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Casts and sensory issues

post #1 of 9
Thread Starter 
Although this is a question about me not my SN kiddos, I figured the best experts were here I broke the 5th metatarsal (middle of the outside pinky side bone)on my right foot last Wednesday, and have been in a temporary cast of a casted splint under my foot and behind my calf about halfway up, wrapped in ace bandages. Under the cast is a layer of rolled cotton. Although the break and bruising is uncomfortable, the sensation of the splint and tightness/snugness is about to drive me crazy! The thought of getting a cast in a couple of days for 8+ weeks is almost enough to induce an anxiety attack. I didnt realize until my first child, who had/has lots of them, that I even had sensory issues! They are not as bad as a to have a full on dx with SPD, but they are enough to irritate me nonetheless. In addition, the sensation of being helpless--crutching is difficult in my house, and I cannot drive--is also anxiety inducing. My two year old has also figured out that I cannot chase him or prevent him from causing all kinds of chaos s

I am hoping that I will be given a walking cast, which I cold take off when it got overwhelming, as the ER dr mentioned that as a possibility. However, this is also a very difficult to heal location for a fracture, and so early stability and healing is really important. It could be even longer that 8 weeks otherwise, and there is a possibiliy of surgery and pins. I am even considering pushing for the surgery/pins, because it results in less overall cast time from what I can read.

So my question--what can I do to make this cast business not so unbearable? Other than a cracked pinky toe and a chipped knucklebone, I have never broken a bone in my life and have never had a cast. If it feels at all like this splint, I will go crazy!
post #2 of 9

When I was pregnant I dropped a measuring cup and severed my tendon in my foot. They surgically repaired it and then I had to be in a cast up to or just past my knee for I think 8 weeks (it's been almost seven years ago now so I can't remember exactly). I've got sensory issues and am claustrophobic. When I first got the cast I thought I was going to jump out of my skin as I felt completely trapped. I was so anxious I couldn't sleep that night. It was a horrible feeling as I'm sure you know. I called the next day and told them they had to remove it no matter what the result was going to be for my foot. Of course they told me sorry but we can't do that. I'm sure they hung up and laughed at me.

I really thought I wouldn't manage. But I did. And in time the panic feelings I had got lesser and then subsided. I guess I got used to it. It will take some time but you will too. The first few days will be the most difficult.
post #3 of 9
Quote:
Originally Posted by sbgrace View Post
When I first got the cast I thought I was going to jump out of my skin as I felt completely trapped. I was so anxious I couldn't sleep that night. It was a horrible feeling as I'm sure you know.


I really thought I wouldn't manage. But I did. And in time the panic feelings I had got lesser and then subsided. I guess I got used to it. It will take some time but you will too. The first few days will be the most difficult.
I don't have any major sensory issues (a few quirks, but nothing big) but I also had this feeling the first night I had a cast on as a teenager. I remember laying there on the bed and suddenly feeling TRAPPED and it panicked me!! I had never felt that sensation before!!! I had trouble sleeping that night, but like Rachelle said, it got better until the feelings were completely gone. The first night was definitely the worst, and I'd say I had a few restless nights after that, but no more of the trapped feeling at least.

Getting the cast off was a whole new sensory experience too! My leg was...missing! It was so light, so small, so hairy I thought I'd shave it immediately, but my skin was sensitive, the air felt weird, my jeans felt weird.

Hmm...maybe I have more sensory issues than I thought

Sorry you hurt yourself!! What did you do??
post #4 of 9
Thread Starter 
Thanks for the confidence in me to overcome this The temporary cast/splint thing has gotten better, a little, I think because the swelling has gone down and isn't nearly as tight. Icing it seems to help, since it essentially goes numb. I am still barely sleeping at night though. But I will trust that it does get better, because, well I don't think I can stand the thought that it won't!!!

As for what I did, you have to promise not to laugh first Background--I have very loose joints and I am, in general very flexible. So my ankles roll quite easily. So I was, ahem, just walking out of my boss' office, when I tripped over something, rolled my ankle sideways so that I was standing on top of my foot and we heard a loud pop as I sumultaneously, and with as much grace as I could muster, landed sitting cross legged in front of my boss and a young airman. After a few moments of stunned silence, I realized that there was an immediate lump and knew it was broken. I must have been in shock, because I refused an ambulance (I also got sick at the mere thought of a gurney going down 3 flights of stairs), and the young airman was then ordered to carry my teaching bag and escort/half carry me down the 3 flights of stairs (no elevator) and to my car. I then drove (broken right foot, I used my toe for accelleration, and braked with my left foot) to the visitor's center, where a friend picked me up and took me to my dr, and then the ER. Unfortunately, I am not a regular contractor, so it is not a workman's comp issue, still need to check into the legal claim stuff that I have to do instead.
post #5 of 9
When DS was 6 months old I fell and broke my 2nd, 3rd, 4th, & 5th metatarsals and the medial cunieform. The initial splint was horrid because it felt tight, the walking cast was horrid because it was so heavy. When I finally got the cast, the immobility made the pain stop, so it was much better. I had to et a new cast every 2 weeks as the swelling changed, but everything healed perfectly and I did not need surgery.

If you are going to be casted for a while, I would recommend asking for PT early. They can give you exercises to keep your upper leg and hip muscles from atrophying. This will greatly speed up the recovery once the casts are off.

Good luck!!!!
post #6 of 9
Thread Starter 
Thanks for the suggestion of PT early, I will ask the dr about it tomorrow. Maybe they can at least show me some things to do. Unfortunately, unless I am in a walking cast, I am not going to be able to do a thing about going in for regular PT. I can't drive :cry Right now, I am depending on friends for rides to my dr appointments, and a meal rotation from church ladies because I can't figure out how to stand and cook--unpropped is just too uncomfortable. Dh has essentially no paid time off, and is in school full time (and an additional teacher program) plus is working full time. There is just no way he can run me around and us pay the bills or get school work done.

I am going to have dh bring a rolling office chair down from upstairs tomorrow and see if that improves my ability to do some household stuff and chase the 2yo. He has figured out that I am essentially immobile and is acting...very 2
post #7 of 9
Thread Starter 
So I got a air cast boot thing, still no driving. But, it is removable, so when it gets to be too much, I can take it off!!! So far, it is not too bad, although I have had to mess with the amount of pressure a few times and adjust the velcro strap things. And I can take it off to shower!!

The plan is no weight bearing for 3 weeks, come back in 2 and check progress. If pain becomes too much or if it is showing obvious signs of not healing, then we will talk surgery. I think this is a good plan (well, except for the no driving). I am also going to try to talk to my regular dr on Thursday about sleeping pills because the night sensations are worse and keeping me up.
post #8 of 9
Hang in there!! I hope you don't need surgery...I've had many breaks and managed to avoid surgery so far.
post #9 of 9
Thread Starter 
Thanks! Got a bit of not so good news from my regular dr today. I have been battling low Vit D for a year (so may have been headed that way for 7-10y prior ), and my latest test from this week still shows low. Am going to ask for calcium level check, as these can affect the healing rate. At any rate, back on prescription vitamin D.

But I survived last night, no pain meds and a I actually slept a couple of hours in a row. Still asking for sleeping meds though, since now I have to gon in anyway to discuss blood work.
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