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Chronic Nasal Problems :(

post #1 of 19
Thread Starter 
Alright, I figured this was worth a shot; maybe there's someone out there that kinda knows what I'm going through! =/

Starting in my junior year of high school I started having sinus issues. I just got treated for sinus infections and was given the normal prescription drugs to cure it, etc. I only got the infections every once in a while, but they sucked when I did get them. I finished high school, went through freshman year of college, still having constant issues with sinus pains. I also started getting post nasal drainage all the time too. Freshman year came and went, as well did sophomore year. Throughout that whole time, I tried EVERY type of medication out there. Nasal sprays, saline solutions, allergy medicines- everything. I got tested for allergies- came up negative. I had CAT scans, MRI's, etc. to see if maybe I had cysts or something- nope, nothing. The postnasal drainage continued to get worse and worse. I was constantly blowing my nose; I always had headaches. I just couldn't win. I went to various ENT's, nutritionists, everywhere! And no one could figure out what was wrong with me! It was unbelievably frustrating. So finally, one of the ENT's suggested I just have surgery because that was the only option he could think of. I hate surgeries, but I was willing to do anything to fix my problem.

After talking it over with my family, figuring out dates I could do it and such, we finally decided to give it the okay. I was to have my tonsils and adnoids removed and had my sinuses worked on. (I can't exactly remember what it was called that they worked on; it was inside behind my nose, kind of looks like fingers, ha. Anyhow I was getting it reduced in size.) I was told there was only a ~10% chance the surgery wouldn't work. I was nothing but optimistic, as this was my last resort.

Needless to say, the three weeks it took me to recover were the worst, most painful three weeks of my life. I wouldn't wish that agony upon anyone. My nose was bleeding from the sinus work, but the blood would only go to my throat, which I couldn't do anything about because of the tonsillectomy. Ugh it was horrid. I mean, they said the surgery went well and everything, so I just kept telling myself, "This will be worth it in the end. It will be worth all this pain".

Ha! What a joke that was. After my recovery, I think there was maybe, maybe a slight .05% improvement in my stuffy noses. But that's it. Nothing else changed! I figured I could just give it a few months, like the doctor said to. Nada. I am now towards the end of my junior year of college and my symptoms are still here. I am constantly blowing my nose, I have drainage all the time. Everything is still here. I just don't know what else to do. It's annoying to be asked all the time if I have allergies or if I have a cold. It's annoying to have to buy new packages of Kleenex every week. It's annoying to loudly be blowing my nose in the middle of classes or meals. I'm currently studying abroad in Spain and my host Dad told me how rude it was that I was blowing my nose at meals and things. I tried telling him I couldn't help it; I told him I would have to eat by myself if I wasn't allowed to blow my nose by the other two girls I usually eat with. I completely broke down, balling, sobbing; I just lost it. I had accepted that I have this problem, but of course I'm always still hoping and wondering what else I could possibly to do to help my problem.

Anyone out there who knows what I'm going through at all? Or anyone who maybe has a solution? Really, I'm open to anything.
post #2 of 19
have you tried a neti pot at all? I know you mentioned you had allergy testing I have as well but If I drink a glass of milk or eat any ice cream my nose is instantly stuffy and it takes it a while to recooperate.
My dh used to get 10plus sinus infections a year until he started using the neti pot. So far this year he has only had 1 and even he says the reason he got it was because he wasn't using his pot enough...
post #3 of 19
Thread Starter 
I have tried it. It worked for about a month and then I had a bad experience with it and had to stop using it. I've read that dairy products can cause mucous problems, but I'm 99% dairy free anyhow because it isn't good on my digestive system so I don't think that would be causing it... Unless my body just couldn't take the 19 years that I did have dairy? I have no idea. =/ Thank you though
post #4 of 19
Yes, that...food allergies and sensitivities.

Well, my nose pretty much stuffs right up after I eat a food I'm sensitive to. I have a whole host of other symptoms I never realized were part of the reaction until I got it cleared up. My sinuses start stuffing up about 10 hours after I eat the offending food. I could set my watch by it. I never figured it out until I had food allergy testing done. I WOULD HAVE NEVER GUESSED the foods I was sensitive to, because of the 10 hour delay, and the fact that there was so many of them. The foods I am sensitive to are NONE of the top 8 allergens, wouldn't you know. And it was stuff I was eating every day...so the problem never went away (until I found the food triggers and stopped eating them.)

