Mothering › Forums › Parenting › Special Needs Parenting › DD2 is exhausting me (long).
New Posts  All Forums:Forum Nav:

DD2 is exhausting me (long).

post #1 of 11
Thread Starter 
So I am pretty sure that my almost 3 y/o (she is 33 months) may have an SPD. This is what our days are filled with:

*she still puts things in her mouth. I mean ANYTHING in her mouth. I live in fear of her choking to death on something (especially since she had her first visit with the paramedics when she was 7 m/o for choking on a piece of scotch tape) because food or not, it goes in her mouth. She raids the dry cat food on a regular basis. I have to hide the tv remotes because she will bang them on the floor until the batteries come out and then she will chew the coating off of them. She walks around with her sister's Polly Pocket clothes in her mouth and chews them rapidly so they make a squishy sound. Crayons. Puzzle pieces. Paper. Rocks. Band-Aids. Thumbtacks. She grabs plastic wrap out of the drawer in the kitchen and chews on the end of the roll. The knobs on the XBOX 360 controllers. I can't even list it all.

*she seems to do things just for the sake of doing them but she just doesn't stop. I feel like I can't describe it adequately. It's like she will be doing something she shouldn't be (mauling the cats--more on this in a minute, throwing toys down the stairs--all day she'd do this if I let her, dumping her toys into a sink full of dishwater), I'll redirect her to something else, and then she is instantaneously moves on to something else she shouldn't be doing. It's like a quickly moving assembly line of trouble. She has so much energy.

*she doesn't seem to just sit or stand in one place and just play. Her playing consists of constantly seeking things out that have an action/reaction scenario, such as throwing things everywhere, snapping my knitting needles in half (oh I could cry over this one--they're all gone), slamming doors. She will stop and quietly play with Polly Pockets sometimes but it usually just lasts about 5 minutes, really the Pollies are just along for the ride o' trouble.

*Screaming. She will just stop what she is doing and screaming, blood curdling screams. Anyone remember my thread about the Whole Foods incident in Parenting? yeah, that. When she does it she is not upset, angry, hurt. Just does it for the sake of doing it. This has been going on for nearly a year.

*Hurting the cats. She loves them to death, or tries to. She has no concept of gentle touch, I've tried showing on her on herself, on me, on the cats, to no avail. She does.not.stop harassing them. And again with the cause and effect thing, last week she put the cat under her arm and put a Polly Pocket in its butt. And when she hugs them she does it waaaaayyyy to hard.

*I think her perception of pain/sensation is off. First of all she is built like a brick house, just a really solid little kid. And she is a brute. She can fall down and get hurt but just brush it off and then keep going, but then have cuts and bruises later that can be pretty bad but she doesn't notice them. Yesterday morning we were in bed (we cosleep--more on that in a minute) and I watched her take my cell phone (I have a GZone, very hard exterior), raise it above her head at an arm's length, and drop it on her forehead, over and over again. She was smiling the whole time. She will frequently stand next to a door and shove herself into it repeatedly. She loves it. And she plays really really rough and it constantly hurting other kids.

*She loves to rub squishy things all over herself. I've caught her with her hands in Crisco, peanut butter, hand salve, paint (she doesn't paint pictures she just rubs it all over herself), butter, yogurt. Whenever I feed her she eats and then finishes up by digging her hands into her bowl of food and washing them with her food. Sigh.

*she is affecting our lives so much. I feel like I can't go anywhere without having an anxiety attack over what kind of meltdown she is going to have. I can't get anything done because I have to constantly stop what I am doing to save Avery from herself. I can't give her big sister the attention that she needs because it's like our lives are dictated by this kid. I feel like we are walking on eggshells all the time. Playdates and our homeschool group are simply hair-raising. I can't have a conversation with anyone because I can't get more than 2 sentences out before I have to go referee a situation with her hurting yet another kid. I cringe when someone brings a dog to the group because it means I will have to keep her away from the dog but when I redirect her it is useless because once that animal is near her she has absolute tunnel vision and goes on a rampage because she can't handle them gently. I hate going to picnics or parties because I can't talk to anyone because I am following her around trying to keep her out of the street, off people's cars, away from their pets, off their babies, out of their purses it just never ends.

I just want to cry. I can't even get a break when she sleeps because she sleeps like crap. She sleeps maybe 10 hours a night but wakes up every 2. We cosleep because well same concept as having an infant, I get more if she's in my bed. And forget putting limits on nursing, all hell breaks loose if I refuse her. And the piching! She just pinches and pinches me I can't take it, I've tried unlatching her and telling her no, there have been times where she has hurt me so bad that I've shoved her off my lap but she thinks it's hysterical. Sometimes she will headbutt me on purpose and laugh about it and then go try to do it again.

