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3 hour long IEP meeting!

post #1 of 11
Thread Starter 
First of all, the OT assessment was done, so we went over that, discussed the goals, decided on how many minutes a month, etc. (I was kind of surprised at how low he scored, I have noticed that he does fine motor skills "wrong" or "weird", like the way he holds his fingers, but he CAN do everything so I didn't think he'd score that low) I guess this is just another part of the Apraxia.

His interpreter and I talked at length about his signs and what I want to see out of him, etc. His permanent interpreter is the sister of the sub interpreter, which I think is confusing Connor, because they look very similar! But they also have a great style, and Connor is responding to them wonderfully. Ms Amy is his new interpreter, Ms Julie will be his sub if Ms Amy is ever out (which is good, since Connor knows Julie well).

I had letters from his SLP and ENT at Cinci Children's. The SLP (from the school) and I discussed the therapy techniques she uses (now that he's officially been diagnosed with apraxia). I don't know how I feel about the responses she was giving me, I was asking if she was familiar with Kauffman protocol, and she was saying that she doesn't necessarily follow any prescribed protocol, but instead will just get to know Connor and see what works for him. I'm kind of hesitant about that, I mean it sounds great in theory, but I need to research Apraxia more to see if we really need to just focus on Kauffman, or if we could incorporate other therapy means without doing any "harm" or slowing him down more.

THEN we continued the placement discussion. I *insisted* that the label of "hearing impaired" be added to his IEP, which the Spec Ed Director tried to say 'wasn't necessary' but I calmly and politely pointed out that my rights as parent are different under IDEA if he is labeled "hearing impaired" vs "speech/language impaired" and "under the advice of my legal counsel [Ohio Legal Rights Services], I am insisting that hearing impaired be listed so that I can exercise my right to choose my child's mode of communication, and guarantee his right to have direct peer to peer communication in that chosen mode of communication."

Heehee!

Honestly though, the teacher, aide, and interpreter have done an excellent job of incorporating ASL into the classroom. They put up the ASL alphabet next to the regular alphabet. They put up ASL numbers next to the calendar. They put together a book with pictures of all the kids and a picture of their sign name along with their written name. I even found out that Connor and his interpreter got "in trouble" at snack time yesterday because they were having a side conversation (in ASL) while eating, and talking during snack time isn't allowed I thought that was cute!

So the reality is that this placement is working better than I anticipated, and for the rest of the school year I'm willing to let it continue, but I wasn't about to let the IEP team know that. I am ensuring that they know that I will not be walked over, brushed aside, or coddled. I will push for the discussion about his placement to continue, even if in the end I decide to keep him here anyway. It's the principle of it, if nothing else. (of course I was extremely polite during the whole exchange, I know better than to burn any bridges or make enemies).
post #2 of 11
Those marathon IEP meetings are so draining! I'm so glad to hear that the placement is better than you expected! And good for you getting hearing impaired included in the IEP!!!

As far as the apraxia therapy, Kauffman can be great, but there are other approaches out there that are still apraxia-specific, like PROMPT and Moving Across Syllables. I know PROMPT has a fair amount of research into it as well. I think it depends on the child which approach works the best, but it is important it's consistent. You don't want school/private/you to be using different cues and confusing things!
post #3 of 11
Good for you!! I am always so exhausted after those meeting too. I come home and pass out!
post #4 of 11
Wow!!! Good for you (And for Connor!). I'm glad things are going as well as they are and that you are paving the way for more flexiblity for placement later.
post #5 of 11
Great job! But I'm sad that he's already THREE! EEK!!!!!! Our babies are growing up!
post #6 of 11
Oh, don't forget to try to push for a summer program for him. Since he is so far behind he may just qualify for summer special educational services.
post #7 of 11
Thread Starter 
Quote:
Originally Posted by Aridel View Post
Those marathon IEP meetings are so draining! I'm so glad to hear that the placement is better than you expected! And good for you getting hearing impaired included in the IEP!!!

