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Big family blow-up over the way I handle my son's SN

post #1 of 39
Thread Starter 
We bought the house next door to my sister about two year ago. Long story, but the short version is we thought it would be a good idea, we were both having babies and thought it would be so fun, but it hasn't turned out great for a variety of reasons. My sister and I have been close most of our lives, but we've grown apart since our babies are born (my 4th, her 1st). I figured it was mainly due to different interests as she's a WOHM and pretty mainstream and big on consumerism, and I am a SAHM even though that means a very simple lifestyle. Her and BIL seem to mainly socialize with his family and I have been trying to make some plans with my sister without success. She's just been kind of weird and aloof with me. When I told her about DS's ASD dx, she said, "Huh." as if I had told her some random piece of mildly interesting trivia. She has the same "Huh" without comment whenever I have shared any info I have learned about it or treatments that I want to try, so I have actually stopped talking much to her about it. She doesn't seem interested at all.

So we went over yesterday for my other 19 yr old sister's BF's b-day and DS (who is 13) started having a tantrum about us having to eat a different cake (we are doing a voluntary GFCF trial as a family). I took him home for a few minutes to talk away from everyone else, but he was past the point of talking and starting screaming and then began threatening me. He has been violent in the past and has physically attacked me requiring law enforcement. My son is big for his age so it can get scary when he tantrums. I told him that if he became violent I would call the police, at which point he kicked something and he ran out of my house and back over to my sisters.

I went over to bring him back home, and found my sister and my other sister (the 19 yr old) talking to him. I thought maybe they were trying to calm him down, but as I listened, I felt their comments were making the situation worse, specifically giving DS a lot of attention for very negative behavior. DS spent 4 weeks in full-day treatment at a hospital in December for aggressive behavior, anxiety, and depression, and we learned how to deal with him and what enforces the behavior and what diffuses it. It was also this program that picked up on the ASD and we had him tested. So anyway, I approached my sisters said, "I need you guys to let him be and let me handle this ok?" My sisters just looked at me, then looked at each other, and at him, and then just absolutely laid into me! They told me that he was just a teenager, that they weren't going to turn their back on him and that I couldn't tell them what to do. I was shocked. I said, "I am his mother and if I need you to stop doing something with my child I expect you to respect that." My sister responded with, "You may be his mother but you are not my mother, you are in my house and I won't let you tell me how to act in my own house." It was like she was throwing a baby fit! So I said, "Ok then, we'll go." and I started gathering the kids to leave at which point both my sisters and my BIL absolutely attacked me verbally with pretty much any and every grievance they have against me, all of which I was previously totally unaware. It was AWFUL. I have been sick all week and almost didn't come, in fact my aunt commented I didn't look well, and then I was struggling with DS and my other three alone without DH who was at work, and we have been going through major stress the past few months, including court stuff (CPS found evidence of abuse by their bio dad and we had to get a protective order and supervised visits). Just Friday I was at the neuro where DS1 was dx with seizures and DS2's seizures aren't responding to meds so we need to set up in-hospital EEG's, not to mention being told in December that my son is autistic and my other children are likely as well....etc..etc..my family knows all of this, but I guess they figured this would be a great time to bring up all the things they are upset with me for. I asked them to please talk to me another time, now was not good and nothing good would come of it, but I was told it was now or never. In the next 5 minutes as I got the baby's stuff in the bag, grabbed my GFCF cake and ice cream, gathered shoes, coats, etc, I got verbally pummeled.

Here is why I apparently suck. I talk about autism or other medical issues too often. I ask them to please make specific plans with DS rather than leaving stuff up in the air so he doesn't get fixated and obsess on when they are going to call for hours which is rude because I "should not tell her how or when to call her nephews as if she's a child". I also previously encouraged my sister to have her sons speech looked at in light of his cousins dx since he is almost two and not talking at all (I am an ECE teacher and she ASKED me my opinion!!!) but apparently associating his speech delay with autism was "very offensive". And the worst, how could I have had my son "arrested" which "scared the #$%! out of him" (my youngest sister was screaming this at me). First of all, this was six months ago, and he was never arrested, he was transported to a counseling center by officers as an ungovernable juvenile - no charges. He had attacked me and punched me in the face with his closed fist. He is 5'7" and 180 and I was home alone with the baby, what did they expect me to do? That was one of the hardest decisions of my life, I was in tears. At the time, they seemed completely supportive of me, but apparently now they have decided I am a rotten mom who just won't allow my kid to be a "normal teen".