Anyway, I got the test from Genova Diagnostics. The test was for delayed IgG mediated food sensitivities, not true IgE allergies. So I took the offending foods out of my diet, starting with the highest reactive ones shown on the test. I noticed an immediate difference....well after a few days anyway. So I kept removing offending foods with priority from highest to lowest. Now I am SO much better. I know the foods I have trouble with. I know when I ever eat a food that I have trouble with...all I have to do is count back 10 hours to what was different or new. Usually I stick to foods that I know are safe anyway.

(Oh, and I also had another test by ImmunoLabs, and it was WAY off, so I wouldn't get another one by that lab.)

Where I am here, typical allergists don't test for non-IgE mediated food sensitivities. They only test for IgE allergies. Like that's the only problem you could ever have. To get a real test, you have to go to an alternative practitioner...or something like an integrative medicine physician (as I did). Not sure where you could find that over there.

(And I know how you feel ...everyone made fun of me when I was younger because I was always blowing my nose and had postnasal drip too. I believe I've had these food sensitivities for a LONG, LONG time.)
post #5 of 19
Thread Starter 
Wow! Okay, so what kinds of foods are you sensitive to? I am already on a gluten free diet and I'm also 99% dairy free as well. And when I got tested for allergies, I think they only did the pollen, dust, etc. test-- I haven't even done a food one! It's weird because you would think food would only affect your digestive system, but obviously it can affect anything and everything! And what do you mean by "The test was for delayed IgG mediated food sensitivities"? Where did you find a location that did the testings for you?

This is such a good feeling to know someone knows how I feel! When I get back to the states I am DEFINITELY looking into this! But I'm still curious about the minor details as to how you figured out which test to do and everything? Thank you so much!
post #6 of 19
Quote:
Originally Posted by gfreelishy View Post
Wow! Okay, so what kinds of foods are you sensitive to? I am already on a gluten free diet and I'm also 99% dairy free as well. And when I got tested for allergies, I think they only did the pollen, dust, etc. test-- I haven't even done a food one!
It sounds like you had a standard IgE-mediated allergy test. The IgG test tests for delayed reactions to food, otherwise known as food sensitivities, or non-IgE mediated reactions.


Okay, how much time have you got?

Let's see, the major offenders are: rice, almonds, carrots, celery, cabbage, broccoli, apples, grapes, plums, all citrus fruits and citric acid, lanolin, and all hot spices. I've also found I'm quite sensitive to pine cellulose.

These mean: I can't take supplements with rice flour in them, can't drink rice milk, can't use anything with pectin in it (it's made from apples), can't do bioflavonoids with vitamin C supplements, can't take certain kinds of vitamin D or use lanolin-based vitamin D fortified milk. I also can't take wine for communion and can't eat grapes or raisins. No prunes either. Most fruit juices are out, as are just about all drinks you might buy at the store (all have citric acid in them). Have to check for citric acid in lots of things...like some canned tomatoes for instance. Lots of supplements have pine cellulose in them. I can't find a single multivitamin to take, I have to a-la-carte each vitamin or mineral that I want to take (and ask the manufacturer where everything comes from).

Some lesser offenders, but still fairly bad, are: avocadoes, peaches
Mild offenders are: cane sugar, oat, pecan
Crab is apparently out too, but I can't stand crab so I don't care.

I may have forgotten to list one or two foods here, but as I read labels, the problem foods just automatically pop out at me.

Most of those foods were tested and came up reactive. They can't test for truly everything you eat, though. So, a few I figured out on my own, after I was largely cleared of the really major offenders. But how in the world would I have EVER figured all these out without starting with the testing?

It may seem bad to have to avoid so many things, but it's really great to be able to breathe again, and not have all those other weird things going on. I have to read all kinds of labels, and I have eventually found foods I can eat. I didn't cut out all these foods all at once...just a few at a time. It took me 6 months to a year to be mostly free of these foods. I kept finding hidden sources here and there.


Quote:
Originally Posted by gfreelishy View Post
This is such a good feeling to know someone knows how I feel! When I get back to the states I am DEFINITELY looking into this! But I'm still curious about the minor details as to how you figured out which test to do and everything? Thank you so much!
I was going to an integrative medicine physician, and I suspected my issues were food related. So I asked them to test. This was a typical blood test they ran to test delayed food sensitivites. I guess I got lucky with a good lab (Genova Diagnostics) the first test. When I wanted more stuff tested a short time later, they ran it through Immuno Labs. Couldn't trust those results.