As far as the apraxia therapy, Kauffman can be great, but there are other approaches out there that are still apraxia-specific, like PROMPT and Moving Across Syllables. I know PROMPT has a fair amount of research into it as well. I think it depends on the child which approach works the best, but it is important it's consistent. You don't want school/private/you to be using different cues and confusing things!
THANK YOU!! I need to research the various treatment protocols and see what the research says about it all. And you're right, consistency is going to be important.
Quote:
Originally Posted by ShadowLark View Post
Great job! But I'm sad that he's already THREE! EEK!!!!!! Our babies are growing up!
I know!!! It's okay for now, because I have Gavin. But what in the heck will I do when Gavin is three and starting preschool???? My husband and I are talking about adopting a little girl, but he wants to wait several years at least.
Quote:
Originally Posted by khaoskat View Post
Oh, don't forget to try to push for a summer program for him. Since he is so far behind he may just qualify for summer special educational services.
Oh yeah, thanks for reminding me. I will bring it up the next time we meet. Have you done summer programs? How did they work?
post #8 of 11
can I just say that i've worked with the summer program in addition to school year preschool? You can request "extended year". I'd do it VERY SOON, as I remember the teacher I worked with sending in her recommended students in April and school here ends mid-May. They have to plan what his goals would be in a summer program, and what would be done--curriculum, placement all that.

Good, bad, or otherwise, unless your child's teacher and interpreter have volunteered to work with the summer program--they should know by now if they are--your child would likely have people not familiar with him working with him. (BUT, in my district, for the "hearing-impaired" ASL room, the same interpreters and the main teacher working with ASL users in the district always had the summer program room. SO your child could be at an advantage there, using ASL, he will need people familiar with that--so he could end up with people he knows, who know him.)

In MY experience, not to knock the summer programs...but, here the entire program is 8 weeks, 3 mornings a week. It seems that by the time we got to know the kids, and they got to know us, the summer was about over, and mostly they stayed at about the same level. (usually they'd meet the goals, but also many goals are about maintaining, or a small improvement)
Which was a *great* thing for some of them, without it, they may have started the school year *behind* last year.

For others...you know your child and your situation. You ultimately decide if it's going to be worthwhile.
post #9 of 11
Not sure if you have connected with them yet, but you may get opinions on
Children's Apraxia Net's yahoogroup e-mail list about the various methods of language exposure and Apraxia kids and what type(s) of therapies work and what doesn't. If you need the link I can get it for you.

As for summer, no I have never pursued it with DS2. Even though he started very far behind, he is doing good, and we kept him in private speech and in socialized activities with non-apraxia kids all summer, so he was constantly surrounded by normal speaking kids and forced to use his words and slow down his speech to take his time. His private preschool teachers also do the summer Y camps at the school, and even though they are not required, they do work with him some on expressing himself and self correcting language issues. I let them know what he is working on ST, and they re-enforce it with him (like making sure he puts the "p" sound at the beginning of his "p" words, instead of a "t" sound.
post #10 of 11
Quote:
Originally Posted by peaceful_mama View Post
In MY experience, not to knock the summer programs...but, here the entire program is 8 weeks, 3 mornings a week. It seems that by the time we got to know the kids, and they got to know us, the summer was about over, and mostly they stayed at about the same level. (usually they'd meet the goals, but also many goals are about maintaining, or a small improvement)
Which was a *great* thing for some of them, without it, they may have started the school year *behind* last year.

For others...you know your child and your situation. You ultimately decide if it's going to be worthwhile.
This is the exact goal of summer programs, per special education law. OP, it's up to you if you think it's something to request - I do find it useful for my dd, but her issues are different. The summer goal is NOT to make progress, and it all you ask for is to have summer services to make progress you will likely be turned down. You need to show risk of regression, and then the services will aim at keeping your ds at the level he is at the end of the school year, not moving him along.

I know people who arrange to increase private services, or use their limited number of private sessions over the summer to help when school services are lost or cut down.

OP, are you planning another meeting before the end of the year to discuss placement for next year?
post #11 of 11
Thread Starter 
Quote:
Originally Posted by Aridel View Post
This is the exact goal of summer programs, per special education law. OP, it's up to you if you think it's something to request - I do find it useful for my dd, but her issues are different. The summer goal is NOT to make progress, and it all you ask for is to have summer services to make progress you will likely be turned down. You need to show risk of regression, and then the services will aim at keeping your ds at the level he is at the end of the school year, not moving him along.

I know people who arrange to increase private services, or use their limited number of private sessions over the summer to help when school services are lost or cut down.

OP, are you planning another meeting before the end of the year to discuss placement for next year?
Definitely. I requested at least once a month IEP meetings, and we meet whenever there's any new information. For example, tomorrow an outreach specialist from Ohio School for the Deaf is visiting him at school to do an ASL assessment, and the school audiologist is doing another assessment April 19th, so we'll be having another meeting to discuss those.
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