Rash Photos :( - Page 5

[nicole_marie]

Originally Posted by ttcintexas

Just wanted to send you some hugs and commend you for working so hard to help your son get well. I cannot imagine spending an entire year (and his first year, at that!) worried about this.

Thank you. *tears* I'm certainly experiencing some grief over the loss of a typical first year, especially since we adopted him at 3 months old and attachment was very seriously compromised...the foundation of our relationship as mom/baby needs a lot of work. Things could be much worse, so I am trying to focus on the positive...while doing some much needed grieving in my down time. You should see this kiddo...he has a permanent smile on his face...he is SO CUTE and happy. He's always been happy CONSIDERING his situation...now he's just in a state of pure bliss. I don't think I have heard him wimper or fuss in the last 2 days. xo

[nicole_marie]

Originally Posted by WuWei

Culture AND Sensitivity means that they grow the culture and observe WHICH antibiotic/s the microbials are susceptible to. This is the only reliable way to prescribe an appropriate antibiotic.
Pat

I just receive a callback regarding the sensitivity test...and it was done. The results showed that it was sensitive to a lot of antibiotics, which is why he is on cephalexin. GI encouraged us to use probiotics and recommended flora-stor. She also said that his upper GI was good with the exception of the presence of mild esophagus irritation (reflux). Not a huge surprise since we suspect he had SEVERE reflux...and he is likely still on the mend.

[WuWei]

Originally Posted by nicole_marie

I just receive a callback regarding the sensitivity test...and it was done. The results showed that it was sensitive to a lot of antibiotics, which is why he is on cephalexin. GI encouraged us to use probiotics and recommended flora-stor. She also said that his upper GI was good with the exception of the presence of mild esophagus irritation (reflux). Not a huge surprise since we suspect he had SEVERE reflux...and he is likely still on the mend.

Terrific. I feel much better.

Do not let them prescribe antacids! Adequate stomach acid is the first step in eliminating pathogenic bacteria in the gut, and digesting food proteins and increasing the bio-availability of nutrients.

Inadequately digested grains are a common cause of reflux.


Pat

[nicole_marie]

Originally Posted by WuWei

Terrific. I feel much better.

Do not let them prescribe antacids! Adequate stomach acid is the first step in eliminating pathogenic bacteria in the gut, and digesting food proteins and increasing the bio-availability of nutrients.

Inadequately digested grains are a common cause of reflux.


Pat

I feel better too. Given the typical problems with western medicine, I was very happy with our care @ Mayo. They understood my concerns and are receptive to alternative therapy. Allergy even acknowledged delayed allergic reactions and food sensitivities....however, he does not agree with IgG testing and noted that monitoring symptoms over a period of time was a more accurate test.

About the reflux, he's never had grains...should we just keep doing the probiotic, cultured veggies, water kefir thing? She said she would only give him something if he was showing signs of pain/distress and he is not. We may have already healed it too...it could just be that it was so severe, that pathology found the damage that is already on the mend. She did not see any signs when she was doing the scope.

[lookatreestar]

oh my gosh mama!! i cant believe i didnt see this thread sooner, but it looks just like what my ds had on his cheek. it was so so scary. and his progressed very quickly. we treated with TCM/herbs (it was my last resort, as i was going to fill the abx that night if i didnt see a change right away)

anyway from what i read i just saw many people that took the abx but then the staph would show up again. i just wanted to send tons of hugs and get well wishes. i know it was the worst 3 weeks of my life, i was so scared i could hardly eat or sleep. i took pictures of his spots pretty much every day and i cant believe how similar it looks (b/c when i was searching online none of the pics ever looked like his spots). you sound like an awesome mama

[nicole_marie]

Originally Posted by lookatreestar

oh my gosh mama!! i cant believe i didnt see this thread sooner, but it looks just like what my ds had on his cheek. it was so so scary. and his progressed very quickly. we treated with TCM/herbs (it was my last resort, as i was going to fill the abx that night if i didnt see a change right away)

anyway from what i read i just saw many people that took the abx but then the staph would show up again. i just wanted to send tons of hugs and get well wishes. i know it was the worst 3 weeks of my life, i was so scared i could hardly eat or sleep. i took pictures of his spots pretty much every day and i cant believe how similar it looks (b/c when i was searching online none of the pics ever looked like his spots). you sound like an awesome mama

Thank you for chiming in. We are healing naturally in conjunction with the antibiotics. We were in a dangerous place. We understand (now) how serious it must have been now that we are able to witness a child that we have never seen before. It has been a pretty emotional experience, knowing that my child has been unnecessarily robbed of a typical first year. I'm not sure how deep his staph infection is/was. We have a follow-up appointment on Friday that we are very much looking forward to.

