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new and lost in translation

post #1 of 3
Thread Starter 
Hi. I'm new and was encouraged to check out MDC by a good friend that I finally spilled my "secrets" to. I'm just starting out trying to figure out what might be going on with my son (6) and am just totally lost and confused. I've noticed "different" behaviors since he was about 2. There were always excuses (mainly from my mother) when I tried to bring them up. Hyperactive? Well he's a boy. Unable to initate play or play in a group setting without starting altercations, often physical? Well he was the only baby in the family for 5 years. Scary aggressive behavior with his little sister (15 mos)? Well, he's jealous. Innatention and causing problems in class? Well, he's probably bored....he's so smart. Impulse control problems? Maybe he's just a little ADHD. After 3 years of hearing (and believing) a lot of the excuses, he hasn't adapted. In fact, it seems to be getting worse.

I finally took him to a psychiatrist, who sent me to a psychologist, who had us and his teacher fill out evaluations and has had us come in every couple of weeks for the last couple of months. His final verdict? He should be on meds...."well what exactly for?" I ask. He gave me no reason. Nothing close to a Dx...just try meds to control the behaviors. Go back to the psychologist. Seriously?? That's not gonna work for me.

So I started searching, reading, "googling" and I came across Aspergers. I really started picking him apart and realized you can hold his chin in your hand and his eyes will be ANYwhere but my face, he reactions are completely innappropriate to the situation (think smiling or making theatrical shocked faces when you're trying to repremand him for something), he can't tie his shoes or throw a ball and isn't anywhere close to losing the training wheels, then theres the social interaction issues, and he is OB-sessed with anything electronic.

I called his ped. and told him I wanted a referral to a pediatric neurologist. He put one in today, but....am I WAY off base here? Am I reading too much into things trying to figure out why I have no control in my house? Am I just doing things wrong at home? Or could I be on the right track? I'm second guessing everything and have no idea where to even start. Anyone have any suggestions? Words of wisdom? Road maps? I'll take anything at this point.

If you actually got all the way to the end, thank you so much for listening to my rant!
post #2 of 3
Hi and welcome to MDC!
This is a really good board for special needs with great parents and I'm glad you found your way here.

Quote:
I called his ped. and told him I wanted a referral to a pediatric neurologist. He put one in today, but....am I WAY off base here?
I'd want an evaluation for sure. You want someone who does autism evaluations all the time including high functioning or Aspie kids. The neuro may not be that. Ask the pediatrician who would evaluate for that, call autism societies and parent groups in your area and ask for recommendations, google about your area and autism, call Children's hospitals within driivng distance, etc. You want to find the best person to evaluate for autism. I favor autism parent support groups for ideas and recommendations. http://www.autismlink.com/locations/ This might give you places to start calling. Ask questions about experience and the like and if it all possible weight parent recommendations highest on who to see. Who you see and their expertise in autism really matters in getting an accurate assessment.

Quote:
Am I reading too much into things trying to figure out why I have no control in my house? Am I just doing things wrong at home? Or could I be on the right track? I'm second guessing everything and have no idea where to even start. Anyone have any suggestions? Words of wisdom? Road maps? I'll take anything at this point.
I think you're likely on the right track. He's likely controlling everything in even subtle ways to make his environment manageable and you're adjusting to him.
These are my best could it be autism links:
http://www.childbrain.com/pddassess.html (this one is an online assessment to see if further evaluation might be warranted)
http://www.bbbautism.com/diagnostics_psychobabble.htm (real life language of the current (not upcoming) diagnostic criteria for pdd-nos. Aspie kids are going to fit in there I believe.
http://www.autismspeaks.org/video/glossary.php Video glossary of what autism looks like in spectrum kids compared to typically developing. This may or may not be helpful to you given his age and functioning level.
post #3 of 3
I'm no expert, but I do have a cousin with asperger's. We always knew something was off with him, but he didn't get diagnosed until he was 20. I think because his parents didn't want to admit it. He was never aggressive that I know of, but always extremely socially timid. And he is extremely smart (prodigy) when it comes to computers, electronics, mathmatics, and science. We always thought of him as a genius, but a genius with 0 social skills. He was also in diapers until about 5 years of age.

I just mention this because it did remind me of some of the things you described in your child. So I think it would be a good direction to find out more and get him evaluated so you and the school can better understand and work with his behaviour.
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