How fast for a gluten reaction? More likely sals?

[DevaMajka]

How fast could a gluten reaction occur in a bf baby? I trialled gluten (in the form of malt vinegar) today. I noticed ds's rash getting a little bit worse in the next 2 hours. Could a reaction happen in HIM that soon after I ate it? He had nursed in that time.

I noticed him scratching at his diaper area yesterday, and the night before he had a 1 hour midnight play session (which went away with a no-sals diet). So I'm thinking it's more likely to be related to sals than gluten.

I've been eating some foods on the low sals list (before that, I'd been eating only "no sal" foods), and about 1/4 carrot a day. I gave ds some green beans for the last couple days- he couldn't have eaten more than 10 green beans over the last 2 days. I tried cream of tartar in a recipe the other day (made from grapes- would this have sulfites in it?).

4 days ago I trialled oats and cow's milk (he's been fine with butter and cheese- AK said he was sensitive to cow's milk and not cheese). 2 days ago I ate some chocolate (and haven't stopped since ).

Does it sound like a sals thing? Especially combined with the calcium/cow's milk (I only used it because my additive free rice milk was out of stock).

If it's sals, hth do I eat healthily, and not lose my mind, without even including food from the low sals category? Maybe the problem is giving *him* foods in the low category, even if it's just a couple bites (he did react to 2tsp of carrots).

[mamafish9]

Malt vinegar has lots of glutamates, and amines (any fermented food does) so he may be sensitive to that in quantity. And may have other weird stuff in it too - what are the ingredients?

Are you doing mag supps yet? I wouldn't eat cheese without them, you'll just drive his mag even lower (and therefore his sals tolerance even lower).

Chocolat is very high in phenols, which fill the same bucket as sals.

Were the oats you trialed GF? If not, they probably had gluten in them too.

Behave for a couple of days ...

And then try gluten with something normal like flour .

I'm guessing you keep trying to sneak in things like vinegar and chocolate which are high in chemicals closely related to sals. Given how sensitive your little guy is right now, that's probably not going to work.

Are you supping mag/mo/b6 for you? him? That's the way out of this in a few weeks, it will build his tolerance.

[DevaMajka]

I've been meaning to ask you- when you notice sals reactions in your ds, what symptom do you notice first?
Could ds's night waking be a sign of sals building up slowly (even though he hadn't gotten a rash yet)? When he reacted to sweet potato and carrots, he reacted within 24 hours. But maybe it comes on much slower when it's low sals stuff.

I've been doing mag supps for a while, and B's. Haven't gotten the Mo yet- I just got enough $ in PP. I have been eating lots of beans though.
I give him epsom salt baths.

Originally Posted by mamafish9

Behave for a couple of days ...

Behave? What's that? s
One thing at least, I'm getting a crash course in patience, will power, and self control.
But seriously, I have gotten loads better. And the things I've been cheating with are veggies. sigh. (The chocolate was an intentional trial).

The oats are GF- Bob's red mills GF.

Glutamates in malt vinegar- I'll have to check that out. I don't think he reacts to amines, or if he does it takes really high amounts.

I'm confused about phenols- bananas are listed as high, but he definitely doesn't react to them, even eating them directly. Are *all* high phenol foods related to sals sensitivity?
Or could it be that bananas are high in amines (which aren't true phenols, right?), and that's why they are on the lists. So perhaps foods have to be high in true phenols to affect him.

He did seem to react to cocoa butter. And petrolatum. Crud. I'm also strongly suspecting benzoates added to something that HE injested (accidentally).
I guess I'm back to my only sweets being caramel made from sugar and water

[mamafish9]

Phenols are a broad class of things, and my DS reacts to some and not others. It's hard to predict, and seems different for everyone. How's that for helpful . Bananas are totally fine here to, fwiw.

These days we get red cheeks within an hour or two of overdoing sals, then the wild child running up and down the hall. If I'm smart and stop all sals, *generally* these days we can avoid the middle of the night play session. Unless I ate too many sals for dinner, in which case the first time I know it is when I have a playmate at 2am. Stuffy nose and constipation (his worse symptoms) take a lot longer to develop, and we only see them if I intentionally do something like feed him high phenol yeast killers for 5 days straight...

[DevaMajka]

That's actually quite helpful! So it could be chocolate and tomatoes, or just one and not the other. (though I haven't eaten tomato since your post about them).

I'll have to start paying attention to his cheeks in relation to food. I've assumed it was more related to dry skin, etc. But I wonder...so much stuff to keep track of, and I detest doing stuff like this. No way I'd do it for this long for any reason other than my kids.

Based on what you said, I'm guessing he's reacting to either eating green beans directly, or me eating chocolate.
Man, I hope he's not so sensitive that he reacts to me eating off the low sals list!

eta- how long do your ds's red cheeks last? An hour? A day?

[mamafish9]

Couple of hours, usually. Same with the wild child. But that's for a single infraction - when he was really sensitive, it was harder to isolate reactions, so it could have built up over a few days.