Did you have access to a TCM practitioner locally? I'm curious how you found someone to help your child, especially on such short notice. For example, I had mastitis once and made a call to my naturopath at the time...and she didn't call me back until the next day. If you have ever had mastitis, you know how quickly you feel like, well, dead. I ended up going to the ER for antibiotics...it was my only option in that emergency situation. I have also learned that 'message group' homeopathy is not always the best idea, especially for more serious, complicated cases.

[lookatreestar]

Originally Posted by nicole_marie

Thank you for chiming in. We are healing naturally in conjunction with the antibiotics. We were in a dangerous place. We understand (now) how serious it must have been now that we are able to witness a child that we have never seen before. It has been a pretty emotional experience, knowing that my child has been unnecessarily robbed of a typical first year. I'm not sure how deep his staph infection is/was. We have a follow-up appointment on Friday that we are very much looking forward to.

Did you have access to a TCM practitioner locally? I'm curious how you found someone to help your child, especially on such short notice. For example, I had mastitis once and made a call to my naturopath at the time...and she didn't call me back until the next day. If you have ever had mastitis, you know how quickly you feel like, well, dead. I ended up going to the ER for antibiotics...it was my only option in that emergency situation. I have also learned that 'message group' homeopathy is not always the best idea, especially for more serious, complicated cases.

i found her on here actually! mdc we tried urgent car, regular doc, naturopath doc and the herbalist/tcm. she was awesome, i just found the rec on here, found her site called her up right then. she helped me right then on the phone and was able to get us in the next day. the scary part was how fast it started spreading. normally babies heal so fast and nothing i was trying was even touching it. even the first stuff she gave us didn't do anything and she has us back in her office the next day. def a learning experience but i couldnt believe none of the other docs wanted to swab it or anything. it even started to travel to the back of his head/behind his ears and down on his chest. do you have any recent pics? you can still see where my ds's spots were

[lookatreestar]

oh i forgot to add, when we realized that the first stuff she gave us wasn't working she said we were more than welcome to do the atbx in conjunction with tcm. never made me feel bad at all for whatever route we chose. i figured if i didnt see improvement in the first day with the stronger tcm then i would do both. luckily overnight the spots improved so we stuck with it and we avoided the atbx but had things gotten any worse even in the slightest i would have given them.

[nicole_marie]

Bumping this thread for an update.  After a single round of antibiotics, my sons eczema and staph has stayed away for 7 months!  No white bowels (liver not producing bile).  Not a single incidence of "asthma".  No more night sweats and frequent low grade fevers.  No more hair loss or cradle cap.  No more weight loss, in fact nice and steady weight gain...back onto his normal growth curve.  No more facial edema.  No more "fog" in his eyes.  No more "colic".  No "food allergies" except for egg whites.  No "reflux".

He has a small amount of dry skin that flares up in very dry weather, but nothing, *NOTHING* like eczema that is severely infected with staph.

I gave my son probiotics and fed him a diet of anti-inflammatory foods to combat side effects from the antibiotics.  Three days into the antibiotics and we saw the fog lift from his eyes.  It was like we met him for the first time again.  The loss of bonding/attachment during his yearlong episode of pain was not worth the avoidance of antibiotics.  We are still working on repairing attachment, which is a long, exhausting process.  I would do anything to have that year back.

I remember being told on mothering that my "battle was far from over" and that antibiotics were unlikely to be a solution, so I kept quiet for a while.  I am happy to report that I have a very healthy, happy go lucky child that hasn't needed to visit the doctor since our 2 week follow up at Mayo Clinic.  

[Panserbjorne]

how wonderful!  thank you so much for the update and I'm thrilled for you both.  It's wonderful that you have your little guy back.  I'm so happy that you found something that worked.