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Reflux + eczema + no weight gain = ???, not sure what path to take - Page 2

post #21 of 29
Thread Starter 
Quote:
Originally Posted by Harmony96 View Post
She is military so it's likely an adult GI, but I did send her a message to ask her.
I heard back from her just now. It was a pediatric GI. Not that that means anything, though, apparently.
post #22 of 29
Quote:
Originally Posted by Harmony96 View Post
I think this thread is starting to stress me out, lol.



See, that's why I hesitate to jump straight to food. It could be ANYTHING. And even just within food, it could still be anything. It could be yeast. It could be bacterial. It could be multiple food sensitivities. I have no idea. I did notice that for about 10 minutes today... only TEN minutes... that the left side of his face was angry red, and then it suddenly went away. So who knows.



She is military so it's likely an adult GI, but I did send her a message to ask her. DS is dosed once/day.

~~~

This thread has turned more depressive than helpful and I'm so stressed now that I feel like I'm going to worry myself sick and then not be able to care for either DS or DD. I'm trying to think of the good things that I do for him, but now they're just being overshadowed by the ways that I'm apparently hurting them. I am going to continue the single daily dose (b/c I'm either blind or there's not "plenty" enough research out there for the bad moms like me to find). I am going to eat my normal diet while I'm gone. I am going to continue taking the probiotics. I am going to call the homeopath when I get back.

And I am going to try really hard to not let this thread depress me further.
I'm sorry. I didn't mean to imply you don't care to find something or you're blind. I do mean to imply, if your doctor prescribed a one day dose, your doctor did not follow prescription recommendations in his/her pediatric medication guidelines. It should be plain to the doctor but how would a parent know? The doctor failed. The doctor failed my son too and I went on like that from 3 to 18 months while my son got worse, dropped off the scale completely and then stayed failure to thrive (we tried other stuff too...in his case it wasn't food or anything I could fix). I gave the marci kids site because when I finally found that (15 months of suffering down the road for my son) I took it to his doctor, got him dosed correctly, and he was finally pain free. I don't expect parents to know. Doctors should. But they don't. I hate what my son went through but I didn't know better. Our doctor messed up. I'm trying to give you the information I didn't have.

I have been in that depressed and overhwhelmed place. It's horrible and I'm sorry that I added to it. Take some time. You love him. It's obvious you do and you're trying your best. This thread shows that. I (gently) suggest you get him medicated at proper doses and take some breathing while you explore options like homeopathy that won't stress you out. Lots of reflux is a maturity issue and/or structural.

I'm sorry.
post #23 of 29
Thread Starter 
Rachelle and thank you for your post. I guess what stresses me out most about the medicine is that I'm still not 100% convinced he even HAS reflux, you know? I mean, from talking to people, their children were diagnosed and put on meds within a couple of weeks, or at most a few months... not half a year later. DD was a spitter, too, but it was just a little bit of creamy overflow. So when DS grew into his spitting phase, I thought he was normal. It wasn't until he stopped gaining weight -- and I noticed it -- at about 5 months that I started paying more attention to any other symptoms. I saw that his spit-up looked like particles of milk suspended in water, instead of a homogenized cream like it did with DD. Sometimes when he cried, it was a cry of being in pain. He had... "different" eating habits (popping off and on, not really ever able to fully relax and eat). And the spit-up was sour-smelling instead of milk-smelling. But those are the only symptoms he had. I read of all these other reflux babies and they're in pain ALL THE TIME, and DS was/is generally so happy and social and talkative and active yadda yadda yadda, so I don't know if it's reflux or not. So that only adds to all my confusion about where to go, b/c if he does NOT have reflux, and I get him dosed properly for something that he doesn't even have, then what effect will THAT have on him, you know?
post #24 of 29
Thread Starter 
Homeopath appointment set for 5/19.

I am visiting my parents now, and Mom decided to put a steroid cream on his face w/o asking me or anything. DS will be under lock and key for the rest of our trip.

His skin now is a "smooth" red, like not blotchy or raised. But if I press on it, it feels like old, leathery, suntanned skin. Or it feels like there is a piece of tape on it, real stiff and tight. Not soft and squishy at all like a baby's skin is supposed to be like.
post #25 of 29
hugs mama. all three of mine had "reflux" and it isn't much fun. Only one was FTT and we didn't do meds, though we had a great team. I used dietary changes, PT/chiropractic/CST and homeopathy. She is 6 now and great. If we hadn't managed to change things so quickly I don't know that I would have declined meds, but we found the right combo early on. So while we are a success story of dealing with reflux with FTT naturally, I don't know that everyone has the right support to do so. I hope you find that you do!

For dd while she had allergies that triggered her they weren't the "cause" of her reflux. I think it's that way for most. It was just that when she was exposed her structure was immediately affected which in turn caused reflux. I think the main issue was one of mechanics, however with the supportive measures that was never specifically addressed. She did go to PT/CST three times a week for several months though.

I now know after the last four years of seeing it in far more quantity than I ever would have expected that many, many kiddos who reflux have tongue ties that don't always have a classic presentation. That's something I always suggest that people have ruled out by someone with current information.

Homeopathy was huge for us in terms of healing, and I hope that it will be for you as well. Good luck.
post #26 of 29
Have not read all posts, however...

My youngest had SEVERE GERD. She was put on an RX. She weighed a whooooping 12 (ish) lbs at 7mo old. We stopped the RX and went with homeopathic/natural remedies. She had a test, dont remmeber the name of it, where she drank chalky stuff while being X-ray'd. Fount out that her 'flapper thingy' (yes medical term. to the max) that is to close after feeding would not close.

I am one who prefers to wait on solid foods, even cereal. However, we DID put her on cereal around 4 mo due to this being sooooooooo bad. She would nurse and puke every single bit up immediately. She would scream bloody murder whenever I tried to nurse her! It was horrible for everyone in the house!

The cereal helped so much. She started gaining weight around 6-7 months when we started giving her foods, which I hated, but it was best for her at the time.

Today, she is completely lactose and tolerant, can handle yogurt occasionally, but nothing else dairy.


I am a huuuuuuuuge defender/user/believer of homeopathic alternatives!!!
post #27 of 29
Thread Starter 
Well, I thought I had found something. I hadn't had any peanut butter all week and he seemed to be looking better, but then he flared up again. My other theory was that it's something evvironmental, since also for this week, I've been at my parents' house, but I'm still here.

Oh, and his sleeping habits have gone massively downhill.
post #28 of 29
I stalked you from a different thread. But I see Kathy and sbgrace are already here and have given great advice, per usual, so I will just send you s and
post #29 of 29
I came back here from your eczema thread. Just wanting to say, oh his face looks so much like what my son had. http://i28.photobucket.com/albums/c2...e/90208010.jpg it would get bleeding when it was worse. I was the one who previously said that my DS has egg & soy intolerance. I know it's stressful. I hope you figure something out.
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