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Low-Milk Supply Tribe - Page 6

post #101 of 1093
Thanks for the warm welcome here! Quirky~ I meant to tell you in my last post that I take 20mg of domperidone 3 times a day. The rx I have says 4 times a day but I really have a hard time taking it that often, plus cost is a factor here too.
post #102 of 1093
Joining the group to add my support and story.

I had never heard of hypoplastic breast before this thread but that might have been my problem. I wear not near full A cup and never got any bigger when I was preggo or nursing (I thought big breasts were suppost to be an extra plus of being a mom ). I am also a full time WOTH mom - no choice there.

I tried all the herbs and pills but they didn't work and would gave DS and I upset stomacks. DS and I nursed mostly just for comfort until he self weaned at 9 months. Now I was very lucky because both my sisters and I were preggo at the same time and we gave birth within 4 months of each other. My middle sister did not even really try to latch because of the problems she had with her first DD but she had a huge supply just pumping. She pumped for a year with her first and a year with the second also. Her supply was so large that her dd could not eat it all, so my sister would give me her extra frozen EBM. Over the course of 6 or 7 months she gave me about 5 Gallons of both fresh and frozen EBM. ( She called herself Elsie the Human Cow) I pumped 3 times a day at work until I just coulded justify it, 2 or 3 oz day only and that was pumping at least 3 times a day for 30 minutes (yes, I have a great boss to let me do that)

Sometimes I fell guilty because I feel I was a breastfeeding success. I did everything I could, didn't just give-up without a fight, don't believe feeding fomula will effect my child's abilty to have a healthy life. Sure maybe I could have tried ten more things to increase my supply but instead I spent that time and energy playing and bonding with my child. He is healthy, happy and attached and in the long run that is what makes me a good mom.
post #103 of 1093
Sorry double post - computer error
post #104 of 1093
DetroitMom, Thanks for your story. From what you described it is quite possible that you have hypoplastic breasts. One characteristic of them is they don't increase in size while pregnant or nursing. That is fabulous that you were able to get your sister's extra EBM. I have been fortunate to get some of my girlfriends EBM. I am thankful for every ounce of it and luckily Kaylee drinks it great.
post #105 of 1093
just to let you know I didn't see an increase in supply until I was taking 40 mg. four times a day. I was up to 180 mg at my highest. I couldn't afford it from the pharmacy so I bought from New Zealand which was far cheaper than in the states. I paid $150 for 12,000 mg-that includes shipping.
I don't have a huge amount of time but I just wanted to put this out there as a former member of this tribe for anyone geographically close to me: I am crrently pumping ten ounces a day more than I need. I am not a vegetarian, but I eat totally organically. I had a natural homebirth with no drugs and the only meds I do are my dosages of domperidone. If I could share with anyone to decrease the amount of, or eliminate formula I would love to. I had milk donated to me, and it was the best gift ever. I am in CT. If anyone needs it, it's here.
Keep up all the great work ladies!
post #106 of 1093
Thread Starter 
please come and join my party! It is DS's 1st birthday - we made it nursing!


post #107 of 1093
post #108 of 1093
I was taking 40 mg. four times a day. I was up to 180 mg at my highest.
phew! i thought i was the only one taking such high doses...
i'm on 150mg/day, and hanging in there. i did go up to 180 on several occasions. it's strange, my pumping output fluctuates so much, i never know why! it drives me nuts. i do think i've become more resistant to it, though. i'd like to slowly wean to 120mg/day, so i can go up again if i need to. but weaning off of it is SO hard without hurting supply....

when will this "why me" feeling go away?
post #109 of 1093
IT's so hard, and I don't get it either. I mean I have all these peopl ein my life who were trying to get their milk to go down because nursing is "disgusting." I was here being called a fanatic (by friends and family) because I am on meds, pumping every hour and a half for a half an hour, using an SNS, a lact-aid, a haberman feeder and bawling all the time. Of course my DD has a spinal cord injury that is preventing her from nursing even though my supply is now up. To make it worse (have I said this before?) insurance would pay for a surgery to help her, but she was so weak that docs said that she may not survive surgery. Ummm, well, then, we're not DOING surgery. We found a physical therapist who specializes in special needs children and he is doing wonders. But insurance still won't pay. So, we've sold our house and declared bankruptcy to pay for her treatments. I still haven't gone a day without crying. I totally know the why me feeling. Sorry, I shouldn't even be posting here because I'm technically no longer a low-supply mama, but I get what you're feeling. Keep up all the good work mamas! I think about all of you while I'm pumping...
post #110 of 1093
It warms my heart to find this thread.

