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tubes or wait and see?

post #1 of 5
Thread Starter 
My 2 1/2 year old was an IUGR preemie and therefore has had regular hearing tests from 9 months on. He's failed every single one of them, and had fluid in his ears for each of them. After much research, I discovered that milk protein intolerance might be the cause, so we took him off all dairy and had the fluid monitored by our doctor. After about 3 weeks, he was cleared up and we've kept him dairy free since. This was early fall.

In Dec. he went for his hearing test again, and I was convinced he would pass for the first time. But within the first 2 minutes, it was obvious that he was failing the lower volumes and registers. She tested his ears afterwards and they were full of fluid again, and she was now getting very concerned about it. My doctor has been keeping an eye on it while we waited for our ear specialist appt. and the fluid occasionally clears up in the right ear, but is constant in the left.

So today, we finally saw the ear guy, and, as I suspected, his only plan of attack is tubes. He also made it clear that he was getting us an "urgent" surgery date (3 weeks from now). He was patient enough to listen to my hesitations and reasoning, (although I could tell he was rolling his eyes a bit in his mind ). So basically, I let them book the surgery, after making sure I'm free to cancel in the next week or two, after weighing the decision carefully. I told him that I might want to wait till cold season is over and give the fluid a chance to clear up.

So, here's the factors I need to consider, and I could really use some help from the natural-minded (and often more informed than myself) community, to help me make the best decision as quickly as I need to.

Reasons against tubes:
1. It's surgery, that may not be necessary
2. He's never had an ear infection
3. The fluid may only be cold related (at this point, now that dairy's out of the picture)
4. He seems to hear fine and speech is developing normally

Reasons for tubes:
1. It might be hindering his speech development. (The ear doc said he's overcompensating to keep up, and could be doing so much better if he didn't have to try so hard to hear.)
2. There may be a chance that it truly is a case of his tubes being too small/poorly situated, because of his conditions in utero. (Basically, the cord wasn't flowing properly and he was literally starving to death until we discovered it and took him out. This can affect physical development in many ways.)
3. If it IS a long-term problem, and it doesn't go away after cold season, it can take months to get back through the whole line of appointments to get us to the surgery. Which is months more of missed opportunities for speech development at at crucial age.

Alternatives I'm trying/considering/have heard about to clear the fluid:

1. Chiro - I've got an appointment for him
2. EarDoc - http://www.eardoc.info/buy-now/ Anyone know much about this?
2. My aunt said Nasonex spray cleared her daughters problematic tubes. I've heard the same about antihistamines working for others, but I'm hesitant to put him on meds. He's still so tiny (20 lbs). And would he need to stay on them to stay clear? Or could they be used just as needed?

Any help would be GREATLY appreciated!!!! Thanks
post #2 of 5
So your doc monitored after you remove dairy, and the fluid went away at that point?

Can you get in with your doc really quick and see if he/she agrees that your LO's ears have fluid now? If your doc agrees, then something's changed (just to double-check that they both are seeing the same thing), but I'd monitor a while longer to see if it's a cold.

And I agree, after you see your doc, do some chiro visits or cranial-sacral. Cranial-sacral visits stopped my daughter's EIs when she was little, and that was before I'd figured out her food intolerances. Other foods can cause ear problems, DS's only EI was due to one of the other foods he's intolerant of, but if you had a time when the ears were clear, and stayed clear for a while, then maybe it's just dairy (you didn't add in a bunch of soy later on, after getting the clear-ears word from your doc, did you? since dairy and soy are so cross-reactive).

In terms of timing--if you wait til after cold season, would you really need to do a bunch of appointments? It sounds like the doc wants to fast-track you to surgery, would there really be a bunch of hoops if you want to wait 3 months?
post #3 of 5
Thread Starter 
No soy here... I'm not a fan of it! And yeah, it could take a few months to get in again. It's kind of unpredictable, because the first time, we had a three month wait for the specialist. But I ended up cancelling, since I had figured out and solved the problem (or so I thought), while waiting. This time, it only took 4 weeks to get in, and then 3 for the surgery wait, which is fast-tracked, like you said. I'm hoping he'd be as willing to get us in as urgent, if we decide it's necessary down the road, but I think my refusal to just do what he said, no questions asked, annoyed him, and I'm afraid he might hold it against me if we cancel and come back later. Basically, he said that if I think I know what the problem is, we can wait, but only if I'm aware of the risk to his speech development. Like he was trying to make me feel neglectful if I don't just jump right on board
post #4 of 5
That's an annoying attitude, but if his language is on-track now, then the downside risk is pretty low. I mean--maybe he's supposed to be ahead of typical, that's possible and then he's delayed compared to where he should be, but given that you've got a plan, you've got a helpful GP/pedi/whoever to work with, it seems very reasonable to me. And since I saw such good results with CST, I tend to really think it's worth some visits before something significant like surgery is planned.
post #5 of 5
Not a very natural approach, but one that helped us avoid tubes here.

Under the supervision of my daughter's doctor we gave her decongestants to clear up the persistent fluid and thereafter used decongestants faithfully with colds.

As I said it's not very natural, but I still consider it better than surgery.

Our DD was 2 at the time of the persistent fluid in her ears. By using the decongestant to get the fluid dried up and then the end of cold and flu season we escaped the tubes as she must have grown by the next fall and cold and flue season as we haven't seen an ear infection since then.
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