Mothering › Forums › Parenting › Special Needs Parenting › update on my DDs eval
New Posts  All Forums:Forum Nav:

update on my DDs eval

post #1 of 5
Thread Starter 
My DD is 13 and we've been going through a new eval process. I'd had hoped it would give us the labels that would take her into adulthood. I did a lot of research on the best person in this area to do the eval and this project has taken me over a year.

I still don't have the report, but the doctor who did the eval had me come in this week for an hour and just talk. Dd doesn't neatly fit into any one label. Her current dx is PDD-NOS. She sorta fits the criteria for asperger's and she could be labled ADD (kinda on the boarder for that one).

She is on the autism spectrum, but is very unusual for an autistic person because she has a sense of humor. She understands humor when she hears or reads it, and she can write funny things. She can't make verbal jokes. She's super, super quiet and prefers to not talk. But she can get her thoughts on paper.

Her fine motor control is very poor. Writing is a huge issue. I was planning on working on typing with her this summer, but the doctor pointed out that her fine motor skills are off enough that typing could be problematic too. She's going to suggest an OT eval and thinks that some sort of adaptive technology is the answer, but said that was a whole big project and I should think in terms of "next school year" rather than thinking about a couple of appointments.

I think that DD sensory avoidance behavoirs are extreme even for a kid with her other stuff going on. DD just started a Social and Life Skill class (once a week for 90 minutes) and I mentioned to the doctor and DD was taking a break from seeing her counselor during this 2 month class. Doing both, on top of going to school, would be too much for my DD and not leave her enough down time. And DD only goes to school part time because she can't cope with a whole school day. The doctor was suprised at how extreme DD is in this way. I don't like it when specialst act suprised.

Her IQ was tested in a bunch of different areas, and most were in the normal range. One area was superb (vocabulary and such) and one area was slightly below average (the one related to figures/geometry/etc).

We had a good talk about homeschooling/school. Neither one seem really perfect for my DD, and I question if she would be doing better now if she either hadn't homeschooled or hadn't homeschooled as long. The doctor said that it's quite possible that DD might not be doing as well as she is and that she might have had the anxiety problems from a much younger age, and that it's possible that since her sense of humor is suprising given her other issues, that my non-mainstream approach to parenting might have given her the space to develop that.
post #2 of 5
I am so glad you got some answers on the eval The waiting game sucks!

Your dd sounds like an awesome young lady with an awesome mamma
post #3 of 5
Quote:
Originally Posted by Linda on the move View Post
I don't like it when specialst act suprised.

*******

We had a good talk about homeschooling/school. Neither one seem really perfect for my DD, and I question if she would be doing better now if she either hadn't homeschooled or hadn't homeschooled as long. The doctor said that it's quite possible that DD might not be doing as well as she is and that she might have had the anxiety problems from a much younger age, and that it's possible that since her sense of humor is suprising given her other issues, that my non-mainstream approach to parenting might have given her the space to develop that.
That first comment is funny, and also disheartening.

And that last paragraph...I like this dr!! Sounds like this dr was very thorough and honest.
post #4 of 5
Linda, do you expect more clarification when you go over the results of the actual assessments? Does any of what the specialist says change your view of what you think your dd needs, or will need in the future?
post #5 of 5
Thread Starter 
Quote:
Originally Posted by karne View Post
Linda, do you expect more clarification when you go over the results of the actual assessments?
yes. She had me come into to discuss specific things -- like how much my DD engages in repetitive movements and how much she has done this at different points in her life, whether or not my DD has an obession, and more information about my DD's speech delays.

Eventually there will be a report and the Dr would like to make it as specific as possible. She would like to make sure that her dx will get her appropriate accommodation, and yet not be a burdensom label to take into adulthood.

Quote:
Does any of what the specialist says change your view of what you think your dd needs, or will need in the future?
We've had a very rough year and a half and I really need more direction. I'm often not sure what is best for DD or what to ask for her. I don't know what is realistic for her for the future.

It looks like we will be moving this summer to a city with a private alternative high school and I'm feeling very positive about it for DD. I've already talked to them and they are very open to her attending.

I think that the longer DD stays in situation where people are actively trying to engage her, the better. I'm not in a hurry for her to go to community college because I can easily seeing her going through her classes and never speaking or being spoken to.
New Posts  All Forums:Forum Nav:
  Return Home
  Back to Forum: Special Needs Parenting
Mothering › Forums › Parenting › Special Needs Parenting › update on my DDs eval