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At a loss (sorry long post)

post #1 of 9
Thread Starter 
Hi there, I am new to this site, but after reading a few of the posts on this forum maybe someone will be able to help. Apologies if I have posted on the wrong forum, as my son has not been diagnosed, but after reading others posts (especially of children with AS) i have recognised my son in them. How and when were your children diagnosed? Also apologies for the length of post, but feel people need a little background to our situation.

I am a single mother of two lovely boys one aged 14 1/2 yrs and the other 12yrs, we live in the uk.

I was a single parent of my eldest son when I met the father of my youngest. We married when my youngest son was 5mnths old, we divorced when he was 14 mnths old. We divorced due to my ex-husband's violence towards me. A lot of the violence was witnessed by my youngest and heard by my eldest.

My youngest son was born by ceasarian section and we had a few bonding issues. I also think I suffered with Post Natal Depression, but this was not diagnosed, as I didn't realise I was depressed - thought it was just a different experience from my other son's birth which wasn't c-section. My eldest son was a very easy baby, didn't know I had him and always used to joke that I wouldn't be as lucky the next time - wish I'd never said that! DS #2 was SO different, and I put this down to the fact that they had different fathers. I knew from when he was very young (a couple of months) that he had a real temper on him! His face used to go a puce pink and his body would shake, when he was, I can only call it angry - he was neither hungry or tired, just looked angry. He would not breast feed - i struggled for a couple of months but he was not putting on weight so I switched to the bottle, which he took begrudgingly. My other son I breast-fed until he got teeth! DS#2 would go rigid when I tried to change him at night, and scream and wriggle so much that at times I had to leave him in a soiled nappy. As he got older, the issues became worse.

I had to work, as my ex couldn't hold a job down, from when my youngest was 3 months old, and my ex used to look after both my sons. When we split up, for a little while he continued with the childcare of them both, he then decided he could no longer look after my eldest, whom i put into childcare, then a little while longer he decided he couldn't look after his son. Luckily the childminder had space for another child, so I thought everything would be ok.

At the age of about 2 1/2 to 3 DS#2 started to bite other children - babies too. He seemed to get really angry and frustrated when there were a lot of children and noise. At this time, I had real issues with his eating, he was extremely fussy and he also was very late with potty training. When he started nursery he was out of nappies during the day, but used to wet himself regularly. At this age his temper tantrums were extreme to say the least. When he was a reception class I managed to get the school and my doctor to refer me to the educational psychologist. We went to a meeting, but I was informed that he was too young to diagnose - the emphasis seemed to be more on me and how I was coping - with the aftermath of the abusive relationship with his father and my resulting depression. They seemed to think that I was coping well, a loving and caring mother - no problems.

I lost my job, and my house and we had to move into rented accommodation when DS#2 was around 5 or 6yrs old. This is when things really kicked off. Every day, everything was a batttle. From the moment he woke, getting him dressed (socks and shoes would be thrown as the seams in the socks hurt), breakfast would be chosen, but when I gave it to him it wasn't right, milk too cold, so I would heat the milk then he wouldn't want hot milk, so the breakfast bowl would normally be thrown across the room, along with anything else he could lay his hands on. I tried the naughty step, counting to three, and I'm not proud to say, but even spanking. That I quickly realised didn't work, because he would hit me back. Along with calling me names a 6yr old shouldn't know. Luckily I managed to rent a 3 bedroom house, so that he and his brother could have separate rooms. I stopped counting the times he trashed his room, and counting the holes punched or kicked in the wall.

Things went from bad to worse, and my eldest son, who is quite placid by nature, suffered quite badly with the aggression from his younger brother. He wouldn't fight back and one day I walked into the room to discover my youngest son stamping on my eldest's head. So whenever they started to fight I tried to intervene, and then DS#2 turned on me. At this point I contacted my doctor once again and we got referred to family mediation.

We went to this for about a year and each session you couldn't fail to meet a better behaved child, and once again my parenting skills were called into question. The thing is, each time we left, five minutes down the road he would kick off again.

Each time I mentioned to the school, they would seem quite surprised as he never acted up in school. In fact, he seems to be quite a gifted child - he has read since a very young age (as I did and his brother), is a very talented artist, whilst at primary school was chosen to go on a gifted and talented scheme at school for both maths and sport, as has my eldest. Towards the end of primary school, his temper improved dramatically and I put this down to one, me not giving up at home and two, his self esteem being raised in school, by his acheivments.