If you can't find a provider to get a good test for you, I think you can get these labs ordered directly through directlabs.com, through their "Specialty Labs" section.

Good luck if you expect to find a typical allergist who even "believes in" delayed food reactions. But that's okay, because I don't much "believe in" allergists either.

In case you're curious, some of the other weird reactions include: skin rashes, waking up at night with heart racing and can't maintain temperature (along with stuffed up sinuses), arthritis-like pains, and constipation. I had no idea these were also related to the food issues, until they went away

I'm sorry you're going through this. I hope you find relief soon!

ETA: Another route you could go is to try what's called a "total elimination diet" (TED), and reducing your diet to a very small set of presumably safe foods. Then you VERY slowly add in one food at a time and take note of any reactions. However if you react to one or more of the supposedly safe foods, what do you do then? But if testing is not an option for whatever reason, I suppose the TED is worth a try. You have to keep a good food diary though. It's a lot of work and could take a long time.
post #7 of 19
Prior to our learning a better way, my DH had sinus surgery. Like you it was awful and did not solve his problems. His chiro told him that most all siums infections are fungal in nature. He has found releif with a nasal spray that has grape seed extract (it is made by NutriBiotic).
post #8 of 19
I can't believe you've been suffering this long! I've had sinus / allergy issues for about a year and I want to just chop my head off some days.

I'm going in for IgG testing next week but have eliminated many foods by removing most of the top allergens and then eating a month later (it's called a challenge). I also figured out allergenic foods by paying attention. I'm cow dairy, corn, refined sugar and gluten - free. I rotate grains, some citrus, and tomatoes. I seem to be able to tolerate supplements with any ingredient for now.

My symptoms include a swollen throat and ears get imflammed and fill with fluid. If I directly eat (like cheat and have something with lots of butter) one of my top offenders, I also break out with acne and the next day or so have digestive issues.

I working with a Naturopath to identify my allergens and try to heal my gut.
post #9 of 19
Thread Starter 
KimPM-- Goodness! That list you wrote is crazy long and I about died of shock reading it! Yes it definitely seems like I wouldn't be able to eat anything good if it happened to be any of those. But, if it means improvements, I will try anything, as I've said. I mean, going g-free has already caused me to read each and every label of product I buy. In a sense I guess it's a good thing I'm gluten free so I kind of know the routine to trying to eliminate certain foods, etc.

Quote:
Originally Posted by KimPM View Post
Good luck if you expect to find a typical allergist who even "believes in" delayed food reactions. But that's okay, because I don't much "believe in" allergists either.

In case you're curious, some of the other weird reactions include: skin rashes, waking up at night with heart racing and can't maintain temperature (along with stuffed up sinuses), arthritis-like pains, and constipation. I had no idea these were also related to the food issues, until they went away
I am totally with you on "not believing in" allergists. It's their way or the highway it seems like! And okay, those other symptoms you had, I have the heart racing and arthritis pains (and I'm only 20! come on now!) too! Sometimes I had the temperature maintaining issues as well, but that was only because my thyroid levels were weird. I am going to talk to my mom about all this and start researching places for the testings and such because as soon as I get back, I am gonna start getting this figured out! It's just hard to do it here as I don't make my food (my host Mom does) and can't really read Spanish labels .

mbbinsc-- I'm so glad your DH has found relief! Screw surgeries, huh?

californiajenn-- I know the feeling of just wanting to chop your head off in frustration! Wouldn't it be so much easier if that was an option? Haha. So, only cow dairy bothers you? Do you have goat milk type things or what have you been using to replace that? Or do you just use like, soy and rice products instead? And ughh I know how the digestive issues go. Not a fan. Before I was gluten free, that was me after EVERY single meal! So annoying!

And this is for everyone: So, ok is the IgE allergy test for non food allergens? And the IgG is for common foods? Sorry I'm a little confused/ not familiar with these terms!
post #10 of 19
Quote:
Originally Posted by gfreelishy View Post
KimPM-- Goodness! That list you wrote is crazy long and I about died of shock reading it! Yes it definitely seems like I wouldn't be able to eat anything good if it happened to be any of those. But, if it means improvements, I will try anything, as I've said. I mean, going g-free has already caused me to read each and every label of product I buy. In a sense I guess it's a good thing I'm gluten free so I kind of know the routine to trying to eliminate certain foods, etc.

