Oversupply causes/ hg/ celiac

[mauinokaoi]

I have been searching for a way to help my oversupply as 12 hour blocks and tons of sage and other mint family herbs were having little effect.

I came across a study that said people with celiac tend to have elevated prolactin levels. I know that I have a gluten intolerance at the least and have been gluten free for close to 2 years.

I also heard someone mention they had HG and oversupply. I was not diagnosed with HG but had severe never ending morning sickness. I also found one reference to vomiting having to do with the D2 dopamine receptor.

I am taking tyrosine and B6 and it seems to be helping. Also the 2 days I have done strenuous exercise have been the best so far.

So right now I'm chasing a dopamine link...

Anyways what I would like to know is:
Anyone have celiac/ gluten issues and oversupply?
If you have celiac do you also have very large breasts and/or nipples?
how about HG or severe morning sickness?
maybe you are certain your oversupply was not caused by "mismanagement".
maybe you have low dopamine...
hit me up

and please for my sanity's sake absolutely no "you're so lucky just pump" stuff , if you don't have oversupply you don't understand

Peace Love Aloha

[PatioGardener]

no advice, just wanted to send a your way.

[mariacm]

This is unlikely, but there is a pituitary brain tumor called a prolactinoma that secretes prolactin and can therefore affect milk production even in childless women. Don't want to scare you, but you may want to just ask the doc to look into that to be sure.

Good luck!

[TzippityDoulah]

I have had HG 3 times (very badly!), I am celiac but didn't know it until about a yr before my last baby, and I have SERIOUS over supply issues.

however this last time it was a lot better in the over supply area. I was terribly engorged but by 2 months it was tons better. that never happened before and I thin it was in part b/c of being off of gluten. I still had to do things to decrease my supply like wearing cabbage leaves 24-7 and drinking cups of sage tea etc but it got better after 2 months.

I am 100% certain there is a link between the 3. There isn't a doubt in my mind.

[TzippityDoulah]

p.s. yes large breast and very large nipples even when not BFing.

and I wouldn't dream of telling you are lucky! over supply is horrible! it's not just extra milk... it's mastitis, constant pain, leaking and such and baby's with upset digestive system that often end up losing weight or having chronic reflux b/c of it.

((hugs))

[jocelyndale]

I had oversupply and have celiac disease, but I don't know that women who are compliant with the diet would have extra issues with prolactin. I've been GF since 2004, DS was born in 2007. It's interesting. Maybe next time I should ask for some testing just out of curiosity.

[MiaMama]

DD1 - massive oversupply. 8hr blocks to try to help. I found out I am celiac when she was 1.5.

DD2 is 2 weeks old, DD1 is 3y 3mos, tandem nursing, GF diet, and I have plenty of milk but not painful, ridiculous oversupply.

I am not sure if it is the 3yo taking the extra milk, or if the diet is helping, but I am much more comfortable this time around. I still leak what seems like enough milk for ANOTHER whole baby out onto my shirt.

[organicmidwestmama]

had oversupply w/first baby, had recurring severe mastitis infection incuding fever of 103 etc. it suced to say the least but my baby didnt seem to have any problems w/it, he was always happy, well-fed, healthy.

baby #2 also have had oversupply and during preg had hyperemisis gravidum, it was torture. recently (4 months ago) stopped eating wheat and most grains, but have "relapsed" a few times. still have oversupply, hoping it goes away w/adhering to gf more strictly. i have never been tested for celiac.

[editornj]

Hi! Oversupply here, too. Very small breasts, medium to large nipples. Cabbage leaves and blocking feeding from day 2 with DD (she's almost three weeks and I'm up to 12 hours a side). Things are much calmer than with my first, maybe because I started right away.

With DS I was engorged for MONTHS. Had tons of milk until I was 5 weeks preg (DS was around 16 mos). Drastic drop that DS was very upset about. I thought the dramatic decrease was very odd.

Haven't been diagnosed with anything you mentioned, but now I'm curious...

ETA: Possibly low dopamine? Now I have something to ask my doctor.

[momto4plus4]

So glad to have found this thread. No advice or anything but I had posted in the Life With a Babe about my screaming baby. Someone mentioned oversupply so I've been looking into it. I've already been doing block feedings but no longer than 4 hours. He started projectile vomiting today (he's 8 weeks) and both times was after a nursing on the full side for the first time so he got lots of milk right away. We've also been dealing with loose, sometimes green stools.

I've never had any of the testing done but there are lots of food allergies/intolerances on both sides of our family including myself and my 3 older kids.

Thanks for all this info-I've written it down to talk to my dr about. BTW-larger breasts (but I'm overweight too) and larger nipples even when not pg or bf'ing, diagnosed IBS.

[mom2tig99Nroo03]

oversupply with #1, slight oversupply w #2 but not much, and i have a massive oversupply w this one, but since i am pumping now insteasd of bf it is reassuring to know the lil one will have plenty of milk should something happen to me. yes it is still a pita to pump q3 hrs during the day and wash all the bottles i wash etc (first morning pump yields approximately 34 oz of milk, then the rest of the day's pumps produce anywhere from 7- 22 ish). i fee my baby plus my 2 older kids drink it, plus i dump a little every day. i've had a couple of clogs/plugges ducts but have managed to not get full-blown mastitis this go round.

i did have hg with my pregnancies, (and then w my last pre-e/hellp) i have huge breasts (i wear a 42L) and wide (but short) nipples. no celiacs or anythign like that THAT I KNOW OF. i am assuming ti would ave probably shown up with all the buttloads of bloodwork i had done with preg #3 and the labor/delivery.

