sensory issues.

I wanted to share since your DS sounds so much like mine... he will do the "ma, ma, ma, ma" bit while crawling to me, but doesn't really point to me or anything when you ask "where's mama" He doesn't much point at all, actually. He says "mama" "dada" and "bye-bye" but nothing else. He does babble a lot and he will chatter on in babbles.

But the EI assement put him at around a 9-12 month developmental range in most things, which is at the "we'll keep an eye on him but no intense intervention level" - they do a home visit monthly for his level. We just had another benchmarking assement this week so that's the level he's at as of right now.

I really don't think that my Galen seems very much delayed, to me. And he makes pretty good eye contact when he wants to. His real issues right now are with feeding, so anything else seems very minimal in comparison to me... I just want him to eat and grow.

But your description did very much sound like him so I wanted to share what our EI eval found.

I think if you want an eval, you should get one done. Our EI's slogan is "Don't worry, but don't wait." And I think that's a good idea.

Even if your EI is like ours and he only qualifies for the less intense services, it could ease your mind to have someone else checking in on him regularly.
post #4 of 8
My 6 year-old has Asperger's and your description sounds a fair amount like him in the video of his first birthday. He was very attached to me and cute and responsive (he initiated feeding me some of his cake ) and very verbal and pointed and had appropriate motor milestones. But he doesn't respond consistently to his name and he doesn't look back for my response to things ("experience sharing"). The social/communication delays weren't evident until he was about 4 years and the peer play started to get challenging.

On the other hand, your guy sounds like he is doing lots of really appropriate things. If there wasn't the family history of ASD, I wouldn't necessarily be concerned. I suspect most professionals will dismiss your worries at this age (unfortunately). Where are you located? Is there anyone who really understand high-end spectrum kids and has seen really young, high-functioning kids and can differentiate between ASD and temperament? I know a family locally (Northern California) who had a more severely affected older kid and got a younger one, very high-functioning, diagnosed at 18-months. You would have to see someone really good, though.

Just wanted to add that for me it would be worth it to get checked out because hopefully someone can get it out of your mind. The obsessing is hard. (((Hugs)))
post #5 of 8
Ugh. I don't know! I would be concerned about not looking to you for your reaction, yes. I would be concerned about lack of consistent response to name. Those are flags and given the family history it would be on my radar.

However, my mildly spectrum son certainly never naturally did things like shake his head to communicate and it took him forever to say no (and even longer for yes). So when I was reading until that last paragraph I was thinking no way on the worry. But....I don't know given the other stuff.

Have you looked at the videos on the first signs site?
http://www.firstsigns.org/asd_video_...sdvg_about.htm I would try some of the stuff you see there w/him and see what happens. Does he do what the NT kids do or the spectrum kids in particular situations. For example there is a video there where a child is presented with a new toy (or maybe it's a toy that they would need help w/) and the spectrum kids examine it and never or rarely look to the adults while they typically developing kids always look to the adult for either sharing it or help. I know when Andrew had his evaluation they showed him a toy and he did just what the kids on the video do in terms of looking at the toy and never really glancing at us even. I insisted any child would do that when presented with such an interesting new toy. So they brought Andrew's twin Caleb in and handed him the toy and sure enough he almost immediately looked up at us to share it. It was eye opening to me. And then they also said "where's mommy? where's daddy?" and he kept playing. Then they said "where's that monkey?" (the new toy) and he got right up and grabbed it. Anyway, a lot of what they did for assessment are shown on those videos.
post #6 of 8
Thread Starter 
Thanks everyone for sharing your perspectives. I have looked at those videos, but not recently so I went back and looked again this morning, specifically at the one with the new toy (the little wind-up one) and me and DH recreated it with a wind-up toy that we have that DS has never seen. I wound it up and gave it to him and he looked at it and looked right up at me and then back at the toy! When it was done, he picked it up and looked at me and then handed it to me to wind it again. His behavior was much more like the typical child in the video than the ASD child, the only difference I could see is that DS didn't particularly like the toy, he didn't really smile at it, or me, but he did check in with me or DH several times during our game to check our faces to make sure it was "ok" . Eventually he seemed to like the toy and he definitely used gestures and eye contact to ask us to wind it up again.

And also, DH was later carrying him around and he said, "Ma?" and pointed at the door, and DH said, "Mama's not outside. Where's mama?" and he turned and pointed at me! FINALLY!!!

And then tonight at dinner, DH came home and I said, "Where's Daddy?" and he pointed at DH and said, "Dah" We were on a roll today

I felt loads better. And then I spent most of the day watching other videos too, home movies of my oldest three. I was watching to see if there was ANY sign at all of ASD behaviors, and I didn't see a single thing in the early years. For example, my extremely vocal stimmy very Aspie "little professor" 11 year old who frequently has weird facial expressions and voice tone and poor eye contact was, from all I could see (and I watched hours of video in many different situations!) was completely neurotypical up until about age 5 or 6. The first clue I saw was a bit in a xmas video where he got a Whack-A-Mole game and he kept saying, "Whack-A-Moley, Whack-A-Moley" several times and it was hard to get his attention, he also said, "What?" alot. Yet all the other videos, when he was 18 months, 2, 3, 4, his eye contact was good, he would look up at me to share experiences, his vocal tone was normal, no stims, no flapping, answered questions easily. My 13 year old with Aspergers was asking me questions at 2 and 3 like, "Do you like this Mom?" and asking "Do you need help with that?", stuff that is SO hard for him now. The same child who FREAKS now when someone touches his stuff was incredibly patient with his little brother who over, and over was taking the ducks he was trying to set up for a game.

It made me wonder all day what happened to my kids? I feel so much like the moms I have heard who had a happy babbly toddler who regressed into silence at age 18 months or so, except in my case, I had happy, flexible, neurotypical children who regressed into obsessive, stimmy, rigid children around age 5 or 6. I know that the "official" word is that ASD is there by 3, but I will not be surprised if in the near future, research finds that ASD symptoms can appear in later childhood in, up to that point, NT children. I am convinced after hours of my own personal research that is what happened in my childrens' case. And it strengthens my resolve that, in our case, their ASD symptoms were/are a result of brain injury rather then the way they are wired. A cumulative effect of toxic exposures and poor detox that over several years has seriously impaired their function. I am making an appt with a DAN! doctor and going to see if he can help me find the answers. My gut says metal poisoning, food intolerances, and infections (yeast and bacteria) and I need a doctor who can help me figure out if I am right and see if we can reverse it and heal them. Its been kind of a bittersweet day.
post #7 of 8
I am relieved for you that your view of your little guy looks brighter, and I understand the sadness at reliving those early years with your older ones.

I, too, suspected my DS was pretty much NT until after 3 years. When I went back and looked more, though, I definitely see hints. In our case, I think it was that he did well until the social demands ramped up. It became hard to look NT around 4. I don't disagree, though, that we still know so little about this and perhaps there are later on-set versions of ASD.

I actually hope for you that it is something that a DAN can advise you on. There are absolutely kids who have reactions to some biological assault that makes them look aspie/autistic. To me that seems more easily treatable than brain wiring.
post #8 of 8
It sounds like a day of mixed emotions. If you had regressions in several kids at older ages I'd be looking at metabolics. Are they healthy and with lots of energy?
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