Hi everyone,
I posted a week ago about my first u/s where they thought there might be something wrong with the baby's cerebellum.
I had my follow-up today where they did a really detailed scan of everything, and there were several problems that showed up.
Some of the connections between the two halves of the cerebellum are not right or missing (they mentioned something called Dandy Walker?).
Something isn't right in the baby's heart--some calcifications (not sure what that really indicates to them).
Something may be wrong with at least one of his hands. I could see that it didn't look quite right, but I'm not exactly sure of the specifics.
They also thought something might not look right with his feet--something about the space between his big toe and the other toes, although I did see his feet myself and thought they looked normal. My DD has long, wide-spread toes. We've always commented on it, and she's normal, so I'm not putting much stock in that specifically.
So now my option is to do an amnio, which we are leaning away from at this moment. As far as I know, there isn't anything that it would tell them that would enable them to fix anything, and I can't think of anything that we would do differently depending on what we found out. So I have to call them back and tell them that.
We go back in a week or two for an echocardiogram for the baby and will go back sometime for another brain scan and to talk with some pediatric neurologist.
I will probably not be able to deliver at the midwifery center where I am currently a patient and will have to deliver at the hospital that is next to the children's hospital. I delivered my twins there and was able to have a nice, drug-free delivery, despite the clinical atmosphere, so that should still be the case.
I'm just feeling very, very overwhelmed with all the information that I was given and just trying to trust in God and remember that the baby is in his hands. This just isn't anything we were expecting to hear today.
I posted a week ago about my first u/s where they thought there might be something wrong with the baby's cerebellum.
I had my follow-up today where they did a really detailed scan of everything, and there were several problems that showed up.
Some of the connections between the two halves of the cerebellum are not right or missing (they mentioned something called Dandy Walker?).
Something isn't right in the baby's heart--some calcifications (not sure what that really indicates to them).
Something may be wrong with at least one of his hands. I could see that it didn't look quite right, but I'm not exactly sure of the specifics.
They also thought something might not look right with his feet--something about the space between his big toe and the other toes, although I did see his feet myself and thought they looked normal. My DD has long, wide-spread toes. We've always commented on it, and she's normal, so I'm not putting much stock in that specifically.
So now my option is to do an amnio, which we are leaning away from at this moment. As far as I know, there isn't anything that it would tell them that would enable them to fix anything, and I can't think of anything that we would do differently depending on what we found out. So I have to call them back and tell them that.
We go back in a week or two for an echocardiogram for the baby and will go back sometime for another brain scan and to talk with some pediatric neurologist.
I will probably not be able to deliver at the midwifery center where I am currently a patient and will have to deliver at the hospital that is next to the children's hospital. I delivered my twins there and was able to have a nice, drug-free delivery, despite the clinical atmosphere, so that should still be the case.
I'm just feeling very, very overwhelmed with all the information that I was given and just trying to trust in God and remember that the baby is in his hands. This just isn't anything we were expecting to hear today.
I'm sorry you are facing all of this. Prayers for you and your family.
There are so many woman who can support you here.