And this is for everyone: So, ok is the IgE allergy test for non food allergens? And the IgG is for common foods? Sorry I'm a little confused/ not familiar with these terms!
I think I'm unusual in that I have so many foods I'm sensitive to. My point was that it could be *any* food, not just wheat, dairy, soy etc. I was really surprised that rice is a problem. I mean, isn't rice supposed to be a hypoallergenic food? I guess not.

In any case, I try to consider what I *can* eat, and work with that. There's lots there for me to choose from, and it helps I'm not also trying to go vegan or gluten free too.

Anyway, you can get an IgE allergy test for foods as well as non-food things. But the IgG test is different in that it measures a different immune response factor. The IgE response is considered a "true allergy", while the IgG is typically considered a delayed reaction.

https://directlabs.com/OrderTests/ta...S/Default.aspx
then click on the letter "F" and scroll down till you find the food allergy tests.
This is one just like the one I had done...they do others.
Food Antibodies IgG/IgE with Inhalants-Genova
Tests for 88 Foods-IgG, 19 Foods-IgE, and 14 Inhalants-IgE

If I had it to do over again, I'd also do the other Genova food allergy tests that are "add-on" tests to this one, so I could have tested even MORE foods. If you want to do an add-on test, you have to at least do one of their basic tests like this 88-foods test.

Check the allergies forum here on MDC for information on finding other good labs to get IgG testing done. I think there are a few that are good. It is critical to find a good one, because some tests are so bad they are worthless.

Oh, the other thing I forgot to mention is that I assume you are using fragrance free products and detergents and cleaners...right? Not using perfumes either? Also, the things you find are problems in your food test...don't use them on your skin either. Lots of the "natural" body products have food ingredients in them...citrus, apple, oat, etc.
post #11 of 19
Thread Starter 
No, I hadn't thought about the products going on my skin! I only thought about what I was eating. But once I know what products I'm sensitive to, I will definitely start paying more attention to that. I talked to my mom about everything too and she went to a natural remedies seminar type thing and thinks some of those people might know about the tests and such too. I still have four more months of being here in Spain so I think once it comes closer to the time when I'll be doing the tests, I'll look more into the allergy section on here.

Also, oh yes that's nice you're not gluten free/ vegan as well. And yea, the is surprising you have that many things you're sensitive too! Especially since they're so common! That would be hard for me to find bread products and noodles and such if I ended up with a rice sensitivity. But I mean, it is something I eat almost everyday, so who knows if that could be it! And in your case, yours was a delayed reaction to everything. Whereas mine I have all the time and the only time I do notice a significant difference is when I have dairy products. So would that mean it'd be most important for me to do the IgE test since that's the true allergens? Hm...
post #12 of 19
Quote:
Originally Posted by gfreelishy View Post
And in your case, yours was a delayed reaction to everything. Whereas mine I have all the time and the only time I do notice a significant difference is when I have dairy products. So would that mean it'd be most important for me to do the IgE test since that's the true allergens? Hm...
Actually I only realized it was a delayed reaction after-the-fact. I did have the problem all the time...because I was eating at least one of those foods pretty much at every meal. So I was almost constantly seeing a delayed reaction from a prior meal. So I never really got to see how the delay played out, until I got cleared (by not eating the problem foods), and then tried reintroducing one of them (and got a fresh reaction). It was only then that I saw exactly how the delayed reaction played out. It starts 10 hours after eating the problem food, but continues for a few hours with the sinuses and heart racing. The sinus stuff trails off over the next 2 days. Then the next day comes the arthritis pains, followed by skin rashes, and maybe another day later the constipation. With that long of a reaction time, you can see how multiple reactions could easily overlap and look continuous.

So....I'm thinking you could also have something (or a few things) you are eating all the time and are sensitive to...but since you are always eating it...you never get cleared...so you are seeing the problem all the time. So it doesn't have to be IgE.

Oh, and in order to do some of these tests and get an accurate result, you might have to eat some of the foods they are testing in the days/weeks before the test. You can ask your provider what the test requires.
post #13 of 19
Forgot to say that your timing and reactions may be different. The delay after eating can be anywhere from 2 hours to 3 days.
post #14 of 19
Thread Starter 
Ooooh ok! That makes sense then! That is so crazy you experienced the heart racing and arthritis pains too! I never really thought/ think about those symptoms until you mentioned it now. So were your tests expensive, by the way? I hadn't even thought of prices until now.
post #15 of 19
Quote:
Originally Posted by gfreelishy View Post
So were your tests expensive, by the way? I hadn't even thought of prices until now.
The Genova test was probably about 250. It's been a few years, that's the best I can recall.

