I'm currently having a ON flareup that started on February 10th. I would classify this one as the worst I have had to date. The first one I can identify happened in July of 2009, and I have had them every few months since then. This one has been nearly a month now and I am still unable to drive a car. I'm feeling really bummed out at this point.
I've been to a neurologist, but my ON was dormant at that time. I had a subsequent brain and orbital MRI that showed no inflammation of the optic nerve at that time (which he expected, because I wasn't experiencing symptoms). MS is the only thing on the table right now as the cause, but I don't have any straightforward lesions.
As for other labs, I've had a full thyroid panel (fine), and the only thing so far that was abnormal in my bloodwork was vitamin D (17) and iron stores.
I had an adrenal saliva test which showed high cortisol, close-to-borderline gliadin, and depressed SIgA.
All the neuro can offer me is 3 days in hospital on solumedrol.
Okay, I'm nursing so this really isn't an option. Meanwhile, no end in sight here, and I feel crummy and just want to feel healthy. Or even something resembling healthy.
Other than the iron and vit D which I'm adding to my supps, any suggestions for the ON?
I've been to a neurologist, but my ON was dormant at that time. I had a subsequent brain and orbital MRI that showed no inflammation of the optic nerve at that time (which he expected, because I wasn't experiencing symptoms). MS is the only thing on the table right now as the cause, but I don't have any straightforward lesions.
As for other labs, I've had a full thyroid panel (fine), and the only thing so far that was abnormal in my bloodwork was vitamin D (17) and iron stores.
I had an adrenal saliva test which showed high cortisol, close-to-borderline gliadin, and depressed SIgA.
All the neuro can offer me is 3 days in hospital on solumedrol.
Okay, I'm nursing so this really isn't an option. Meanwhile, no end in sight here, and I feel crummy and just want to feel healthy. Or even something resembling healthy.Other than the iron and vit D which I'm adding to my supps, any suggestions for the ON?
) but not in the optic nerve and outright I didn't lose vision though it did go blurry at times so different. I know many adults with my condition do have issues with blurry vision that comes and goes and I had neuritis. I was told they didn't know as they can't dx. w/out lesions and they just didn't know. It turned out I have mitochondrial disorder. This may not apply to you but it's possibly worth checking out in your case. I do not know of optic neuritis (has that been positively dx'd; I believe a test called evoked Potential will show if it's part of MS or something else--did you have that) with this but it does damage nerves. My coq10 was very low (in my son's case who has it as well his carnitine was very low). I have improved greatly with treatment though I do have residual nerve damage. I find my other symptoms are much better.
