OMG I can't believe this-- TMI--When is revenge of the uterus urgent? - Page 2

[Juvysen]

OMG... how scary! Hope the progesterone cream holds you over til you can get to the ER!!

[mysticmomma]

It really sounds like a call to 911 is in order.

[choochootrain]

not to sound alarmist, but please go to an ER ASAP. Either by ambulance, or have your dh drive you. Like NOW. yes, it is VERY possible to pass out without noticing it. I read a lot on post partum bleeding when we were planning our UC, and it is quite common to pass out this way after a big loss of blood--you won't really notice, and then it will be too late. You' re risking your life and your DS's safety as well. Is he only 2? Does he know how to dial 911?

[choochootrain]

how are you doing?

[Juvysen]

Hoping you're at the ER already...

[choochootrain]

Originally Posted by Violet2

I won't lie, I feel very pass out-y. My BP is good, high actually from the stress.

But is it really possible to be on the verge of passing out AND type coherently on message boards?

The ability to communicate gives me hope.

Although I've been unable to do absolutely anything else. DD is being raised by PBS today.
V

I'm worried for you. Please update!

[pianojazzgirl]

We just got back from a morning out at the park etc, and I've been worrying about you the whole time! I hope you're at the ER now mama. Don't wait any longer please.

[Violet2]

I'm back. DH came home and dropped me off and cared for DD.

What a colossal waste of time. They were nice but nothing much happened. They ruled out all the serious stuff (which I was not worried about) but did NOTHING to help with the bleeding (which I was worried about).

Basically, I can ignore the fact that I will have a garbage bag full of ruined clothing by the time this is over and the fact I wake up in pools of blood. No biggie.

I actually bled through the chux pad, thru the paper onto the exam table. I eventually put down 3 pads. I had to clean the floor after myself. I was really bleeding.

They didn't seem to know what PCOS was--which is not the first time. Only I'm in a large urban area with lots of medical super star systems so??? I had to explain PCOS to the doc (he may have known of it though at least) and the nurses (who had no idea).

Then I had to explain my diet because I was admonished for low carbing (which is actually recommended for both PCOS and people on prednisone).

The good news, I'm hanging on to my red blood cells by some miracle I don't understand. They haven't dropped further. Maybe the 2 iron pills I've been taking daily.

They gave me some IV fluids which actually helped even though I wasn't dehydrated???? This makes no sense to me.

The feeling like I'm passing out is probably because the prednisone taper is not going well (I finally thought of this today and asked the ER doc about it but he wasn't really sure. Since feeling like a nacorleptic=Cushings for me...I think I make be headed for Cushings again. I had to fight to stay awake until around 3pm today) I called my other doc and left a message about that.

Basically they didn't know what to do with me. They didn't know PCOS. And I should've just waited it out and gotten the progesterone prescription and saved everyone, including my family, a lot of wasted time.

So I'm fine but still bleeding to death and likely my adrenal glands aren't kicking back on.

V

[Juvysen]

They didn't know what PCOS is?? it seems fairly common, to me - i know or know of a lot of people that have it. Weird. I'd be so

[Violet2]

This is not the first time either! The last ER visit for a 'women's' issue was due to a pelvic infection from an IUI. AFTER they doped me up on narcotics (for pain) they told me they didn't know what IUI or PCOS stood for and I tried to explain despite being pretty high. The ER actually missed the infection.

And today's discharge conversation was an exercise in frustration:

"Come back if it gets worse though," This after telling me heavy bleeding was no biggie. (So FYI, don't bother with the ER for heavy vaginal bleeding, just wait for your OB/GYN or midwife.)

"I came in because it got worse. I've already done worse. I'm not coming back.What's the point if the worst bleeding of my life is not considered relevant and all my hormone levels are 'normal'?" (By the way this is the oxymoron that is PCOS-- normal blood work does not mean everything is okay.)

Gah. I didn't even get an us which I thought they would at least want to rule out fibroids. But no.

Complete waste of time.

V

[pianojazzgirl]

OMG your ER experience is truly shocking! What terrible care!

I'm glad that you went though. I was worried about you today!

[Juvysen]

You should complain to the hospital.. harass them into some extra GYN training for their ER folks or... something.

[Violet2]

Originally Posted by Juvysen

You should complain to the hospital.. harass them into some extra GYN training for their ER folks or... something.

I would love to do it...in a positive proactive way. I might send them a PCOS book.

Just b/c they ruled out what they consider an emergency doesn't mean I got any actual help.

V

[Juvysen]

Maybe send the book to the specific doc you saw?

[Violet2]

Well maybe not... you know what? I think the problem is my prednisone taper.

Common signs and symptoms of too rapid tapering of prednisone and other glucocorticoids include:

* headache
* dizziness
* fainting
* fatigue
* lethargy
* muscle pain
* joint pain
* shortness of breath
* low blood pressure
* nausea
* vomiting
* anorexia
* weight loss
* fever
* and low blood sugar.

So maybe I should send the link to this list???? I think the bleeding was actually confusing things (although it's probably related to the prednisone too!)

V

[Juvysen]

Hope you're feeling better soon, whatever it is.

[Violet2]

It's the prednisone. I've had it all before, just no bleeding.

The bleeding was very distracting and I was slow to realize what was going on.

Most docs, and ER docs, in particular, only prescribe 5 day bursts. I was on it for much longer and am sensitive (it seems) even with medium term use.

Hopefully I can avoid Cushings again.

V