Since my youngest started secondary school in September, he has had constant colds, he is underweight as he won't eat well (I try to feed him a varied diet, but he always leaves food and doesn't like the fact that he can't have meatballs - out of a can - and spaghetti each meal). He refuses to have his haircut, he will not clean his teeth, in fact he will not do anything unless I am on at him all of the time. I am really worried, but whenever I go to the doctor, I seemed to be brushed off, that I'm being a neurotic mother and seeing problems where there are none.

There is much more that I could write about my concerns with regards to his health, but I realise that I am going on a bit. Just wondered if there is anyone out there that could help me in a way forward, or as I have done, recognised their child in my posting. I also need to add that both my children and I have a loving relationship, lots of cuddles and care, but as the years are going on I am getting tired and am fearful of giving up, if you can understand. I realised after reading my post that I sound a neurotic mum, but I don't want to give up and I want the best for my boys

Thanks for reading, at my wits end.
post #2 of 9
Thread Starter 
My son Lucas is 12 yrs old, and also highly intelligent, but extremely willful. He is a complete perfectionist, i have lost count of the screwed up pieces of art that have been thrown across the room because he can't get it quite right. Our problem has been that our family issues have overshadowed everything else and I seem to be the only person that sees there is a problem and I can't get him assessed. At school he is very reserved, well behaved and the only other person that has seen this behaviour is a close friend of mine (who's son has recently been diagnosed with AS, her son was well behaved at home, but kicked off at school) and his childminder when he was younger.

I personally think he displays this behaviour at home because it is the only place where he feels safe to do it.

In my post I realise that our family issues do sound pretty horrific and I understand why I have been recommended to attend parenting classes, but nothing seems to work - reward charts and normal discipline just don't cut it - he outsmarts me everytime.

After reading several posts, I have started recalling things from his early childhood. He was late walking, quite happy with bum shuffling and crawling
for a good couple of years, he was also very happy sat in his pushchair watching the world aroung instead of taking part. In my post I mentioned about our bonding issues, but I do remember the first hug and kiss from my son at around 5 yrs old. It was around this age that he began to empathise with others and realised that his temper tantrums did affect others.

Now at 12 yrs old his temper has improved greatly, he no longer hits me or his brother, and the trashing of his room has stopped (I still haven't repaired the holes in the plaster in his room or re-hung the many times slammed door) as when he does get angry and frustrated he takes it out on inanimate things - but once again this only happens at home. He still has issues about clothing, it is almost as if he builds an attachment to one set of clothes and anything new is not right. He often complains of sore feet and joint pain, he has been checked out by the doctor and they can find no medical reason for this.

I think reward charts for cleaning teeth, brushing hair, washing, going to bed are a bit late at 12yrs old and it's not doing his self-esteem much good. I do worry that he is internalising things and starting to dislike himself, which makes me feel like crying, because he is such a beautiful, talented and loving boy.
post #3 of 9
Hi, I don't have advice, but to you. From what you've written, I don't think you're a neurotic mom. I think you are properly concerned about your boys, whom you love very much. I get the part about them behaving differently at home vs. in public. I was wondering if maybe your youngest was deeply affected by the witnessing of violence at such a young age. Where you live, I don't know if there is any counseling to help him address that kind of deep wound. Over here, sometimes churches offer free counseling if cost is an issue. But I think it would have to be with a specific conselor who has dealt with this kind of thing. Compounding the problem, it also sounds like he has an inborn stong temperament - kind of reminds me of my DS - kind of a perfectionist as well. Wish I could offer some help, but just wanted to let you know I read your posts and have been thinking about your family since.

