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Help with tonsillectomy decision

post #1 of 24
Thread Starter 
Hi everyone. I need some help putting into perpective how to make this important decision. My 7 yo just had an appt with an ENT Friday that said to remove her tonsils. They are large, size 4 (on a 1-4 scale). They touch her uvula normally and when she is fighting something they touch each other. She snores nightly, and does a snorty kind of sound when it's the middle of the winter and there's a lot going around and when she's not actually sick but they just must be working harder. She sleeps longer in the winter, tires easily and is more irriated and has to be in the right mood for her homework otherwise it's overwhelming. She's had 3 docs say her tonsils were big and the ENT took like 1 short look at her, recognized her jaw issues and said they were very large.

The rest of the year, like right now or in the summer when there doesn't seem to be such a load on her immune system, she just sleeps with her mouth open and I hear deep, consistent breaths. She is noisy, her sister is quiet as a mouse. When she does the snorting thing I hear her pause every now and again but it's not for a really long time, like maybe 4 seconds I've counted and it's not every breath, depends on her position.

She is a daytime mouth breather however, pretty consistently and takes a long time to eat. It's almost as if she's out of breath when eating but it's fine. Iv'e asked her to put her hand over her mouth to see if she feels compelled to take it off because she can't soley breathe thru her nose and she can't do it for a long time.

But, she hasn't had recurent strep, only had one tonsil issue (either tonsillitus or strep don't know) last year. Only has had 2 "ear infections" but both were handled with just Motrin for pain relief. One was related to a pressure change from going underwater so I think this did have to do with her tonsils, I'm too scared to find out though because since then I've head her wear earplugs during her swimming lessons. Her ENT said it probably was the change in pressure with the larger tonsils they can cause, and said people also have trouble with things like flying.

So our decision seems to rest upon her dental issues pertaining to the larger tonsils and I don't know what to do. I've given birth at home to 3 of my 4 children, breastfed them, delayed vaxed and now I'm considering a surgeons knife and I just don't know what to do.

Her dentist/orthodontist and the ENT said they already see her jaw growing longer and downward from the daily and nightly pressure of her tongue on lower jaw. You can hear her if you are paying attention breathe thru her mouth all day long. So she would at least have to have braces, spacers etc but they may not actually work since the underlying problem is still there, she is heading towards having an "adenoid face", longer jaw etc and already has a small crossbite.

She DOES NOT however have health issues. In fact she is a very healthy child really. Now it could be because she hasn't been exposed and this could be very true. Next year however she is attending a school where strep is very prevalent so we may see a whole different picture.

I just don't know how to make this decision. There hasn't been a sleep study done but my intuition says that maybe she has a bit of apnea in the winter or when she's sick but otherwise just sleeps with her mouth open (causing the dental problems). Is mouth breathing and the consequent problems enough to justify surgery? General anethesia? I just don't know. I don't want her to end up with tMJ or something or gum issues but life isn't perfect right? Or am I being stupid and it's really obvious she should had the procedure?

I just don't know if taking a perfectly healthy child and subjecting her to major surgery is warranted. Most kids have a host of other issues ( if she were having to be on antibiotics a lot and large tonsils this decision would be easier for sure) but it seems she's on the less impacted end of the spectrum. I also worry if we wait, they will deteriorate and end up giving her problems later on when surgery is much harder. I've tried eliminating dairy and they are still very large. It's just how she is and they've been this way for years.

There is so much conflicting information out there I don't know what to do. What do I make this decision on? I have many docs telling me to do it. I know I can wait and see what happens next year but what if she gets sick all the time and I really wish I'd have done it? I know people who have waited and wished they'd have do it sooner. Then the sugery is more risky. Anyone else been through this? Thanks for reading so far.
post #2 of 24
I'm in the middle of trying to figure out the same thing, except its the adenoids.

From what I understand, the mouth breathing & the apnea can have serious consequences down the line. And in some regards, simple surgery might be better than long-term orthodontic work.

That said, the advice I was given by my ND was to

1. try to track down & remove any potential allergens (enviro or food)
2. Improve gut function
3. Find an effective homeopathic remedy
4. In our case, look into a possible tongue tie

Her reasoning is this:

The function of the tonsils, as lymphatic tissue, is to stop crud from entering the system. If they are enlarged, it means something in the body is causing inflammation. If you remove the gatekeeper, so to speak, the inflammation has to go somewhere and that somewhere might be somewhere worse. Now the ENT told me that "some kids *just* grow adenoids that are too large for their bodies". That strikes me as a little weird. Why would nature do that?

