I realized it had been way too long since I did one of these threads, so I tried to find the most current one. I realized it when I posted a thread about River and only Ally knew any background.
Janelle-7 She has no current diagnosis, there was a point when our ped thought she had mild cerebral palsy due to poor upper body strength/tone, but I refused doing an mri/cat scan and it's no longer an issue. We've also had a diagnosis of PDD-NOS which I don't believe at all (this was diagnosed at her sleep study...and since it was part of a research project we didn't get the results till 18 months after her follow up study) and every other teacher suggests she may have ADD...her pre-school teacher thought she was fine, just bored and gave her harder work and that worked. Her first K teacher in Michigan thought ADD, her K teacher in Colorado thought fine, just bored, gave her much harder work. Her first grade teacher thinks ADD, her G&T teacher who she goes to for pullouts thinks bored... Since the teachers who give her harder work get positive results, I'm assuming they are right. She's also been diagnosed failure to thrive more times than I could possibly count, but has been moving up the charts consistently since getting her tonsils out (hence the sleep study) at 3 years old and hasn't had the FTT label since then!
Kincaid-6 He had seizures from birth till 2 1/2, we didn't get any seizure control till 18 months, and he has a global developmental delay of 18 months...which, when we started with EI at 15 months old was HUGE, he wasn't even testable till 2, and at that point had a 75% delay, now at 6 it is a 25% delay, by 12 it will be 13% if we stay on track (no signs that we won't) which will be well within normal deviation. He was diagnosed with apraxia of speech at 18 months, global dyspraxia at 2, ASD at 2 1/2. He lost the ASD diagnosis this year at his 6 year IEP, though they did say they wouldn't be shocked if he gets an aspergers diagnosis at 9 or 12, but for now, no social issues what so ever, so no autism, he still has global dyspraxia that for him includes gross motor, fine motor, articulation (he has horrific articulation), sensory issues and an auditory processing disorder (his speech therapist and school psych showed me this year that he is now a pretty proficient lip reader...I had NO idea, so now that we know he has to see us when we talk to him it's been HUGE). He's a great kid though, has lots of friends, plays great with others, is hardly ever in trouble for any reason (and only ever at home, he has never needed to be corrected at all by a teacher since he was 2 years old, and he's been in school since then), loves my little ponies more than anything else in the world... He is doing things now that the doctors and such we saw at 2 and 3 didn't think he would EVER do, and he's only a kindergartener, I couldn't be more proud of him!
Travis-2, will be 3 in August. Umm...this is the one I dropped the ball on.
IMO he was ok, he didn't talk, but he knew what we were saying, and he did everything else late as well, but then did it all at once...like he ran the first time he walked... So I didn't get him evaluated till he still had no words at 18 months, we started speech at 20 months old, and saw no progress, plus his ST saw a lot of other issues, so when we had a re-eval at 28 months old he was officially diagnosed with autism, he now gets aba therapy in our home for 6 hours a week, with DH and I doing another 12 hours a week with him, he also gets OT, ST, and will be starting feeding in august...he's a good eater, but he doesn't chew right and over stuffs his mouth, which causes choking/gagging/vomiting issues at times. He also 100% fails his hearing tests, we have to see audiology about this, as we've exhausted our ped, EI, and ENT's resources, we really thought it was due to fluid build up (he had a TON when they put in his tubes) but it hasn't made any difference. My gut says it's just like Kincaid, an auditory processing issue and there is nothing we can really do, but we'll see. He has 1 actual word (water) but he uses 30 signs spontaneously and will mimic about 100 others if you do them first. He's also amazingly good at problem solving...he can pick a lock with a pacifier... We put up new gates last night and 6 hours later he had figured out how to use a toy stuck through the holes in the gate to open a kitchen drawer, then he used that to climb over the gate... He's also tiny, did get 1 failure to thrive diagnosis that the specialists didn't agree with when he was 7 months old, but he's been on the same non-existent curve since about 4 months old, and grows consistently and at a proper rate, so there is nothing to worry about there as far as everyone is concerned now. He's a snuggly little guy, sweet and adorable, very very high maintenance, but cute!
River is 1, so far there are no warning signs for autism, he points, shows joint attention, has about 7 words that he uses correctly and spontaneously and about 10 signs, he is VERY social and outgoing. His issues are all medical... he has had numerous failure to thrive diagnosises in his 13 months, and unlike his siblings, he doesn't grow consistently, he will have a month or so where he gains 1lb per month, then he will lose 8oz and plateau for months at a time...he also has had 11 separate viral infections in the past 3 months. He was admitted for a full diagnostic work up on may 19th and we were discharged on the 24th. From that we know 1. he takes in enough calories for a 1 year old, and way more than a 13lb kid should need in a day. 2. he has very low growth hormone levels. 3. he has a lowered/compromised immune system now, but we were told these tests are not that accurate when a kid has been sick in the past 30 days, and really not accurate if they've been sick for basically the past 90 days straight, since that alone can give you a lowered immune system that would just be temporary, so we have to retest him once he's went 30 days with no fever...which at this rate will be never. 4. his kidneys are small for age and small for his overall size and misshapen, but except for a low bicarb level (that came up with 2 days of treatment) the are functioning 100% normally, and even that could be caused by nothing but the small size, as his bicarb level was still within normal range for a 6 month old. 5. his hands and feet are the size of an average newborn where as the rest of him is between the 4 and 6 month age range size wise... Genetics seems to be 100% sure they will be giving him a diagnosis of russell silver syndrome at our follow up in November they are just working on ruling out everything else right now, our ped isn't as sure, she thinks something else will come up on the array due to the # of really small people in DH's family.... He is 13 1/2lbs now at 13 months old...though since he caught a stomach bug on tuesday he's probably down back to right around 13lbs again.