ETA: It may be a slow week for responses, as it's spring break, passover, and easter week all at once. People may be on vacation this week, as well.
post #4 of 9
Laura_lei, I just read your reply to the other thread from Steph. My DS is only 4, but I see lots of similarities between him and Lucas. The only difference is my DS tends to the anxious side and has not been aggressive, especially in interpersonal interactions. Otherwise, the stubborn, willful, perfectionist, won't-go-to-bed-early, won't-do-anything-unless-I'm-on-him traits are there. I'll be watching your posts and maybe
post #5 of 9
I think you should explore sensory integration disorder. Several things in your post made me think sensory stuff is going on with your son. The seems in his socks bother him, he's a picky eater, he won't brush his teeth, noises and chaos upset him. All these things are sensory in nature. My DD has some sensory issues and she can control herself under some circumstances (like your son at the meetings) but then she will freak out at home. I read "The Out of Sync Child" and it all became so clear that most of her negative behavior was because of inability to regulate her sensory integration. Please check out this possibility- it might be the answer you are looking for and there are a lot of ways you can help your son. Also, I want to tell you that my DD had developed a bunch of negative behavior that had become habitual, so that when we dealt with her problems, she was still doing the negative behavior for a while. It took some time for her to realize that she didn't have to act that way, that we could help her and give her ways to cope. Another book that really helped was "Transforming the Difficult Child: the Nurtured Heart Approach" That gave me some great ideas about how to deal with her negative behavior. I really hope you can help your son- you sound like a great mother who is doing her best for him. Good luck!!
post #6 of 9
Thread Starter 
Quote:
Originally Posted by Monkeypants View Post
I think you should explore sensory integration disorder. Several things in your post made me think sensory stuff is going on with your son. The seems in his socks bother him, he's a picky eater, he won't brush his teeth, noises and chaos upset him. All these things are sensory in nature. My DD has some sensory issues and she can control herself under some circumstances (like your son at the meetings) but then she will freak out at home. I read "The Out of Sync Child" and it all became so clear that most of her negative behavior was because of inability to regulate her sensory integration. Please check out this possibility- it might be the answer you are looking for and there are a lot of ways you can help your son. Also, I want to tell you that my DD had developed a bunch of negative behavior that had become habitual, so that when we dealt with her problems, she was still doing the negative behavior for a while. It took some time for her to realize that she didn't have to act that way, that we could help her and give her ways to cope. Another book that really helped was "Transforming the Difficult Child: the Nurtured Heart Approach" That gave me some great ideas about how to deal with her negative behavior. I really hope you can help your son- you sound like a great mother who is doing her best for him. Good luck!!
OMG!!! Thank you so much.

I did a little bit of research on the internet about Sensory Processing Disorder and found a wonderful site. All the puzzle pieces have fallen into place. After reading the stories of other parents with children with SPD, I have realised that I am not going mad, not a neurotic mother, not a bad-parent as the uk system has labelled me. After the Easter break, I am going to the doctor armed with the checklist given on the site, and if that doesn't work, I am going to change doctors (also advice given on the site).

Once again the biggest THANK YOU from the bottom of my heart. This forum has turned out to be the turning point in mine and my children's lives.
post #7 of 9
From what you've written, Lucas reminds me of my DS, who does have SPD. Somehow, I thought you already knew about SPD
post #8 of 9
Wow- your most recent post made my day- I'm so glad I could help!!!
post #9 of 9
Thread Starter 
I can't believe I have struggled for all these years. Also makes my current depression understandable!

When Lucas would arch his back and make it practically impossible to change his nappy and my controlling husband used to class me as a useless mother. When Lucas used to violently bang his head when he was 2yrs old and my health visitor told me that he would grow out of it, especially when he hurt himself. When I took him to the peadiatrician with his sore joints and constantly cracking his knuckles from the age of about 4 and they could find no problems and told me to stay away from doctors. When I had a visit from Social Services because they had received a complaint that I wasn't feeding my children properly. When I used to sit with my back to his bedroom door, whilst he was kicking it off its hinges. The fact that I never had a photo of his older brother Mitchell without scratches on his face inflicted by Lucas. The times I used to get so angry and frustrated because no-one would listen and I was just perceived to be a poor parent. It has all become clear.

I have ordered the Out of Sync Child from Amazon and a couple of other books, got a bit of bed-time reading ahead!

I do worry that so many years have been wasted and as you said MonkeyPants some negative behaviours have definitely been reinforced. I have a tendency to give myself a hard time, but honestly considering the lack of information and support, we've not done too bad.

And Kim, thank you for being here and replying to my cry for help. I have lived with this for 12 years, never heard of SPD, the medical professionals I have dealt with certainly didn't notice it, so how could you? Each time I researched the net I was under the impression that my son had everything going on, I was sure he had ODD and with his amazing brain, thought he would even make a master criminal one day!

Now we can move forward and all of our self-esteem can be raised.

I will keep you posted on our progress and you will most probably be hearing from me again!
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