Sophia had her first and second in-home visits for the early start program through our county's board of education last week. The first appt was with a hearing specialist and OT because the nurse wasnt available. It was a basic developmental check and some info about the program. The 2nd visit was with the hearing specialist and the RN (which is normal). The hearing sp. had to leave early and the RN proceeded with her developmental checklist for 2 more hours.
The nurse gave Sophia maybe 3 or 4 seconds to complete the tasks she had to check off before telling me that we are going to have to bring in another "specialist". Sophia has 2 different sized eyeballs, every doc has seen it, no one has a problem with it. The RN saw that her pupils (and I even told her they are proportionate to her eyeball size) were different sizes and said we need to go see an neurologist and ophthalmologist because of brain stem issues.
Now, Sophia has NINE specialists and they ALL say that the eyes and the brain are fine. This RN was also questioning Sophias meds and amounts, milk amounts and feed rate, specialists shes seeing and kept insisting that she accompany me to Sophias appts so that she can help me "understand" what is going on with Sophia.
(this was AFTER I recited Sophias medical history, even using all the big words!
)
Is this what the in-home visits are supposed to be like? They also insist on coming TWICE a month for 60 min each (and called today because she wants to bring over the Special Ed person), then Im supposed to go to them twice a month for 60 min.
Do I have to do this in order to transition her to school when shes older? We dont even know if there is anything developmentally wrong with her. Shes age appropriate with her milestones. I dont mind the commitment at all, I just dont want to work with this RN and shes the only one in the program. I also LOVE the hearing specialist, maybe I can choose what parts of the pgm I want?
This is not the only pgm running, so I can leave, just want to know whats standard!
The nurse gave Sophia maybe 3 or 4 seconds to complete the tasks she had to check off before telling me that we are going to have to bring in another "specialist". Sophia has 2 different sized eyeballs, every doc has seen it, no one has a problem with it. The RN saw that her pupils (and I even told her they are proportionate to her eyeball size) were different sizes and said we need to go see an neurologist and ophthalmologist because of brain stem issues.
Now, Sophia has NINE specialists and they ALL say that the eyes and the brain are fine. This RN was also questioning Sophias meds and amounts, milk amounts and feed rate, specialists shes seeing and kept insisting that she accompany me to Sophias appts so that she can help me "understand" what is going on with Sophia.
(this was AFTER I recited Sophias medical history, even using all the big words!)Is this what the in-home visits are supposed to be like? They also insist on coming TWICE a month for 60 min each (and called today because she wants to bring over the Special Ed person), then Im supposed to go to them twice a month for 60 min.
Do I have to do this in order to transition her to school when shes older? We dont even know if there is anything developmentally wrong with her. Shes age appropriate with her milestones. I dont mind the commitment at all, I just dont want to work with this RN and shes the only one in the program. I also LOVE the hearing specialist, maybe I can choose what parts of the pgm I want?
This is not the only pgm running, so I can leave, just want to know whats standard!