I had no desire to fight with them, I was upset, and sick, and crying and I just wanted to go home, but at the "normal teen comment" I had had it, and yelled as well I could having almost no voice: "HE IS NOT A NORMAL TEEN, HE WAS IN FULL TIME TREATMENT AT A PSYCH HOSPITAL FOR FOUR WEEKS SO WE COULD GET HIM FUNCTIONING IN REGULAR LIFE. HE HAS SPECIAL NEEDS! HE DOESN'T DO WELL WITH 'NORMAL', HE NEEDS A DIFFERENT APPROACH!"

To which BIL said to sister, "Yep, see what you get for standing up for yourself? Its either her way or the highway." I seriously felt like I was in a fun house with the crazy mirrors. Who ARE these people? I don't know them and they certainly don't know me. I have never considered myself to be that type of person (my way or the highway) and to my knowledge neither has anyone else. I was just floored by everything, and clearly nothing I said was going to get through the thick wall that I guess they have been building up. It was just all so surreal.

Only my aunt offered some support, she put her hand on my back and told me that she thought I was doing a good job, and at one point she told my sisters to stop (they didn't listen). She also told DS to go home with me and cause no more trouble or he'd have to answer to her because, "That is your mother, and you give her your respect." I went home, and bawled my eyes out for about 45 minutes. I made myself stop because I was making the baby cry. My boys felt so bad and kept asking what they could do. Even DS1 apologized. He said it was his fault. I said no, it wasn't his fault. Adults are responsible for their own actions, but that yeah, it probably wasn't a good idea to go to his over there when he's upset with mom. When DS3 talked to DH later, he got the child's perspective. "I was scared. K and K were yelling at mommy and she was crying." Yep, pretty much sums it up.

At this point, I have no desire whatsoever to associate with my sisters. Parenting a kid with an ASD is hard, and anything that makes that job harder isn't welcome in my life. Anyone who can kick me that hard when I am down isn't welcome in my life either. DH and I had plans to sell in five years and return to his home state of Oregon, a place I have always loved and wanted to move to, even before we met. We are moving that plan up by about 4.5 years. It is taking all my will power to not go hammer a FSBO sign into my lawn right now.

Thanks for listening.
post #2 of 39
How utterly, totally, completely horrible.
I'm so sorry. I wish I could say something that might help. No, I wish I was in your neighborhood to give you a real life hug and some support.

Families are hard. Special needs are hard. The combo is a disaster often and this sounds like the epitome of disaster. I really feel for you. Is your husband supportive? Friends?
post #3 of 39
s
post #4 of 39
post #5 of 39
I am just horrified and astounded! How MEAN!!!



I hope the sale of your house goes smoothly and quickly.

I'm so sorry.
post #6 of 39
s mama

I'm so sorry. SO many people think that special needs are due to poor parenting, ya know? they just don't understand that you are literally doing everything. you. possibly. can. How horrible that they won't even LISTEN to what you KNOW he needs though! On top of that, they acted SOOO terribly immature, your DS's ASD IS your life, it affects everything, ya know? OF COURSE you are going to talk about it! they could at least ACT interested!
post #7 of 39
I am SO PISSED for you. You poor thing!

Like my husband says, "They don't have a clue."

I would keep my distance for a long time, if it were me.
post #8 of 39
I agree. I would stay away from them. They aren't supportive.
post #9 of 39
Quote:
Originally Posted by earthmama4 View Post
I also previously encouraged my sister to have her sons speech looked at in light of his cousins dx since he is almost two and not talking at all (I am an ECE teacher and she ASKED me my opinion!!!) but apparently associating his speech delay with autism was "very offensive".
This part stuck out--could it be that it hits "so close to home" and because most people that are not actually living it only see the "bad" parts of parenting an autistic child, the idea that their son may have such a condition scares the bejesus out of them? Before my son's diagnosis, I would have been the same way. I even said that there was no way on God's Green Earth I could handle something like that. As long as they can rationalize your children's issues as "bad parenting", then they don't have to consider that there may be something the matter with their child. Because, y'know they are "doin' it rite".

