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DS is in the hospital

post #1 of 10
Thread Starter 
DS (6 years, ASD, SPD) had his tonsils and adenoids removed Friday. We avoided it as long as possible (they've been talking about doing it for years) but we couldn't put it off any longer (he has obstructive sleep apnea, as well as many episodes of strep each year). He came out of the surgery on Friday doing great! He was talking, drinking fine, no complaints of pain at all. He was even joking with the nurses, saying he was stronger than they are Friday he did okay, drank, ate popsicles and fudgcicles and, with dp and I sitting on him, holding him down, took his pain meds. Saturday it went slightly worse. He wasn't drinking barely anything and he figured out how to spit out the pain meds even while we held him down, pinched his nose shut, etc. This led to a vicious cycle of he wouldn't take his pain meds so his throat hurt more so he stopped drinking etc. So yesterday afternoon we ended up taking him to the ER. We didn't have any choice, as we couldn't get any liquids in him or his pain meds. He was miserable

They decided quickly that he needed to be admitted. So, here we are. He was on morphine yesterday afternoon and evening. He had a dose at 1am this morning and at 3am he woke up, shot straight up and grabbed for his cup of water! He downed that cup, and then another (which was funny timing because his nurse was just hooking up a bag of fluids because he hadn't drank anything). I told the nurse to give him the morphine at 5am and then when he woke up we would try and switch to tylenol suppositories (with the goal being his pain managed on tylenol suppositories and him drinking so we could go home). However, for whatever reason, she didn't give him the 5am dose! So when he woke at 8am it had been 7 hours since his last dose and he was in mega pain Then the idiots decided to try the tylenol suppository but then decided they didn't have any so they had to go somewhere else to get some. He finally got the tylenol suppository at 9. It did nothing to help the pain at all so I talked them into giving him more morphine at 10. He's in so much pain he won't even open his mouth. He won't drink anything. Popsicles he lets touch his lip and run down his chin. He won't even swallow his own spit. He just lets it build up in his mouth and then drool it out. The morphine has been upsetting his stomach too, causing him to vomit bile/acid, which is killing his throat. The doctor kept telling me we'll "wait and see" instead of giving him anything for the nausea! After he vomited at 2:00, screaming because it hurt so bad, I told the nurse she can either give him something for the nausea or I'd go to my bag of meds and give him the anti-nausea suppositories I had for him. She came back 5 minutes later with zofran. So he got zofran, more morphine and a small bag of fluids and passed out, wimpering because he was hurting

I guess the plan now is to keep him overnight, keep morphine every 4 hours (and zofran but I have to talk to them about when they will give it) and see how he does. If by morning his pain is more under control then he might be willing to drink. If he is, we'll switch him to the tylenol suppositories and see if his pain can be managed that way (and keep him drinking). If his pain can be managed with the tylenol suppositories and he'll drink then we might go home tomorrow night. If not.... who knows.
post #2 of 10
Poor baby! Can they do tylenol suppositories with codeine (I'm not crazy, the do make those, right?) or a liquid med? When I have a really sore throat, there is no way I can swallow pills, either! When a friends son had his tonsils out (will spare you the details--lots of complications), the dr that I otherwise don't like insisted on liquid meds, even for adult patients. Liquid codeine syrup also has the added benefit of numbing slightly on contact.
post #3 of 10
Thread Starter 
His original pain med was tylenol with codeine (liquid). But he won't take it (or any meds) oral. That's the problem we've struck is he needs something in his IV or something rectally. I don't believe they make tylenol with codeine suppositories, at least not that I was told. The morphine/zofran combo must have worked because he's been out cold for a couple hours now. Unfortunately we can't take that home with us We're hoping that when he wakes up he will drink a little. Crossing our fingers!
post #4 of 10
You can get zofran for home. We keep a large bottle on hand at our house. It's an oral liquid, so that might be an issue, but I think it comes in suppositories. If it doesn't, phenegran should I think. It's an every 6-8hr med. Depends on the reason it's being given and what dose and how effective it is, but it's usually every 8 hours I think.
post #5 of 10
I know phenergan does come in suppositories--we keep them on hand for tummy trouble.
post #6 of 10
I just wanted to check in and see how he is doing!
post #7 of 10
Thread Starter 
Quote:
Originally Posted by PikkuMyy View Post
I just wanted to check in and see how he is doing!
He's doing great! All day yesterday he wouldn't open his mouth, just drooled all his spit out, layed in bed moaning, etc. Then, for whatever reason, he turned the corner last night around 9. His nurse came in at 8:30 and gave him his morphine. While he was still hooked up to it he just sat up and decided he had to pee. So we helped him and then he grabbed the cup of water that was by his bed and started chugging! LOL! Within 30 minutes he had drank 1 1/2 cups of water (about 6oz), a fudgcicle, more water and then asked for a peanut butter sandwich and ate a half sandwich (with a very thin layer of peanut butter) and then another 3 ounces of water! He suddenly started talking up a storm (he hadn't talked in days) and hasn't stopped He woke up in a good mood this morning (oh how happy I was to be woken up to the sound of him saying "good morning mama!"!!!), drank some more water, peed and ate a couple bites of applesauce. That was enough for me to ask to take him home He got some more morphine and a tylenol suppository at a little before 10 this morning. We just got home about 1 1/2 hours ago and he's already drank some water and ate a donut (tiny bite at a time, followed by water) The morphine should be wearing off anytime now so we will continue the tylenol suppositories (325mg) every 4 hours around the clock and hope that helps enough with the pain that he continues to drink and progress
post #8 of 10
Awesome! I've been watching this thread for updates, so glad to hear hes home and feeling better
post #9 of 10
The one thing that I hated worst when Megan had her Cleft palate surgury was the F-up they made with pain control when she was readmitted with infection. The discontinues her pain meds for 12 hours - long enough to set in a cycl;e of pain that took weeks to break and get her eating proper. I swear they felt that she was so fevered that the pain wouldn't bother her - I reamed more then a few doctors over that one. And the first thing I tell them at the hospitals when they do IV pain killers for her is to hang gravol or Zorfran with it.
I hope that he contiunes to get better and does well at home.
post #10 of 10
Thread Starter 
Quote:
Originally Posted by momtoalexsarah View Post
The one thing that I hated worst when Megan had her Cleft palate surgury was the F-up they made with pain control when she was readmitted with infection. The discontinues her pain meds for 12 hours - long enough to set in a cycl;e of pain that took weeks to break and get her eating proper.
WTH is with this?? This is the biggest complaint I have about ds's care over the past couple days. He was ordered morphine every 4 hours. It ended up being more like every 5-6 hours (except once when it was 9 hours) because there would be a cycle of I ask the nurse for more morphine, nurse says she'll get it, an hour later I call her back again and she says she's on her way, and eventually she brings it. Because he wasn't crying/screaming in pain they thought he didn't need it. They didn't take into consideration that a) he has autism and sensory issues and doesn't respond to pain like a typical child (nor does he tell you when he's in pain until it's *really* bad) and b) he was in so much pain he wouldn't cry anyway (because that hurt his throat more).
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