[grape-april]

Anyone have celiac/ gluten issues and oversupply?

Yes - I had undetected celiac disease since 11, then got digestive symptoms for the first time near the end of my pregnancy. I sought a diagnosis unsuccessfully until 11 months postpartum when I pinned it down with a skin biopsy for a rare celiac-related rash (dermatitis herpetiformis). When I finally got diagnosed, I made the connection between celiac and what my pediatrician had considered to be massive milk oversupply for a first-time mom. I had been able to pump 15 oz of milk in 15 minutes. At the time she thought I might have a pituitary adenoma. It took me block feeding 12 hours at a time to reduce to normal supply.

If you have celiac do you also have very large breasts and/or nipples?

No.

how about HG or severe morning sickness?

Yes. I weighed 126 lbs (5' 7.5") before pregnancy and lost 6 lbs in the first few months of pregnancy due to vomiting sometimes as much as 3 times a day. I was finally given Reglan to control the nausea, which worked. In retrospect I suspect (ie, hope!) that it was related to untreated celiac disease, and really hope that in my next pregnancy things will be different.

maybe you have low dopamine...

As regards dopamine, just an aside - I experience slight Dysphoric Milk Ejection Reflex (google D-MER - for some women it causes serious anxiety symptoms and early weaning). D-MER is believed to be related to a drop in dopamine prior to letdown. Research on it is still in the early stages, but I would wager a bet that women who suffer from it tend to have elevated prolactin levels & I'm eager to hear what they find out.

Hope things got better for you! Thanks for bringing up this subject - I had to google long and hard on the connection between celiac and oversupply before I found anything when I got my diagnosis. I think it will start to get on peoples' radar soon.

[grape-april]

By the way - celiac may have a connection to recurrent plugged ducts (which I have also had). One study that examined some women with recurrent plugged ducts found that a common factor between the women was sIgA deficiency...the same thing you get screened for when they're trying to figure out if you have celiac disease.

[MonkeysRUs]

I had a massive oversupply with my daughter, and it was related to hyperthyroidism (postpartum thyroiditis).

[jenrett]

Everybody is gluten intolerant - some are diagnosed as celiac, others aren't (yet). Humans aren't made to eat grains, esp. gluten.

If any of ya'll think you are gluten intolerant, i would recommend cutting out all grains AND dairy (most dairy is grain fed so you get irritants in the milk) AND legumes, too. You can get better nutrition from veggies and fruit and meats and eggs, you don't need any of the above listed foods.

My $0.02

[bjorker]

FWIW, I am gluten intolerant (not celiac) and had supply problems - undersupply - with my dd. I didn't figure out the gluten problem until she was older, though.
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[investmama]

I have SERIOUS oversupply as well. i have very small breast (34 AA when not pg/nursing) and very small nipples. i haven't ever been diagnosed with celiac or anything. Currently taking Sage out the wazoo and feeding in 12 hour blocks.

BUT, i recently found this case report: http://www.internationalbreastfeedin...content/2/1/11

and found it super helpful. i'm not having the speedy success the report published that others have had, but it's definitely helped tremendously. dd is just over 3 weeks old and comfort nursed for the first time today! she's also been content most of the day and sleeping better.

[lizardmom]

thanks for the link investmama. My poor newborn wants to nurse all the time but of course she can't I'm going to try this and hope for some comfort nursing soon!

I have had oversupply now with three kids and HG with all three as well. I have large breasts and large nipples but I don't have any digestive problems. Interesting discussion. I'll definitely be investigating further. Let us know what you discover.

[PatioGardener]

Originally Posted by investmama

BUT, i recently found this case report: http://www.internationalbreastfeedin...content/2/1/11

and found it super helpful. i'm not having the speedy success the report published that others have had, but it's definitely helped tremendously. dd is just over 3 weeks old and comfort nursed for the first time today! she's also been content most of the day and sleeping better.

I did the protocol in that case report too! had to do it 3 times, and still had plenty of milk, but together with sage have dropped the blocks from 10 h to 4 h! (i'm at 3 months now) and baby can often comfort nurse when needed on one of my breasts, even if the other is gushing.

nak

[indie]

I had major oversupply and also had extreme morning sickness. It didn't get to the point of HG, but I was sick pretty much the entire time throughout my pregnancies and threw up several times a day most days.

Back when I was dealing with oversupply, there was not nearly so much information in the Mothering forums. All I could find at the time was to breastfeed on one side at a time instead of switching and that helped a bit, but it was still normal for me to be soaking wet all the time and my oldest gained an excessive amount of weight. She also had other signs like the green poop and colic, but I couldn't find the information then that I'm finding now. It did help her when I went dairy free, but didn't solve all of the problems. (I also feel better now that I've cut down on dairy.)

I don't know if I have celiac but have been suspecting it lately and this thread is one more thing that's making me wonder.