In fact, it was my mother in law that recommended we get our son's hearing checked because he did not respond to us and was not talking.

As for the rest of it, I'm mad for you.
post #10 of 39
s

I'm so sorry. I prefer to live far away from my sister, too.
post #11 of 39
Wow.

I've been struggling on whether to open up more with my family re: DS's needs and evaluations, dx-ing, etc. This seals the deal, I'm not gonna. Too many people think they know everything, I don't trust my family to understand and remain supportive. Your BIL also needs to BUTT OUT, I woulda gone crazy on him.
post #12 of 39
OMG. I'm so sorry For me, that's a toxic environment that I would be staying far away from. They seem to feel they can meddle in your business whenever they want and constantly pass judgment on you.

Just curious...have you considered counseling for the various issues? You seem like you have a lot on your plate right now anyway, and I think maybe just talking to a trusted person would help.
post #13 of 39
oh mama I cant imagine the work that you put into raising a child with special needs. Kudos for you for being so strong to be able to deal with that. you are doing the best you can and thats all one can do. I dont have a special needs child but needed to comment on your family.

Your post reminded me A LOT of my family. plain and simple... its abuse. Emotional, verbal... you name it. Though with me it has started to even get physical... but thats a long story. You have to get out. move, far away from that negatively and abuse. I know I need and will do the same. Its a toxic relationship that will go on and on in a vicious cycle. Im so sorry you are going through this. I understand. Really, I do. If you ever need to vent or anything feel free to PM me. My heart goes out to you.
post #14 of 39
Quote:
Originally Posted by earthmama4 View Post
When I told her about DS's ASD dx, she said, "Huh." as if I had told her some random piece of mildly interesting trivia. She has the same "Huh" without comment whenever I have shared any info I have learned about it or treatments that I want to try, so I have actually stopped talking much to her about it. She doesn't seem interested at all.
Quote:
Originally Posted by earthmama4 View Post
At the time, they seemed completely supportive of me, but apparently now they have decided I am a rotten mom who just won't allow my kid to be a "normal teen".
(admittedly, mine were not completely supportive, and only "suggested" that I allow my son to be a "normal child")

Quote:
Originally Posted by earthmama4 View Post
To which BIL said to sister, "Yep, see what you get for standing up for yourself? Its either her way or the highway." I seriously felt like I was in a fun house with the crazy mirrors. Who ARE these people? I don't know them and they certainly don't know me. I have never considered myself to be that type of person (my way or the highway) and to my knowledge neither has anyone else. I was just floored by everything, and clearly nothing I said was going to get through the thick wall that I guess they have been building up. It was just all so surreal.
All of this is my closest family/immediate family. Exactly. The only difference is that instead of pummeling the way they did to you in one felt swoop, they did it just slightly more spread out. And my bro & SIL cut me out unless I was willing to participate on THEIR terms (apparently ds had no issues at all, so all the missed functions or late show-ups were a matter of my hating my SIL... not dealing with a child with issues. I should note that I never hated my SIL until now). Each part of my family took a turn at lambasting me for sure, but not all of them at the same time like you endured.

Either way, it WAS surreal. My way or the highway? Are they KIDDING ME? In my family, I was the effin DOORMAT! Dh suspects that part of their issue with me was 1) that something "different" about our situation made us worthy of additional/different "attention"--which was a problem because I was not something worthy of anything other than being used; and 2) that having ds' issues made me less available to be part of their "audience" or "entourage" or whatever.


Quote:
Originally Posted by earthmama4 View Post
At this point, I have no desire whatsoever to associate with my sisters. Parenting a kid with an ASD is hard, and anything that makes that job harder isn't welcome in my life. Anyone who can kick me that hard when I am down isn't welcome in my life either. DH and I had plans to sell in five years and return to his home state of Oregon, a place I have always loved and wanted to move to, even before we met. We are moving that plan up by about 4.5 years. It is taking all my will power to not go hammer a FSBO sign into my lawn right now.
We didn't live next door, so cutting our relatives out of our life was a lot easier. But we did cut them out--including both of my parents. I have to be honest: I don't miss them at all, and it's a huge relief. It's been a few years and I honestly have never missed any of them. I look back and realize now that they were never positive in any way or contributed anything to my life but pain and stress. But it's what I grew up with and what I knew so I didn't know life without that or life any other way. Now I do, and it's a whole new world. I wish that for you.

