Laila, LOL, exactly!! If the household actually had a toddler, they were either screaming in the background *or* sleeping/ playing quietly and then what mom-of-a-toddler is going to waste their precious alone/ quiet time taking some dumb survey on the phone??
To answer your question, I sincerely believe the info is totally, completely 100 percent anonymous. As we told callers over and over, the data is studied in *summary form." The fact that one particular household is not vaxing holds *no* statistical or scientific interest whatsoever. Its the summary info, the percentages, that are published and studied. Ex: *ten percent* of households in XYZ state have skipped at least one vax, etc.
The CDC is also *legally bound* to keep the info totally private and totally anonymous and all participants were protected under federal privacy laws. We had the actual number / text of the laws to read to callers who were worried about that aspect.
OK, so why then does the CDC want your name, addy, and doctor's addy as part of the survey? Because, part of the survey collected vax info- by getting the actual vax records they can see if the parents' info matched the doc's info. (double check for accuracy.) The only way to get the info from the doc was to get permission from the parents- and we needed their name and addy to make a legal document stating we had permission. (It was verbal permission, of course, and then the telephone interviewer who took the survey would sign the document.)
Now, according to what I told callers (and I do believe this is true, because of the legal safeguards put in place to protect participants)- the info was collected from the doctor and then *separated from any name or identifying charactersistcs and used in summary form only!*
So, the name was used to collect the records only, then once the data was gathered, the participant goes back to being "Anonymous 22 month old from XYZ state," lumped in with all the other toddlers from that state.