There is more I'm sure but I can't think of it right now. And you know what, she is really a sweet little kid in spite of all the horror, she is a huge lovebug. She loves to talk, is very affectionate, and her speech improves more and more every day. So its not all bad. Just most of it. I just emailed a local SPD clinic and hope to hear back from them next week.

Thanks for reading. It has taken me 2 hours to type this.
post #2 of 11


You definitely need an eval for SPD. It sounds to me like she's a major sensory seeker. Major.

Some quick suggestions:
Chewelry (chewable jewelry - made just for kids like this). The one I've linked to is just one brand. One of my friends with a hugely sensory seeking child was told by their OT to get some of the small aquarium tubing as it's a lot cheaper. So, they made chewelry out of that.

Crunchy foods - lots of them. Carrot sticks, cheerios, Wasa rye crackers come to mind immediately. But really, anything that's close to the texture of the cat food will do. (She's clearly craving the crunch that you get with dried cat food.) I'd leave a bowl out on the table at all times for her to go to. It might help the cat food raiding.

A weighted blanket for sleeping. Some of the other parents here might be able to tell you how to make them and/or where to get one. If you get an OT eval, they may also recommend a weighted vest for her to wear some of the time.

An indoor mini trampoline.

Lots and lots and lots of large motor activities. My friend actually enclosed their outdoor trampoline so their son can jump on their for hours, rain or shine. (He's also got major ADHD, so the combo is pretty tough on them.)

My favorite book on SPD is: Sensational Kids -- it's got a really good chapter on sensory seeking kids and things you can do at home to help. (The Out of Sync Child is good, but not as good for sensory seekers).
post #3 of 11
Sounds like my sensory seeker. You might also want to consider ADHD

Martha
post #4 of 11
Thread Starter 
Quote:
Originally Posted by kittynurse View Post
Sounds like my sensory seeker. You might also want to consider ADHD

Martha

LOL yeah no kidding Martha! After all, her mom is the ADHD poster child.

Be back later.
post #5 of 11
I couldn't read without sending big hugs! Your DD sounds like mine 4 years ago. I will say with age and a good sensory diet, things do get easier.
post #6 of 11
Even if she hasn't started preschool, you can get occupational therapy from the public school in your town. If you do get a diagnosis through a private company, bring that written evaluation to the school.

My son had therapies (physical, occupational, speech) through the preschool even though he wasn't enrolled in that school.
post #7 of 11
Thread Starter 
Quote:
Originally Posted by LynnS6 View Post


You definitely need an eval for SPD. It sounds to me like she's a major sensory seeker. Major.

Some quick suggestions:
Chewelry (chewable jewelry - made just for kids like this). The one I've linked to is just one brand. One of my friends with a hugely sensory seeking child was told by their OT to get some of the small aquarium tubing as it's a lot cheaper. So, they made chewelry out of that.

Crunchy foods - lots of them. Carrot sticks, cheerios, Wasa rye crackers come to mind immediately. But really, anything that's close to the texture of the cat food will do. (She's clearly craving the crunch that you get with dried cat food.) I'd leave a bowl out on the table at all times for her to go to. It might help the cat food raiding.

A weighted blanket for sleeping. Some of the other parents here might be able to tell you how to make them and/or where to get one. If you get an OT eval, they may also recommend a weighted vest for her to wear some of the time.

An indoor mini trampoline.

Lots and lots and lots of large motor activities. My friend actually enclosed their outdoor trampoline so their son can jump on their for hours, rain or shine. (He's also got major ADHD, so the combo is pretty tough on them.)

My favorite book on SPD is: Sensational Kids -- it's got a really good chapter on sensory seeking kids and things you can do at home to help. (The Out of Sync Child is good, but not as good for sensory seekers).
Thanks for your reply! Very helpful! I have a couple questions.

Now the chewlery, do you think she would be able to take chunks out of it? Because she is pretty adept at shredding plastic, even hard plastic (toothbrushes, polly pockets, she has even shredded the spouts on her sippy cups in the past ). I'm going to look into this though.

And the weighted vest and blankets, what exactly do they do? Is the blanket more for a feeling of security when she is sleeping? And the vest is the idea to provide a feeling of security as well or is it supposed to help tire her out (from the extra weight)?