Quote:
Originally Posted by organicpapayamama View Post
Your post reminded me A LOT of my family. plain and simple... its abuse. Emotional, verbal... you name it. Though with me it has started to even get physical... but thats a long story. You have to get out. move, far away from that negatively and abuse. I know I need and will do the same. Its a toxic relationship that will go on and on in a vicious cycle. Im so sorry you are going through this. I understand. Really, I do. If you ever need to vent or anything feel free to PM me. My heart goes out to you.
I just want to reiterate these points because I have to say that I agree. As a culture, I think we identify abuse that is physical a lot easier than emotional or verbal abuse.

Hugs to you.
post #15 of 39
Quote:
Originally Posted by earthmama4 View Post
I had no desire to fight with them, I was upset, and sick, and crying and I just wanted to go home, but at the "normal teen comment" I had had it, and yelled as well I could having almost no voice: "HE IS NOT A NORMAL TEEN, HE WAS IN FULL TIME TREATMENT AT A PSYCH HOSPITAL FOR FOUR WEEKS SO WE COULD GET HIM FUNCTIONING IN REGULAR LIFE. HE HAS SPECIAL NEEDS! HE DOESN'T DO WELL WITH 'NORMAL', HE NEEDS A DIFFERENT APPROACH!"


Just want to say, you're right, SN kids do need a different approach. Many other people aren't going to understand that. They think, this worked for me, why are you doing these strange things? You're not alone in encountering these attitudes and it is really discouraging.

So I want to give you some validation, where your family won't. I recognize that you're learning everything you can and making the best decisions that you can and your child will be blessed for it.
post #16 of 39

I have never been able to put this into words so well

Quote:
Originally Posted by K-Mom3 View Post
I recognize that you're learning everything you can and making the best decisions that you can and your child will be blessed for it.
.
.
.
.
This is how it is for parents but special needs parents even more so.

I am disturbed at how your family behaved.

I am sorry.

My oldest is ASD and he turned 13 last Thanksgiving. He weighs 170 and is taller than me at 5'9". I am lucky he is not rough. Mine actually works out at the YMCA with his dad 3x a week as a theraputic bonding masculine thing.

You need a secret stash of excellent chocolate. I keep mine in a tin in my nightstand. Since it is not clear no one can see what's in it!

Sincerely,
Debra, homeschooling mom of 4 ages 13, 12, 10, and 6 1/2

(We tried to sell our house in 08 but I live in FL where the housing market has died! I wanted to move to Seattle and not tell anyone. When the once a year visit happened I wanted to have vanished.)
post #17 of 39
Wow. I am so, so sorry you had to go thru that! Big, big hugs to you.
post #18 of 39
I think that cutting them off and never speaking to them again is a viable and good solution. Doing what they did in front of your children in inexcusable. We cut off a member of my husband's family for just such behavior and have never regretted doing so.
post #19 of 39
(((HUGS))) to you. How simply awful!! And to have to live next door...oh, so sorry!

Some things that previous posters said that stuck out to me are that special needs are tough and families can be tough. The 2 together can be a recipe for disaster. You know what is best for your son and if they can't respect that....then you need some space. Anyone who doesn't have a special needs kid can't understand...not even special ed teachers or doctors. You can't understand it if you don't live it. every. day.

I have a friend who also has a child with special needs and she once said to me "I'm tired of being told all the things I do wrong. If I had a typcial child I could be a great parent too." That hit home for me - so many people like to blame the parenting b/c if it's not the parenting, then it could happen to them, too!

Which brings me to the point of your sister's son - it's definitely possible she is scared sh**less that he son is on the spectrum as well so if she can blame your son's problems on YOU, then her son is "safe".

Hang in there!! And good luck selling your house!
post #20 of 39
So so sorry, mama. I can't believe that people could be so heartless and cruel, and that they could do that in front of your kids... big big big .

PP are right, having a SN kid is tough work, and people just don't understand. I think it would be great for your family to cut that out of your lives.

More big .
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