I was (finally) diagnosed with breast hypoplasia when my daughter was about 3 months old. By then, we had a small tongue-tie clipped, many many LC consults, tried Reglan, tried every herb under the sun, pumped like crazy, etc., etc., all without improving my supply to the point I could stop supplementing with formula (which I hated!). I felt defeated. Breastfeeding was something I had taken for granted since I was bf'ed until I was 3 and my mom always talked so positively about it. It was such a shock, and so heartwrenching. And, to make matters worse, I had a horrendous pediatrician who couldn't understand what all the fuss was about, and thought I should just be happy that formula was an option.

My diagnosis-- though it meant there was probably nothing to be done-- was so comforting. So much made sense. Like many of you, my breasts grew only slightly during pregnancy. My breasts are the tell-tale conical shape. I have a wide flat space between them. When my husband and I were--finally-- told about hypoplasia, we finally knew the demon we were up against and it all just clicked. Somehow, knowledge is empowering, even when it shuts off some possibilities, you know?

We had a beautiful nursing relationship until my daughter was 13 months old. Then, during a cold when she was uninterested in nursing anyway, I gently encouraged her to wean. I was ready. I felt exhausted-- physically, mentally. And she was fine. We supplemented with formula until she was a year old, then transitioned to milk. I never was able to breastfeed exclusively.

I feel healed now (she's almost three), but it's a fairly recent feeling. I thought I was ok before, but last summer my (well-intentioned) mom said some things that brought back some of the anger and sadness from those low times. I went through a series of tests in the fall to rule out any contributing factors to my supply issues. My doctors have told me there's nothing to be done to improve my odds the next time around, aside from the general statistic that most hypoplastic women have more success with subsequent children. Nonetheless, I started acupuncture this January-- turning to Eastern medicine when there were no more answers in Western. My acupuncturist is ready to see me again when our next baby is born and to help however he can.

We're now trying to conceive our next child. A wonderful, amazing friend has offered to pump and donate milk for us, so it looks like no matter what, we'll have a much better supplementation option. I'm glad to be going into the next pregnancy/birth aware of the challenges that lie ahead. I feel empowered-- we did this once, under much worse circumstances (lack of information), and I know we can do it again.

There was so little information out there three years ago. Thank you all for putting it out there now. You are all incredibly strong.
post #111 of 1093
You know I read a few days ago that women with hypoplastic breasts are extremely rare, but after reading all of your posts it makes me wonder if there are more of us out there than statistics say.

Stream it's good to know that women with hypoplastic breasts have better success with subsequent children. That really gives me hope for the future.
post #112 of 1093
Hi Everyone

I just wanted to jump in a post, too. My daughter is 18 months old today, and I just finished nursing her for a bit...she is starting to self-wean, but we do nurse a few times a day still.

I had a breast reduction when I was 20 (I'm 34 now) and didn't really think about the ramifications of nursing. People told me I might not be able to nurse... I thought that meant that I either could or couldn't. When I saw colostrum in the final few weeks of pregnancy, I thought it wouldn't be a problem.

We had the typical struggles low milk supply moms had at first...rapid weight loss in the first week, etc. I had so many LC's and LLL leaders all telling me how to make my daughter thrive. The best thing that happened to me was getting a copy of Diane West's "Defining Your Own Success" about breastfeeding after a reduction. I've recommended it to several people including moms who have adopted babies and low milk supplies, as the techniques apply to those groups too.

I used an SNS for a while, and was able to eventually maximize my milk supply so I no longer needed it. I took 160 mg of domperidone a day, 16 tablets of Fenugreek, 8 of Blessed Thistle, Marshmallow and I forget the last one I took...maybe goat's rue, but I think it was something else...I check and find out. I order my domperidone from New Zealand from globaldrug, too. It's by far the least expensive place to find it.

So I belong to an email list for moms who are bfar'ing, and lots of discussions have come up over time there. I think it's interesting that someone mentioned compounded domperidone is better than the blister packs...the general consensus is that the blister packs have better efficacy from that email list.

I also had a massive mastitis infection in January, and had to have surgery to remove it. We saw a huge drop in nursing since I was in the hospital 4 days then. I'm still nursing, but have mostly weaned off the domperidone and all the herbs. I just want you all to know I know what you're going through, and how hard it can be to feel the pressure to breastfeed, even if you aren't part of a natural parenting community. I'd love to be able to offer support for anyone who needs it I feel like I've been through the breastfeeding ringer, and we survived and are still working at it here and there.