Anyhow, its a hard decision, b/c there is no guarantee that going the second route will work and in the meantime, your child is suffering in the short term with the sleep issues & crankiness and undoubtedly things we don't see.

The only thing I know for certain is that the problem needs to be dealt with one way or another to avoid long term consequences (in your case, it seems like some of those consequences are already happening) and some of those consequences can be quite severe (such a heart & lung damage if sleep apnea gets worse). So for us, we either need to give the alternative approach a try or go ahead with the surgery.

Sorry you are in the same boat. I hope you find a way to make a decision.
post #3 of 24
Thread Starter 
Well, see I don't see her as suffering, you know? I mean she is much better in times like this when you can tell maybe there aren't a lot of things her system is fighting as opposed to earlier this winter. She gets very pale, tired looking yes, but not down and out just not what she could be. So that tells me that they are having an effect on her when it's cold/flu time but they might also be helping her fend things off because she doesn't catch a lot of things. It also gives me an insight into what the surgery could do for her, like they say it's a whole new child afterwards as far as quality of life goes because they can just breathe better period. So is how she is now what she'd be like if she had it done is what we are trying to think about. And does that justify surgery. It's not life threatening at this point, just a better "her" I guess. I don't know what part of the spectrum I fall on in thinking to justify surgery. I think it's also her adenoids and because of the mouth breathing but the ENT didn't even address that, said she'd look at them if they did the surgery because to her the tonsils are huge and need to come out.

The other thing that realllly bothers me is how they found a link between the tonsils, adenoids and an increased chance in getting the paralytic form of polio. I know that sounds silly but we are very delayed vaxers and that is one vax I did end up doing because if things ever were to erupt again and Polio were to resurface in this country, or they wanted to travel a place where it was prevalent, we'd be caught not being covered (if you believe the vax works). If Polio were around I would absolutely not even consider this surgery. But she has gotten all her shots for that but I'm not sure that matters since they found that the tonsils make specific antibodies against polio. Who knows what else? I know they also found the bacteria of Strep Pneumo (involved in the more dire swine flu cases) and HIB B in the tonsils. Those are big hitters to me and ones I do vax for. So am I taking her protection against those things away?

I just don't know, as you say, how big of an issue all that orthodontic work will be. But maybe if her issues are happening so soon that is a sign of just how much she is breathing thru her mouth but she seems fine to me. It's only because I started to look several times daily now in her mouth to get a feel for what is normal for her that I even started to agree enough with our fp to have her seen because of the largeness.

I wish you luck also in your decision. I have tried to look up immunologists and endocrinologists other docs opinions that have a different view of cutting them out like ENT's do for a living and I'm finding very conflicting opinions.
And like you we already have allergens addressed in food and environment, we've tried homeopathics and she has a very healthy gut. I do agree about the inflammation going elsewhere but when they are just large is it anatomical or inflammation? Your ENT seems to think it's anatomical (I assumed so also). I don't think of hers as inflammed from infection or immune function. I guess I think they are just big, like people have large or small hands, feet, legs whatever you know? Like she also has a small mouth so big tonsils don't work very well. Her sis and bro have larger mouths so these may fit better. And theirs are large but don't touch and they sleep quiety.
what a decision. That polio thing has really got me upset though, I think that is my last stumbling block. Coming to terms with the actual function of the tonsils and adenoids and if when she is 40,50 heck 90, if I will wish she still had them or not, you know? What will she need then? Because if I leave them, they remain big and end up causing her problems then she faces an even more dangerous surgery with much more recovery time. what to do?
post #4 of 24
Well I guess if I were in your position and I wasn't *sure* how badly the tonsils/adenoids were affecting things then I would find another, more broadly minded ENT and get a second opinion. Have him look at the adenoids (they can do this in the office, using a small camera) and request that they do a sleep study to see if she's suffering from sleep apnea. From what I understand, sleep apnea is what can put a strain on the heart and lungs and that is something you don't really want to mess with. Plus, if she is having apnea, she is likely much more tired than she would otherwise be and therefore no performing as well as she could in school and probably not enjoying herself either. Think how you feel when you are chronically tired. And if she's is good natured naturally, you might not notice behavior as much because her personality is pretty good anyhow. However, getting more sleep might produce an even more wonderful personality for your child.

Also, maybe you could consult an orthodontist? Ask their opinion or the situation?

Then, armed with better facts, maybe the decision will be clearer to either "wait it out" and see if she outgrows it or do surgery or find another approach.

