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(LONG) ER Visit... stil so VERY angry... not sure exactly with who!

post #1 of 6
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Last night after a perfectly fine normal day, my DS became mildly upset, which changed rather quickly to utterly inconsolable! DH thought he might be having trouble with constipation so he ran him a nice warm bath. When DS wouldn't sit in it he called me back to help. When I walked into the bathroom I noticed his entire penis was extremely swollen, w/ the foreskin area looking red and angry. His groin area was also swollen. We also realized it had been several hours since I had to change a wet diaper, the diaper DH changed was just BARELY wet. W/ the amount of liquid DS had yesterday we should have had nothing but soaked diapers. I placed a call to the ped, but since we couldn't get him to settle in anyway we decided to head to Children's. Since we were at the inlaws they decided they were coming too.

Childrens got us right back to a room w/in 5 minutes of getting to the ER. We saw a doc w/in the first 20 minutes. DS was miserable the whole time, and getting his legs in a specific position was the only way to calm him (which meant he was standing on the twins lol so my belly was less than impressed w/ my manouvers) When the doc came in she checked him out and had no clue, so got the attending. She came in and did SLIGHTLY retract him. I'm not as upset about that, because a TON of foul smelling puss was released when she did that and DS's mood immediately went back to normal. Including filling a diaper w/ pee about 3 minutes later. This was NOT smegma... that I've seen before. This was nasty creamy textured puss, that smelled as bad as his nose did when he had a sinus infection a few weeks ago.

They paged urology for a consult and I was immediately on guard for being told he needed circ'd. Got into an arguement w/ the IL's because they said if the doc says it's necessary then you have to do it. BULL! I not so politely asked them if was should have cut his ear off when he had an ear infection, or his nose maybe for his sinus infection? Informed them that we would take consult after consult if necessary to get a doc that would treat the problem instead of going to surgery!

I was SERIOUSLY ticked at this point. Shortly after they came in and told me they were going to cath him for a urine sample to rule out a UTI. i said that was fine but they needed to make sure they sent in a nurse who knows how to cath an intact penis w/o retracting or at least fully retracting since I know it's possible. THey told me that wouldn't be a problem.

Next a nurse came in, her tech and I held DS down, DH was watching at the bottom of the bed. He KNOWS retracting is BAD! I was concentrating on DS trying to keep him as calm as possible (yeah right!) So I wasn't paying attention the way I should have! At one point he screamed and I looked up and that UAV had fully retracted him! I just froze and started crying! I was afraid if I said anything it would take even longer, or they'd have to start all over again... or that I'd get tossed from the hospital because I was beyond angry at that point. I can't get over the fact that I LET THEM DO THAT TO HIM!

Right after this the urologist came in... I swear to you if he would have said word one about circing or retracting or tried to retract him I would have gotten violent. I think I was shaking as much as DS was at this point. He actually shocked me because he told me we were doing the right thing in not retracting him EVER. Also to NEVER retract him and that they should have been able to cath him w/o forcing his foreskin back! He seemed just as upset as I was. He told me that most likely DS had a sebaceous cyst either in the foreskin or on the head of the penis that got infected. Said that even circ'd boys can get them... dunno about that but it at least shut my inlaws up. Prescribed an antibiotic and bactrin cream with instructions to apply 3 times a day. He did say that it needed to get into the foreskin opening, but I'm not even prepared to "gently" retract DS (that's an oxymoron if I've EVER heard one!) So I'm hoping it's ok to just put the cream over the opening because that's all I'm willing to do...

I'm still so angry about the entire night! At myself most of all for not paying attention. At DH for not saying anything, at that UAV nurse for what she did to my baby!!!! At my inlaws for making me defend myself to them, and honestly for being there in the first place because all FIL did was pace and then once DS was feeling better he traipsed him, barefoot up and down the halls to occupy him.... umm hello germs, sick people... let's try not getting the baby sick AGAIN! (Why did he do that you ask... well that's what DS wanted of course! FOR THE LOVE OF GOD! who is the adult here! we were perfectly capable of keeping him entertained in the room, and when I tell you to bring him back BRING HIM BACK!!!!!!)
post #2 of 6
You should file a complaint with the hospital.

I'm so sorry your family is going through this. I hope everything works out ok and there's no more trauma to your little boy.
post #3 of 6
Sorry you all had to go through this. Try to separate out who to direct the resulting stress and anger at. It would be easy to direct all the negativity of your experience either at the hospital or at your in-laws, but either might not be appropriate and likely would win you no friends.

Sounds like the urologist was really great actually, and the main problem hospital-wise was that the nurse retracted, when you specifically had asked to have someone who would not retract, and they had agreed to provide this. You can contact John Geisheker, the executive director of Doctors Opposing Circumcision, and he will send a packet of information to all relevant people at the hospital regarding the harm and lack of necessity, and legal implications of forced retraction. DOC doies this (unfortunately) all the time.

As far as your in-laws, I'm sure they were just trying to help lend support for a difficult situation, but lacked the knowledge to understand that circumcision was not anywhere near indicated. Walking your son around the halls afterwards was probably meant to sooth him and give you a break after the storm was over, and likely posed no greater threat to your son than being in the ER in the first place. So I think it would be good to sort out what information or communications would be most appropriate for your in laws, since it is important for you to maintain positive, trusting relations with them. Certainly acknowledging them for wanting to help out would be good, but perhaps also educating them a bit more about the care and value of the intact penis, and explaining how their misinformed comments were not supportive, though well-intended. This may actaully be a positive opportunity to educate them and gain their support for your son's intactness.

I will attach more info about writing to DOC below.

Hope your son is feeling better, and that you have smooth sailing from here.
Gillian


Email DOC at docdirector.geisheker@gmail.com

Before you contact John, you will need the following information:

The name of the doctor or nurse who did this, the name of his/her practice and their (snail) mailing address.

The name of the hospital where the doctor has privileges, (the hospital where they practice) and the mailing address. (even if it didn’t happen at the hospital)

The name of the CEO or Administrator of the hospital. (even if it didn't happen in the hospital, find out where the offending doctor has privileges and send it to those hospitals)

The name of the hospital's risk manager.

The name of the head of the department (OB, peds, emergency, etc.)

Letters will also be sent to:

The state medical board in your state.

The Joint Commission on Accreditation of Healthcare Organizations
post #4 of 6
Quote:
He told me that most likely DS had a sebaceous cyst either in the foreskin or on the head of the penis that got infected. Said that even circ'd boys can get them... dunno about that
Yes circumcised men can get them. Absolutely. And they can be fine for a long time and then get infected for apparently no reason-- just the same as any other cyst like that. I believe these cysts are quite common, but not sure how common they are on the penis.

I'm glad you found one good doctor.

Jessica
post #5 of 6
I'm so sorry, I'd be fuming at all them for all the reasons you posted too. I've found putting pen to paper ( works better for this than typing IME) and just letting it all flow out, every nasty thing you want to say uncensored really helps.
post #6 of 6
Sebaceous cysts are not limited to the penis. Just google it. They can be on the eyes ears, anywhere. DH had one on his hand it was under the skin so it had to be surgically removed. I'd guess that the ones on the genital area are more likely to burst because the skin is much thiner.
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