I thought the arthritis pains were because I was involved in competitive sports for 10 years at a young age. I thought maybe I just overused and abused my joints. It's nice to know that wasn't the cause.

I think the heart racing thing is because the adrenal glands get all ramped up from trying to fight off what the immune system thinks is some kind of invader.
post #16 of 19
Thread Starter 
Oh dear! I wish blood tests weren't so freaking expensive!!! Oh well, it's worth it in the end, I'm sure!

And oh that is definitely good your pains weren't from sports! What a relief. Same with the heart racing! So I forgot, did you have surgery done at all? Or did you just do process of elimination with meds then decided on the blood test? How long did you have symptoms for?
post #17 of 19
Quote:
Originally Posted by gfreelishy View Post
So I forgot, did you have surgery done at all? Or did you just do process of elimination with meds then decided on the blood test? How long did you have symptoms for?
I had my tonsils removed back when I was around 20. That was for chronic strep infections.

Somewhere around 30, I had the sinus surgery along with my nose getting straightened out. (I was hit in the nose by a baseball when I was young.) I can't imagine getting both tonsils and nasal surgeries at once. Each one of my surgeries was bad enough to recover from. Getting all that done at once...how did you breathe at all?

Anyway, the nasal surgery helped a little, maybe 10%, but didn't really fix the problem. See, they just made a little more room for the air to get in and out. But the source of the inflammation was still there. Along with the inflammation comes swelling, and the sinuses produce mucus too. So all that takes up the space that air needs to go in.

I really can't say exactly how long I've had this...but thinking back, and knowing what I know now, I know I've had some kind of both food allergies and sensitivities since I was very young. And the sinus stuff...most of my teen and adult life. I was pretty much resigned to...well, this is how it is for me. I wish I could go back now and have a long talk about this with my younger self. Maybe I wouldn't have suffered for so long. And things were not getting any better, they were getting worse over time.

The thing that finally made me go for testing was that I was breastfeeding my son, and my milk was very bubbly. That didn't seeem normal, but I found no information on bubbly breastmilk. My son had all kinds of gas from it. I'm sure that's at least part of the reason he was always so fussy and didn't sleep well. But it wasn't just the gas in the milk. I think he was actually reacting to my reactions, because the immunoglobulins are concentrated in the breastmilk. And since, I've found a few things he's sensitive to as well. I was eating those while breastfeeding...and he was reacting to those as well. So really, I was at the end of my rope with him and just wanted some answers. I brought up the idea to the doctor, it wasn't the doctor's idea. I just had a sneaking suspicion that food was a big part of the problem. I didn't actually get tested until my son was about a year old, but I was still nursing him for almost 100% of his food. After removing the worst food offenders, lo and behold no more bubbles in my milk. And my son's behavior improved. Still wasn't great, but it was markedly better than before. (I was still eating things that I later figured out he's sensitive to.)
post #18 of 19
Okay my mom has a similar issue. Hers is related to her asthma but she also can't smell or taste about 90% of the time. And she had constant post nasal drip for years that made her cough and cough.

What finally worked for her was off label use of pulmicort. She used it in the neti pot. That gave her about 60% improvement in symptoms.

She now uses the neti pot with Johnson and Johnson's Baby Shampoo instead of the pulmicort and she moved to a completely different climate and is about 95% improved. When she comes back to visit me, it all goes down the toilet again.

There's something special about the Baby Shampoo that you would have to google, but the ENT she saw gave her the info.

Aside from allergies, look to see if you live in an asthma hot zone. Upper MidWest US has tons of bad asthma. So does London. There was a map about 10 years ago in I want to say Scientific American that showed the demographic prevelance of asthma and poor air quality. You might want to try a climate that has better air quality.

V
post #19 of 19
Thread Starter 
Quote:
Originally Posted by Violet2 View Post

Aside from allergies, look to see if you live in an asthma hot zone. Upper MidWest US has tons of bad asthma. So does London. There was a map about 10 years ago in I want to say Scientific American that showed the demographic prevelance of asthma and poor air quality. You might want to try a climate that has better air quality.

V
Thank you! I actually do have asthma. But it's only exercise induced. I'm in Spain right now, but when I get back to the states I'm going to get some food allergy blood tests done, as suggested by another poster on here. That's interesting about the shampoo thing though, I'll have to look into that as well!
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