JMTCW.
post #5 of 24
But is the only thing you tried eliminating dairy? Tonsils and adenoids basically have the same function. My DS had enlarged adenoids, but our ped said he didn't want to do anything about them until we got all of his food intolerances figured out. As soon as we did, he stopped being a mouth breather/loud snorer/restless sleeper and started sleeping and growing. He rarely catches anything bugwise. It may be another food, dairy isn't the only culprit out there.
post #6 of 24
i opted against having both removed. my reasoning was that the tissue was a functioning part of the immune system.

what worked for us was to remove dairy. ds's breathing became easier and the surgery just didnt seem to make sense anymore.

did you know that the tonsils can grow back during puberty? i couldnt imagine putting ds through general anesthesia and all that pain only to have to turn around a few years later and do it all over again.

my sister had her dd's tonsils and adenoids removed and my niece still breathes open mouthed and has a nasal-y voice. it did nothing for her.
post #7 of 24
Well I come from the take the things out side of the fence. I FINALLY got a Dr to take mine out at the age of 16, I wish that someone had taken the step to remove them. No one wanted to remove "healthy" tissue in me too, but my tonsils caused soooooo many of the same issues as your DD. By the time I was in HS I was out of school often because I always had throat infections,
I nearly choked on my uvula when I was sick, seriously the tonsils should have been removed when I was 5 when I got my eartubes.

I'm not one to be all for knife wielding, but in my situation I have neer felt like it was a bad decision ever. I went from being constantly sick to very rarely.

I know purely anecdotal, but that's what happened with me.
post #8 of 24
Thread Starter 
thanks so much for the great input everyone. I did actually consult our dentist/orthodontist. So I do feel like I've got more than one opinion and I have one from someone who deals with the after effects of the tongue pushing the lower jaw out. Both the dentist and dental hygenist (who are very much like my midwife and have quiet, experienced suggestions but don't tell you what to do, they just offer the facts) said that if you leave them in and then have the orthodontic work you can still regress a bit because the tonsils are still large so it might be an ongoing issue for her. They both recognized her narrow mouth/jaw, not adequate teeth spacing etc, I assume all results of the mouth breathing and tonsils. The dentist seemed to think it was more of an adenoid issue but in all, they already see the effects but aren't pushy at all and just told me kind of what they deal with trying to resolve the issues years later.

And yes, chlobo, you bring up some good points. She is a naturally good natured child so I know she is just "handling" her moods as best she can. She isn't aggressive but you are right, if she feels this way every day I know she isn't able to enjoy things as much. It seems as though this year is harder on her, I see her a bit more tired and not as much of a skip in her step at the end of the day. I've noticed it for a while, she just seems irritable when she comes home but I've shrugged it off that everyone's child is like that. But when her other friends are doing their piano practice or at swimming, she is getting ready for bed at 7, along with her 5, 3 and 1.5 yo siblings. She needs this sleep.

The last couple days I've noticed her sleeping more soundly and it's made a huge difference in her day. She is just happier. Last night she snored loudly as I think she's working on the cold her brother and sister have, and this morning she was tired waking up, grumpy as all get out, just totally different. That little bit made a big difference.

About the growing back part, I have heard of that. Adenoids also. I actually don't want them to take them all but I dont think out ENT does that. she does coblation which from what I've read takes all but 10% of them. I'm grateful for keeping that 10%. There is a procedure where they just shave them and don't leave the throat muscle as exposed but the only doc i know who does this I don't know from jack. Dont know his history etc. Our ENT is well known around her and has had good outcomes.

And Norasmomma, what you are saying is what I worry about. I "feel" like if i leave them in I'll always be waiting to see how she is and I will so be upset if they have to come out in her teen years, which I think a lot of people do who end up "waiting and seeing", only to have more missed school when it's really important. Worse recovery, more time etc. Will I feel like I would have added to her quality of life had I had them out all those years ago?

In my gut I know her quality of life will get better. I know she will be able to be who she is more and enjoy things more. I know it. I see this downward expression of her face from the fact that it's getting longer and I didn't understand why it was I hadn't been seeing this happy dd any more like I used to. So from people who recognize it I understand. But I STILL don't know if that justifies surgery and all the things that can go wrong. What if this whole Polio connection is true, what if it comes back? The statistics are something like a 600% more increased chance of getting the paralytic polio than of someone who hasn't had them out.

