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Feeling down...

post #1 of 6
Thread Starter 
Well it's been a while since I've updated~
After the laparoscopy and hysteroscopy surgery I had to wait a few weeks to have my post operation appointment.
At the post opp appointment I do indeed have stage four endometriosis. It was all over my body including my liver and gallbladder. I also had endometriosis in my left ovary and it was swollen to be bigger than my uterus. Instead of taking the ovary, which is what they used to do in the old days, the doctor took all the endo out of it and it is now beginning to shrink. So I do still have two ovaries. He had pictures of before and after the surgery where he lazered the endo out. There was quite a difference. Praise God that he found that. So now that the endo is out of my body, the thing that really gets me down now is that I will have endometriosis for the rest of my life. The doctor told me that these next three months will be the best my body will be in for the rest of my life. Reason is: the endo is gone and my female organs have a chance to rest and function without endometrosis on them and I am on a shot to prevent me from menstruating so that the endo doesn’t grow back. The shot I’m on (lupron) causes me to have menopause symptoms. I’ll be on the shot for 3 months, then in June dh and I will try and *hopefully* become pregnant. The good thing is, when we’re pregnant I’m not menstruating and the endometriosis doesn’t grow. It really sucks that I’m 29 and this is the best shape my female organs will be in for the rest of my life AND I have menopause symptoms (the night sweats, forgetfulness, mood swings, bone density loss, etc). I know God is with me during this process but every time I turn around I see people and friends getting pregnant. People who have had abortions and who didn’t want children-----are getting pregnant. It hurts. Just some days I’m able to cope better than others. This isn’t one of those days.

The most severe stage of endometriosis, stage four, explains why we couldn't keep the baby and why I have such pain every time I menstruate and why my left side was in such pain (my ovary being infused with endo). It also explains why we are not able to get pregnant. There was also scarring from when dh and I had the miscarriage, which wouldn’t allow the embryo, if we were to get pregnant again before I had the surgery, to live. The doctor said that with me having such a severe case of endo at this age, it has to be in my family tree somewhere. Well my mom doesn't have it, but my grandmother on my mom's side had it. My cousin, also on my mom's side also has it severely. She's unable to have children and she also has seen a specialist for endometriosis.

I'm hurting now and I need support. Thank you for reading.
post #2 of 6
I'm so sorry. I don't have personal experience with endometriosis but I am sending you all the love and support I can. What a blow. I'm so glad the doctor got it out and you are looking ahead, though. I am also on a wait to TTC until June due to a molar pregnancy, and the wait is hard, but it helps to also have that endpoint to work toward. I'm hoping with everything I've got that you get that rainbow baby in June, but in the meantime I hope you get the chance to focus on you, and processing this, which it sounds like you're doing. Does it help to talk to your cousin, since she understands what you're going through?
post #3 of 6

Re

(((Hugs)))..Keeping you in my prayers, hon.
post #4 of 6
I'm sorry you are going through all this. I hope you can find all the support you need.
post #5 of 6


I'm glad that your doc found it and got it all out. I hope you rest and heal these next few months and see a BFP soon. Praying you get your rainbow baby by this time next year!
post #6 of 6

endo can be mean and nasty and scary. It is certainly unfair. I'm so sorry you're dealing with it and I'm very sorry for the loss of your baby.

I also have severe endo (when I had my lap- endo all over my right side, in my gallbladder, throughout my small bowel- I even had appendicitis from my appendix full of endo). I had an HSG last week and found out my right tube is blocked from my endo.

I hear you on the good days/bad days thing, and think it is great you are reaching out for support. I know, when I was first diagnosed, I searched out for a community or someone out there who'd btdt and didn't really find much. You're welcome to pm me if you wanna chat.

I don't know whether to mention this or not, but, in my reading and in my searching for docs (I saw 4 before I decided on the one I liked to treat me), I got lots of different opinions on when is the best time to conceive. I don't think most docs are misinformed, or anything like that, I just think since endo is such a "new" diagnosis with little research, no one's really sure on the answer. My point was tho, was that I was told the best chance of conceiving was anywhere from 3-12 months after the lap. I just mention it, bc when I get down about not being successful about conceiving, I remember I've still got some time and I wanted to share some hope.

oh, also, I found a lot of great info and support in the endo association's book Endometriosis Source Book. They'll also send you a free packet of info.

Best to you on your journey. It sounds like you've made a good treatment plan and I hope that you get your rainbow baby soon after Lupron.
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