Hi -
I have a 15 month old girl w/ Defensive Sensory Processing. She was diagnosed Nov 2009. It is moderate. She was also diagnosed w/ having a sleeping disorder. Initially made great progress w/OT. Dec we went on a 7 day road trip from TX to CO. BIG MISTAKE!!! Major regression! I had feared this would happen. It is hard to tell you're 18 yo and 12 yo "sorry guys no annual snow trip because baby sister has SPD". Needless to say NEVER AGAIN!
At first I believed the regression was just from the trip, But late Dec my little was started rubbing her feet together at night. By mid Jan. it became a non-stop activity at night. She acted as though the were itching or burning. Late Jan. it progressed to her naps and when she was still for a period of time. I put a call into her Neurologist. Awaited a call back. Feb 1st she started crying inconsolable and rubbing her feet non-stop while awake. As I still awaited the call back from "a" nurse. I headed to the pediatrician out of desperation. Dr. saw no obvious reasons for the inconsolable crying and rubbing of the feet. She prescribe a steroid for a lingering chest infection and also hoped it would help any inflammation that may causing the rubbing of the feet. That night was the best sleep her achieved in my little ones life. Finally received my call back 2/2. And the Neurologist wanted to see her the next morning. Another great night w/ minimal feet rubbing. Dr. evaluated her and ordered CBC,ANA, MRI,EEG and Sleep Study. As may have guessed he thinks this a kind of Neuropathy. He believes the steroid has suppressed symptoms. (it has been 36 hours after discontinue use of steroid, foot rubbing as returned....YIKES!)
We both believe this from birth or shortly after as we look back at progression of symptoms. My question now is it possible that this neuropathy has exasperate the symptoms of SPD. She was diagnosed very young by most standards w/o having a secondary disorder/ syndrome. I am a degreed Early Childhood Educator w/ training and experience w/SPD. OT contributed my knowledge helped w/ such an early diagnosis ( personally felt I waited to long to get help as I thought I was looking to much into. Knowledge isn't also power). When she was newborn I found my self wondering if this could be SPD. Now I wonder was it the Neuropathy. Or a combination.
Somehow this post has become longer than I intended. Venting I guess. I would appreciate any thoughts or advice.
I sit here waiting for test and results.
I have a 15 month old girl w/ Defensive Sensory Processing. She was diagnosed Nov 2009. It is moderate. She was also diagnosed w/ having a sleeping disorder. Initially made great progress w/OT. Dec we went on a 7 day road trip from TX to CO. BIG MISTAKE!!! Major regression! I had feared this would happen. It is hard to tell you're 18 yo and 12 yo "sorry guys no annual snow trip because baby sister has SPD". Needless to say NEVER AGAIN!
At first I believed the regression was just from the trip, But late Dec my little was started rubbing her feet together at night. By mid Jan. it became a non-stop activity at night. She acted as though the were itching or burning. Late Jan. it progressed to her naps and when she was still for a period of time. I put a call into her Neurologist. Awaited a call back. Feb 1st she started crying inconsolable and rubbing her feet non-stop while awake. As I still awaited the call back from "a" nurse. I headed to the pediatrician out of desperation. Dr. saw no obvious reasons for the inconsolable crying and rubbing of the feet. She prescribe a steroid for a lingering chest infection and also hoped it would help any inflammation that may causing the rubbing of the feet. That night was the best sleep her achieved in my little ones life. Finally received my call back 2/2. And the Neurologist wanted to see her the next morning. Another great night w/ minimal feet rubbing. Dr. evaluated her and ordered CBC,ANA, MRI,EEG and Sleep Study. As may have guessed he thinks this a kind of Neuropathy. He believes the steroid has suppressed symptoms. (it has been 36 hours after discontinue use of steroid, foot rubbing as returned....YIKES!)
We both believe this from birth or shortly after as we look back at progression of symptoms. My question now is it possible that this neuropathy has exasperate the symptoms of SPD. She was diagnosed very young by most standards w/o having a secondary disorder/ syndrome. I am a degreed Early Childhood Educator w/ training and experience w/SPD. OT contributed my knowledge helped w/ such an early diagnosis ( personally felt I waited to long to get help as I thought I was looking to much into. Knowledge isn't also power). When she was newborn I found my self wondering if this could be SPD. Now I wonder was it the Neuropathy. Or a combination.
Somehow this post has become longer than I intended. Venting I guess. I would appreciate any thoughts or advice.
I sit here waiting for test and results.
I hate her being on such scary medication. If it wasn't for the pain, I would skip it. But I have had nerve pain and I felt like dying was the only way out. If is what she is feeling, I have to give the meds.