I realize these are the decisions of parenthood, no clear cut answer. But I feel so heavy with worry either way how do I get out from under that? Do I make the best decision, hope for the best, try the surgery because it will add to her quality of life, or wait and see and kick myself if they start to cause problems when they weren't?
post #9 of 24
Quote:
Originally Posted by kjbrown92 View Post
But is the only thing you tried eliminating dairy? Tonsils and adenoids basically have the same function. My DS had enlarged adenoids, but our ped said he didn't want to do anything about them until we got all of his food intolerances figured out. As soon as we did, he stopped being a mouth breather/loud snorer/restless sleeper and started sleeping and growing. He rarely catches anything bugwise. It may be another food, dairy isn't the only culprit out there.
I think gluten was the bigger factor for DD, and I'd assume any food that's problematic for an individual could be involved. It took about a month for DD's tonsils to go down to a normal size. They weren't big enough to cause problems, at least I don't think, but looking in her throat, they looked big.
post #10 of 24
Since you feel so strongly about the surgery, have you gone to an alternatively practitioner to specifically address this issue? I would think that would be the last thing to try before surgery.

As a few folks above noted any food can cause inflammation. My son is off both gluten & dairy and his adenoids are still enlarged. His practitioner thinks it could be related to some other food altogether.

In posting here (you can look up my thread) there were actually a couple of mother's whose kids were helped immensely by homeopathy SPECIFICALLY for the adenoid/tonsil issue. Have you considered that route? Or seeing a holistic pediatrician or ND? That is the route I am hopefully going to try before consenting to other surgery.

I know it feels like the options are "do nothing" or "do surgery" but that may not necessarily be true. You might want to look into the other options.
post #11 of 24
Thread Starter 
we have tried a couple homeopathic remedies specifically for enlarged tonsils but neither have worked. And I use homeopathy for lots of other things with great success so I was kind of disappointed. This is why I wondered if it was anatomical and not necessarily inflammation, like she was just born with large tonsils? I can't seem to find an answer to this question.

I was talking with her today, it's well timed because we had the appt the first day off for spring break and the time off of school is giving us a chance to talk about how she feels instead of me just seeing her tired before school and after. But with 4 kids and the weekends full of swimming, ballet etc, then there has been no time to talk. Anyways, she hasn't been eating breakfast for the past few weeks before school and it's really unusual. Today we were talking and she was saying how bananas specifically felt strange going down her throat because they were so big and pretty much everything felt that way. so I asked her if she just was ok with the stuff she liked and dealt with it or if it just was certain foods. She said she just dealt with it and it feels that way with all foods. She also had a headache today, which is one of the symptoms, and has been getting them increasingly this year. She also said (it was a good conversation ) when I asked her if she was tired ever at school and she said all the time, I asked her just recently or the whole year she said the whole year and that she gets headaches at school.

this is all the stuff to do with sleep apnea all the symptoms I thought she didn't have. But like was mentioned, she's just a good girl by nature so she must think it's normal to feel this way and just deals with it because she doesn't like complaining. I also know she has stomach issues, she's been home like 4 times out of school with what i thought was a tummy bug but none of my other kids got sick, with just vomitting. I think that is due to the tonsils also. so here I didn't think she was that bothered with them and I think she is more than I thought. poor thing. That kind of stuff almost made me pick up the phone and schedule the damn surgery. I hate that she feels that way. As I can hear her looking at her library books breathing thru her mouth from across the room.

So, I have considered an ND. I may look into that more. I just don't know at this point.
I forgot to say also Chlobo about the adenoids, a dear friend of mine had her sons adenoids removed due to contant congestion etc and they left the tonsils alone. A little later the tonsils pumped up after having not before so they had to do another surgery. I don't know if it was in response to one lymph tissue being taken out and the other responding....she is more mainstream though, just fyi. Not sure how common that is.

How are you doing on your decision?
post #12 of 24
Well I'm still undecided. Personally, I'm leaning toward the ND approach (at least trying it) if I can persuade DH to go along with it. However, my son is only 2.5 so I have additional concerns about giving anesthesia to someone so young.
post #13 of 24
And headaches and stomachaches and vomiting can also be symptoms of food intolerances, which are causing the enlarged tonsils. So again, it could be a symptom, and not a cause. I'm just saying it's still a possibility to consider if you're trying to avoid surgery.
post #14 of 24
Quote:
Originally Posted by girlsmamma2 View Post
tThey both recognized her narrow mouth/jaw, not adequate teeth spacing etc, I assume all results of the mouth breathing and tonsils.