Just also wanted to give elisabeth a quick note to ask how things are going and if you are still b/fing? Domperidone takes 5-6 weeks to maximize in the system..I had to use an SNS for a while even though I was taking the max dose. Sounds like you had good results, then got discouraged. Where are you at now?
post #113 of 1093
I'd have to agree that in comparison, it was easier to bf my second child- at the very least he did not have such a huge weight drop as my first did. He held steady, not really growing, but that was such an improvement, believe me. Sometimes I think if I had six kids, it's like my breasts would finally get used to the idea. (not planning that, BTW i'm not that keen!) And my nipples definitely looked more 'nursable' with my second. So yes, I do think there's hope that low-supply first time mums will have it a bit easier the second time around. Of course, with second & more babies, there are older sibs to consider, & they do take up time that you would have spent one on one with your first, KWIM? But I did get pretty good at doing lots of things with one hand (playdough, colouring, rolling a ball on the floor, etc.). BTW, my kids are 2 years, 2 months apart in age.

And finally, a friendly welcome to new members on the thread.

oh & last but not least....... elisabeth.... 10 extra ozs a day?? You champion, you!!!
post #114 of 1093
Thanks for thinking of me. We are still nursing, and it's going pretty well. Selkie is still having trouble because she's so tired. Ten extra ounces sounds like alot-well it IS alot, but the problem is that she should be taking almost forty ounces at this point daily and I'm lucky if I can get twenty five into her. She just doesn't really want to eat. I am really hoping that turns around very quickly, but I'm doing all I can. On the domperidone front I am also going to say that the blister packs seemed to be effective for us. I have been on it for ten or eleven weeks now and the first four were with compunded stuff. I saw a big difference with the new domperidone from New Zealand. I also saw a nice increase when at ten weeks I began adding hops and oatmeal to my diet. They seemed to work better in conjunction with the domperidone. I also did acupuncture and that seemed to help. Keep up the good work-I know for me even though we're not nursing 100% every little bit is a great victory for me.
post #115 of 1093

When you received the domperidone from NZ how long did it take to get to you? The reason I ask is I ordered some yesterday and I'm hoping it gets to me before I run out. I'm afraid that what little supply I've been able to build up will go away if I have to stop. Also how did you add hops to your daily diet? What form are you getting them in? As far as the oatmeal do you eat that as the instant oatmeal or the kind that you have to cook? I've switched to the traditional kind and I don't know that I've noticed a difference.
post #116 of 1093
The domperidone took about two weeks to get to me. Once it was ten days, once it was twelve. If you need some to tide you over let me know. i can send it to you this weekend. Hops I get dried and brew as an infusion. You can also drink one dark beer a day. For the oats, I get organic steel cut oats. They take about fifteen minutes to cook and are also a good source of calcium. Just from a nutritional standpoint i would recommend getting whole oats-they're much better for you. If you aren't already you could try brewing some "milk tea." I do two parts red raspberry leaves, two parts nettles, two parts alfalfa, one part hops, one part oatstraw and one part peppermint or lemon balm (good for depression.) You can also use red clover, fennel seeds and blessed thistle leaves. I drink a quart a day, again as an infusion. I think that really helped my supply as well.
post #117 of 1093
Well Elisabeth I just counted my domperidone and I have 3.5 days left. I could probably stretch that out to Saturday if I take 60 mg a day instead of 80mg. So if you could loan me some I'll replace them when I get my order in. You are SOOOO kind to offer. I think you definitely have a heart of gold. As far as the teas that you drink where do you get your herbs? Also I thought peppermint could dry up your milk...not help your supply. I read that in the book "The Nursing Mother's Herbal." Well, I hope you are doing well! Talk to you soon.
post #118 of 1093
Hi there! I am new to this site! I was on my way to bed and saw this thread. As always I am almost to late in the game. I will chat more about that later. Why haven't I ever heard of dompermine sp? That makes me mad I haven't!!
post #119 of 1093
Hi myboyz! Never too late to join our little mob. I hadn't heard of domperidone either. I think I prolly would have tried it if I had, but....... well, what's done is done, I guess. Welcome.
post #120 of 1093
you probably haven't heard about it since it's not approved for use in lactating women for the purpose of increasing milk supply. In fact, the FDA released this last month:


When I saw that, I got a little stressed about the availability of domperidone, so I ordered some and got it about a week later. There is a bit of info out there, but I think the FDA basically wants to protect themselves from any long term ramifications. The claims they make are a bit off, the people who had reactions to the domperidone they are talking about had IV injections of the drug. We take pills at a fairly low level...most of us taking as much or less than motility patients. There has been no studies on long term effects of babies, though, and I think that is truly what this statement is all about. Nonetheless...moms in the US may find it more difficult to get medical reimbursement for there domperidone or to find a compounding pharmacy that will mix the drug for them if they get it stateside.
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