Just before I read your reply yesterday I actually thought of keeping crunchy foods around for her. I put out several bowls of frozen blueberries which she loved and then in the afternoon I did some lightly salted popcorn. This was pretty helpful, it's better than her eating puzzles pieces or the power cord to my laptop.

A trampoline is a good idea but for now she is just going to have to jump off my nightstand on to my bed.


DofK, I'll look into the therapies offered through my town's schools, thanks for the idea. I didn't know that you could do that.

She is sitting here beside me all snuggled up. I guess I'm really glad I have a sensory kid that loves to have close, firm contact, because I could just hug her all day and she loves it
post #8 of 11
Thread Starter 
Quote:
Originally Posted by hadleys_mom View Post
I couldn't read without sending big hugs! Your DD sounds like mine 4 years ago. I will say with age and a good sensory diet, things do get easier.
What is a sensory diet?
post #9 of 11
Here is a link about a sensory diet http://sensorysmarts.com/sensory_diet_activities.html We worked with OT to create a plan. Now I feel like I have the tools necessary to provide DD with the type of activity she needs to get her sensory needs met.
post #10 of 11
Quote:
Originally Posted by ~Boudicca~ View Post
Now the chewlery, do you think she would be able to take chunks out of it? Because she is pretty adept at shredding plastic, even hard plastic (toothbrushes, polly pockets, she has even shredded the spouts on her sippy cups in the past ). I'm going to look into this though.
Honestly, I think she'll chew through it. That's why my friends' OT recommended the aquarium tubing as it's pretty cheap. They would just replace it every couple of days.

You could also look for things from an OT supply company. Pocket Full of Therapy, for example, has a lot of oral motor stuff that might work. (They also have a sensory category of stuff that might work, but a lot of that stuff might be a choking hazard, and you clearly can't trust her not to put things in her mouth.)

Quote:
And the weighted vest and blankets, what exactly do they do? Is the blanket more for a feeling of security when she is sleeping? And the vest is the idea to provide a feeling of security as well or is it supposed to help tire her out (from the extra weight)?
Weighted blankets/vests give pressure on the skin/joints and help 'ground' a child with SPD. Since a large part of our sensory system relies on information from our skin and our joints, adding weight helps increase that information for a child who's getting too little info from their sensory system. A sensory seeker seeks out sensations because their nervous system is under-responsive to input.

Sometimes giving a child a backpack with a few things in it to wear around helps. too. You do need to be careful that you don't overload it - you don't want the weight to damage her joints. That's where an OT's expertise can come in handy.

Quote:
Originally Posted by ~Boudicca~ View Post
Just before I read your reply yesterday I actually thought of keeping crunchy foods around for her. I put out several bowls of frozen blueberries which she loved and then in the afternoon I did some lightly salted popcorn. This was pretty helpful, it's better than her eating puzzles pieces or the power cord to my laptop.
indeed! It's a bit odd to have to remember to think of texture of foods, but if you can remember that, it will really help. My kids (and my dh - he's got major sensory issues) won't eat anything that's of 'mixed' textures. So, most soups and stews are out at our house.

Quote:
She is sitting here beside me all snuggled up. I guess I'm really glad I have a sensory kid that loves to have close, firm contact, because I could just hug her all day and she loves it
Isn't that great? I've got one child who's more of a sensory seeker (dd - though she's not got SPD) and one child who's a sensory avoider. For the longest time, ds' version of snuggling was to lie 2 feet away from me on the bed.

She might also really like things like 'burrito rolls' where you wrap her up tightly in a blanket, or 'kid sandwiches' where you put her in between the couch cushions.

Oh, and I went back and found an old thread where someone posted a ton of really good sensory games. And WuWei linked to this site which has a ton of good ideas too.

The real key is to build up a sensory diet that can meet your child's needs, probably on an hourly basis. It sounds exhausting, but once you get into a routine, it's not that bad.
post #11 of 11
Thread Starter 
Thanks Lynn!

Today I really just needed her to stay in one place so I could get some stuff done so I gave her a "bean bath" to keep her occupied. I put a couple pounds of dried beans in a huge rubbermaid container and then put her in it with some funnels and cups. She absolutely LOVED IT! She thrashed around in there for about 45 minutes. It was weird not having to say, "Where's Avery, what is she doing?" every 2 minutes.
New Posts  All Forums:Forum Nav:
  Return Home
  Back to Forum: Special Needs Parenting
Mothering › Forums › Parenting › Special Needs Parenting › DD2 is exhausting me (long).