Have you done any reading by Weston Price type people? Her narrow jaw and inadequate teeth spacing might not be at all due to the mouth breathing and tonsils, it might be nutritional. And then even that could be causing the mouth breathing and enlarged tonsils. I would ask on the Traditional Foods forum more about that, like K2, etc.

Quote:
Originally Posted by chlobo View Post
Since you feel so strongly about the surgery, have you gone to an alternatively practitioner to specifically address this issue? I would think that would be the last thing to try before surgery.

As a few folks above noted any food can cause inflammation. My son is off both gluten & dairy and his adenoids are still enlarged. His practitioner thinks it could be related to some other food altogether.

In posting here (you can look up my thread) there were actually a couple of mother's whose kids were helped immensely by homeopathy SPECIFICALLY for the adenoid/tonsil issue. Have you considered that route? Or seeing a holistic pediatrician or ND? That is the route I am hopefully going to try before consenting to other surgery.

I know it feels like the options are "do nothing" or "do surgery" but that may not necessarily be true. You might want to look into the other options.

I TOTALLY agree with the above. I would exhaust every last avenue first. It sounds like you just tried homeopathic remedies yourself, but have you seen a constitutional homeopath? If so, and it didn't work, try another one. Seriously, I have heard amazing success stories with homeopathy for this exact issue, but with a constitutional remedy prescribed by a homeopath. I would also consult an ND. I would identify other food allergies, either by an elimination diet or by doing a food allergy test. Imagine if you did a total elimination diet (TED), and just see if there is any change.

You clearly aren't ready to make a decision, so if it were me, I would stop even trying to make a decision about the surgery. I would say to myself, we are not ready to make this decision right now, we must need more information first. From what you are saying, it sounds like it's not a life threatening emergency. You can decide to do the surgery later, but you can't give them back later. It doesn't have to "be do it now or wait until she's an adult to do it". You might decide three months from now to do it, but if you have ANY reservations now, and there are no serious health-threatening issues going on that necessitate doing it immediately, I personally would wait.

I had my tonsils removed when I was 17 and it did NOTHING for the symptoms it was supposed to help. I wish I had known more back then, and had been able to stand up for myself and research alternative ways of addressing the issues. Because after the surgery didn't work, that is what I had to do, and I did find solutions after the fact. I WISH I still had my tonsils, they are a significant part of the immune system. What does it tell us that they can even grow back??? To me, that means they likely have a pretty important function, if the body can even regenerate them! There are not many things in our body that can actually do that. The liver can! And it's pretty important!

I would wait. You sound very conflicted. You want to help your daughter. You want her to have the best quality of life she possibly can. You love her with that mother bear instinct, and you want to make the right decision. But it sounds like you have time to try some other alternatives first. So, I would personally wait.

Good luck!
post #15 of 24
Thread Starter 
thanks so much everyone. I am looking into the Gluten free diet and what I have to adjust to get that going. I know you are right about taking them out and once they are out you can't get them back. I've thought about that for sure, like our decisions with vaxes. I do kind of feel pressured for time however. The orthodontic issues make me worry. Like if I wait even a few months it will only get worse, however then I say is it worth surgery? I am scrunched in by time a little bit. If I do it during school then there are many, many events I don't want her to miss so it has to be strategically timed. Also she is going to a new school next year that requires swimming. She is a veryyyyy beginner swimmer. We are joining a swim club this summer despite not being able to for the budget and honestly, (and I'm a big one to not want my kids to miss even elementary school) I'd rather have her miss school than her daily exposure to the water which I think is a primary safety issue when I can't be there with her in school next year.

Also this school has a lot more grades, and a lot more strep in it. What if she just hasn't been exposed and next year wil lbe a mess. Ear infections from swimming (she has worn ear plugs and a headband ever since the first time she went underwater and the pressure gave her an infection, I assumed from the large tonsils pressing on her tubes). So then I wait it out, which I can do because she'll only be 8 next year but what if next year is a mess. She fatigues easily and that is a safey issue in the water, they do swim for 10 weeks at a time 3 days a week and she can't fatigue. She has never had the energy that other kids have, maybe it all goes back to these tonsils, and I worry, worry, worry about her swimming. She also can't wear the ear plugs without me because she doesn't know how to put them in, so the issue has to be resolved. so in a sense, i can wait, in a sense I feel some time pressure you know?

