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My 3 yr old - need help understanding him - sorry LONG

post #1 of 14
Thread Starter 
Hi All,

This is the first time I am posting on here but have been on a lot & have read a lot of helpful advice for all my kids. My 8 yr old DS was dx'd with Dyslexia & ADD this past year and has been doing really well not being on meds but receiving great support from his teachers (we moved him to a small independent school) & some additional support at home.

My 3 year old ds has always been special since birth. He was always very routine oriented - would not sleep anywhere but in his own bed, we scheduled everything around his nap/feed times as not to disturb his schedule. At the time we thought we were blessed with a child on such a schedule but sometime in the past year or so, his anxiety, stress & inflexibility have over powered his wonderful & happy demeanor. He does not like it when anyone is doing anything that he is not involved in (ie. He is playing with his trains & his little sister picks up a doll in the other room, he sees her and immediately runs over to her & takes it from her and plays with it).

He has routines that must be followed - bedtime - I am the only one who can take him to bed. He must watch the same tv show every night before bed. When he is taken to bed, he fixes his pillows so that they are even & he checks his 'pile' to make sure all stuffed animals & favorite toys are still on his bed. We read the same 2 books, I turn off the lights, rub his back & we talk about his day. Then I kiss him, close the door behind me & we say 'good night' & 'love you' back and forth for about a minute or two until he tells me we are done. This cannot be done by anyone other than me and if we do not follow the schedule the way he wants it, there is a terrible tantrum & we must re-do everything.

This morning he woke up a bit later than everyone else in the house - that didn't work with his routine (he is usually the first child awake). He threw a tantrum & demanded that we all get back into our pj's and that I put our daughter back in her room so that he could follow his morning routine. We all pretty much did what he asked and when we did, it was as if we hit a reset button & he was back.

He also hits me & his siblings when he doesn't like what we said (if his older brother told him politely that he didn't feel like playing trains with him) or if he takes something from his sister & he knows he did something wrong - before I even say something to him, he'll run towards me & hit me.

I plan on calling the ped but where we live - but there isn't much hope for help there. We are one of the very few families at our ped's practice who delay vax & are lectured on it every visit. I am investigating some other doctors who are about an hour from our home in hopes of receiving better responses to our needs but in the mean time any other mamas who have experienced the same with their little ones that could shed some light on what this may be or what we can do to help him. He is the sweetest little boy but when he gets into these episodes - we all start to pull our hair out & it's affecting the dynamics of our family esp with an older ds that already has special needs (he feels like we're giving his brother more attention, etc).

My gut tells me something is wrong but I just don't know what it is. He doesn't meet much of the ASD criteria but every time I do research on his behavior that is the only thing that seems to come up.

I appreciate you reading this & providing any support/information.

- Jenn
post #2 of 14
He does meet some of the ASD criteria for Asperger's from what you've described, and/or for OCD, in my very under-educated opinion. I have a 4.5 yr old w/a tentative dx of Asperger's, w/some similar issues.

I have found this book to be very helpful (borrowed from the library at the dev center we go to):

The Child With Special Needs by Stanley I. Greenspan, MD, & Serena Wieder, PhD.

It's about encouraging intellectual and emotional growth in kids w/all kinds of dx's.

I've found it very informative and helpful.

One section touches on how we often, unwittingly, bend to the rituals and rules that our kids develop and that this does *not* help them grow and develop properly (although it *is* easier at the time to just go w/whatever to avoid rocking the boat). It tells you how to "stretch" your kids and teach them to be more flexible, and it gives many, many examples.

I really think you'd find a lot of helpful info and things to do in this book.

hths

You aren't the only one!!!

mrsfru
post #3 of 14
Thread Starter 
Thank you so much for your quick reply...heading to our library website now to reserve the book. Many thanks : )
post #4 of 14
Like the other poster, this is my uneducated opinion. My younger dd has OCD, but not quite to the degree you are dealing with. She also has food sensitivities, and when we remove wheat from her diet, her OCD is much more manageable. It is just an idea I thought I would throw out there.
post #5 of 14
Quote:
Originally Posted by mrsfru View Post
He does meet some of the ASD criteria for Asperger's from what you've described, and/or for OCD, in my very under-educated opinion.
I agree. My first thoughts were ASD and OCD too. It is the need for such a rigid ritual that really makes me wonder if it's not more ASD.

Quote:
One section touches on how we often, unwittingly, bend to the rituals and rules that our kids develop and that this does *not* help them grow and develop properly (although it *is* easier at the time to just go w/whatever to avoid rocking the boat). It tells you how to "stretch" your kids and teach them to be more flexible, and it gives many, many examples.
Yes to this! I think that by abiding by his routine so strictly that the entire family has to rewrite their day is only harming him, not helping him. I don't know what you need to do to help him, but I don't think the answer lies in keeping his routine so perfect that it forces other family members to lose their own needs. For example, what if your dd was 5 and didn't WANT to get back in her jammies? What if she was in the middle of something and didn't want to leave just to crawl back into bed?

