Anyone have children with Microcephaly?
For my DD, her brain injury was significant. She cannot swallow at all, even her own secretions. She's 2 1/2 and cannot lift her head. She has about 15 diagnoses in addition to her CP as a direct result of her brain injury. Yet her head is almost proportionate to her body and perfectly round. Lots of kids with brain injuries do way more than her, yet have teeny, pear-shaped heads and/or misshapen heads. All you can do is watch and wait and see what he does!
Here's a pic of my DD:
Your daughter is beautiful!
Thanks for sharing with me about her. My son we are not yet sure just how significant the brain injury is. I can tell you as a 5 month old he can already lift his head up, he moves around quite a bit. He has hypertonia (overactive muscle tone) and he is a hearty eater. No swallowing problems or eating problems of any kind so far. So everything is kind of up in the air so far. I don't know how he will be mentally, or if he will be able to walk when he gets older or what....It is so hard not knowing!!! How long did it take until you started really seeing any problems with your daughter? I say that because for all intents and purposes my son seems fairly normal for a 4 month old, aside from the hypertonia and occassional eye contact problems.
My daughter with MicrocephalyMy Daughter has also had Microcephaly since she was born. We actually first noticed it during my Ultrasound around 6 months. She is now 18 months and can not crawl or stand or talk. She is a very happy girl and therapy seems to be improving things but whe has the development of about a 5 month old which makes since because her head size is also the size of a average 5 month old.
Im very excited because next month we are attend the Children with Microcephaly Convention thats taking place in Scottsdale Arizona June 16- 20th. Im looking forward to meeting other parents with children with microcephaly. Im located in Missouri where are you living? I would love to hear more about your situation with your son. Feel free to write back.
hi i just wanted to tell u about my son he 4months old an has hypertonia an microcephalus was also told his coprus callosum may be to thin havent got all results of his mri yet. but like yours he is very happy ,babbles, kicks, is now laying on his stomah holding head up . keeps his head up all time. an he loves to stand up with us holding him of course. i just cant belive there something wrong with our son an even his ped said she dont see what neurologist is seeing. he 14lbs which im told is real weight took him to child intervention an the screening was all good grades except for his motor skills. he still has not rolled over or has problems grabbing things . if anyone can give me more info all his diagnosis would be very appreciated we just found 2 days ago
My 6 year old has microcephaly. His microcephaly is because he has two genetic syndromes both of which cause the brain to form smaller and stay smaller. His brain is actually structurally normal for the most part just small. He has moderate to severe global developmental delays in all areas of development and multiple medical issues and hypotonic muscles.
so my nephew has microcephaly and im not to sure how to approach my sister. first off he loves me and i couldnt imagine life with out him. he is 3 he moves around normally just very little speech 5 words at the most he likes playing with his hands alot. and pulling hair.i dont know how to ask my sister that i dont know how to treat him though im kind of treating him as if he were autistic. is there things i should do? im just lost i also dont feel like she's treating him right either. i hate so say it but i feel like shes not treating him like he's important she doesnt try to teach him anything ?
There doesn't seem to be anything for parents in the uk as speaking to share experiences would help. Microcephaly has different scales just like autism so each child is different, and it depends whether their brain has stopped growing or continues to grow, it also depends on whether it's caused by chromosome abnormalities as well as other associated conditions, fortunately for my daughter this is not the case. She will do things when she is ready and not before.
hi my daughter has microcephaly, there is so little support in uk. my daughter was diagnosed when she was nearly 2 years old, she is 4 now, she had a mri scan witch showed a shrinkaged in cellerbela, she is walking and talking but does have difficultes in these areas and get tired at times but never gives up, and is always smilling and happy.
My son might possibly has Microcephaly. He has been assessed and determined delayed but not diagnosed. How did you all find out if later, that they had it? My son is 21 months and is delayed in speech, that of a 10 month old. and around 17/18 months in other areas. He will hopefully be having an MRI done.