I am trying to research quality information on the web instead of going to all these different practitioners. with 4 kids, and multiple dentist, check up for school etc we only have so much cash. so I feel like I can't ask my dh to do more or risk a lot of stress on his part. I've tried the exact homeopathic remedy that is indicated, two actually, from sources on the internet or what others who have gone to a homeopathic doc have been told. I just don't know. I feel so conflicted, one minute I want to make the call the next I want a second opinion but I can afford it. It's too much. where do I go from here?
post #16 of 24
I have a slight OT question, related to polio. How long ago, in the US, was tonsil removal rather commonplace? Was it at the same time that polio became a major issue? Just seeing if I'm connecting dots that really exist.

Good luck to you. This is not an easy decision. I'm in the wait and see while exhausting all options camp, including trying to work with a homeopath who gives constitutional remedies.
post #17 of 24
Quote:
I have a slight OT question, related to polio. How long ago, in the US, was tonsil removal rather commonplace? Was it at the same time that polio became a major issue? Just seeing if I'm connecting dots that really exist.
for the most part- tonsil removal is a real scam- about 3 or 4 months ago (you would need to search NPR) they did a story on a man from Maine that looked into health of people in Maine- 1950 & 60's to find out how sick they were- because of high numbers of operations- he found that most operations were based on the number of Dr.s a town had- ex. one town had more Dr.'s so they did more tonsil removals, more eye drs. more cataract surgeries, same for hysterectomy, etc. he found nothing that indicated real need for most of the operations- very interesting- should be easy to locate
post #18 of 24
Thread Starter 
I'm trying to nail down the exact dates also. But from what I've read the polio increase was directly correlated to the increase in tonsillectomy rates. And the studies I read said that tonsillectomy patients have a 600 some % greater chance of contracting the paralytic polio because the tonsils specifically create antibodies against polio. And that antibody titers went down when the tonsils were removed of people who were given the OPV version. I can't find info on IPV. my dd has had all 4 of her polio shots (the doc actually thought I was nuts in doing this one and not others) but the disease scares the hell out of me. Even if it isn't still around, she may travel somewhere where it is or if like swine flu, although a joke and very mild, it traveled far and wide and really made me glad I had gone thru with the polio vax. I didn't want my dc to have to take time to get up to speed if it ever reared it ugly head again because it takes a few shots.

So I cant find any info on if the tonsils come out after being immunized against it am I taking away the only place in the body that can produce antibodies to this particular disease, and I'm sure it's not the only disease this is the case with.

I'd give you links but I can't remember the many loads of places I've been. Just google tonsillectomy and polio risks and it's all there. Actually even on Merck's site they have tonsillectomy as a risk factor for contracting polio which is scary to me.
post #19 of 24
here is the NPR -

in Stowe, they would have had a 75 percent chance of getting their tonsils out. If they'd gone to the Waterbury School — where they actually did — it was about 20 percent.

http://www.npr.org/templates/transcr...ryId=113571111
post #20 of 24
I would suggest a sleep study to look for sleep apnea. The sleep study is painless

My ds (6 years old) just got his tonsils and adenoids removed (tomorrow will be 2 weeks). They were both huge (touching when not ill, dangerously swollen when he was ill.... which was often). He had sleep apnea. He couldn't even sleep on his back because the tonsils would fall back and block his airway. He also had strep a lot (6 times in the last 12 months, and 5-6 times per year between ages 1-6).

His recovery was pretty rough, but that's because he has other issues (autism and sensory issues). He had the surgery done on Friday morning and went home before noon. He woke up from the surgery happy and talking and cracking jokes Friday afternoon and evening went well but things started to go downhill Saturday. By Sunday he ended up being admitted to the hospital (which we had planned for and figured would happen- he stopped drinking so got dehydrated and was refusing to take his pain meds). He spent Sunday, Monday and Tuesday in the hospital and went home Tuesday afternoon doing so much better. We switched to tylenol suppositories for pain relief and by Sunday he was doing wonderful, no more pain meds, eating and drinking, etc.

If I had to make the choice again, we would still have the surgery done (as hard as it was to see him in the hospital hooked up to an iv and feeling absolutely horrible). Not even 2 weeks out from the surgery we see a HUGE difference in his sleeping. He can sleep on his back and I don't hear a sound (before he snored so loudly we could hear it across the house on a different level of the house, with the tv on!). He can eat with no difficulty. We still have to wait and see if we notice a difference in his behavior (he was having issues at school... it could have been from the apnea or it could have been because of the autism). Mon and Tues of this week didn't go well at school but yesterday and today he had perfect days so.... who knows.
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