He needs to learn (though it may be difficult, but hey - parenting is NOT easy!!!) that he is free to keep HIS personal routine but others don't need to.

I think by helping him learn to accept a bit of change here and there you may definitely help him grow stronger, more independent, and hopefully happier. Perhaps be unavailable one night a week - go out or something? - and have your DH put him to bed. But start SLOWLY. And IMHO, you really should work on this because if you were incapacitated or worse how could he cope with anyone else? He would be lost....

Also, if he mistreats his siblings because they are playing with a toy without him, then you perhaps need to intercept before he hurts anyone or takes anything and redirect him elsewhere.

I have a nephew who is autistic, and while his parents work to meet his needs, they don't coddle him, either, by bending to everything he demands. There are things that he feels he "needs" to do but those needs often interfere with other people's needs, or clearly injure those people. Things like that they just won't allow. Yes, a lot of the time he tantrums. He'll have a melt down. But like I said earlier, parenting isn't easy and we shouldn't always take the "easiest" approach with our kids, just for the sake of keeping peace in the home, because that may not be in their best interest.

Sorry so long winded.
post #6 of 14
Sounds like Aspergers to me
post #7 of 14
mama. I recognized your screen name. We know eachother. I hang out here in SN a lot... From our conversations, you know our kiddos have some similarities. I'm here to listen.
post #8 of 14
Thread Starter 
Quote:
Originally Posted by MilkbarMom View Post
Like the other poster, this is my uneducated opinion. My younger dd has OCD, but not quite to the degree you are dealing with. She also has food sensitivities, and when we remove wheat from her diet, her OCD is much more manageable. It is just an idea I thought I would throw out there.
I have read about this & have friends who have done it with success. That will be my next step in this journey. Thank you.
post #9 of 14
Thread Starter 
Anastasiya - Thank you for your reply. I appreciate the feedback. I definitely agree that bending to meet all his needs is not helping. I will say this has been fairly recent. The past year his rigidness & inflexibility has progessively become worse & we don't feel like we know how to handle his tantrums/melt downs effectively (since they were getting worse even with not meeting his needs & having the melt downs)- which is why we were bending. We now see that bending isn't helping either & why I know we need someone to help us & him. I don't think we were trying to take the 'easy' way - just what we really thought was the 'healthiest' way. : )

I was out of the house last night for his bed time & he did let dh put him to bed, but they did follow the same 'ritual' that he & I do every night. This morning was much better - we have good days & we have some not so good days.

Parenting is a journey and I'm all about learning and growing alongside my kids.

I really appreciate everyone's comments & support.
post #10 of 14
gogreen,

I also can second that the gluten free thing works--we've blown it this past few days, and ds1 is a total PITA (sorry, but true!). He's over the top upset about everything and totally ridiculous. Without gluten for even 4-5 days, he's like a brand new kid, and much more able to tolerate change, noise, etc.

GL! Hang in there!

henrietta
post #11 of 14
gogreen, I have also dealt with the rigidity and meltdowns/tantrums and the decision, situation by situation of whether to bend or not. It's very hard, and I found that if I got some treatment for my DS, at least for the sensory end of the issues, that there were readyness signs that my child was able to work through it and begin to learn the skills to bring himself back and learn from the experience.

No offense to the pp, because of course there may be a line where we are "coddling", but there is also a line where we can just suffer through needless tantrums without any ability of the brain to learn from it. Until my DS got some help, I just played it by ear, when to hold firm, when to try and introduce some reasoning, and when to bend. Often, nothing feels right. Go with your gut, and I know you will do great by your child.

Get yourself some help Mama, don't do this alone.

I also recommend the book "The Explosive Child" it lays out a good method for working with these sorts of situations and dynamics.
post #12 of 14
Thread Starter 
Thanks pitchfork! That's how I feel too. We have plans to see someone..unfortunately they were booked thru June! Plan on doing some reading before then. Thanks for the recommendation : )
post #13 of 14
It can be very challenging to tease out what's going on with a child as young as three.

Some free reading:
http://books.google.com/books?id=kPt...age&q=&f=false
(I love this book)

http://books.google.com/books?id=J5M...age&q=&f=false
(this one's good because it gives you an idea of where they should be at with a particular executive skill by certain ages)

http://books.google.com/books?id=DmU...age&q=&f=false
(another book with good descriptions)

The book, The Mislabeled Child, by the Eidies is a must read for anyone parenting a child with some differences, IMO. It really outlines the characteristics of different "disorders."
post #14 of 14
Thread Starter 
Thanks joensally...great links.
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