OK, for those of you don't know our back story, here is a summary, others can skip to the next paragraph. DD had a near-SIDS event at 4 months of age and has a profound anoxic brain injury. SHe is delayed across the board. Due to decreased ability to swallow or maintain her airyway, she had a trach & g-tube (no fundo) placed 8/20/09.
Alyssa is usually very happy & healthy. She got a bad resp virus athat had us in the hospital from 5/1 - 5/8. She has been doing well without any oxygen and off nebs (back to baseline). Two weeks ago she spiked a temp, and we took her to the Dr. who said she had an ear infection, so we started 10 days of abx.
The past 5 days she has been getting very upset, crying, increased tone, increased heart rate. Her ears are clear (she got a clean bill of health sat). She is fine when she is asleep, the pain/discomfort seems to come & go. Neither of our diets have changed (she is tube fed foods I make for her and EBM). Her tummy is soft, and her poops are normal. I can not see any teeth. Until today, the episodes were infrequent, and resolved with Tylenol or Motrin. Today she has been upset all day, does not want to be held, her heartrate is high, the tylenol & motrin do not seem to do anything. She even cried through a bath (which she usually loves).
Any thoughts? Suggestions? We will call the doc tomorrow morning (her specialist does not have anyone on call), but I would like to see if I can come up with anything that might help.
Alyssa is usually very happy & healthy. She got a bad resp virus athat had us in the hospital from 5/1 - 5/8. She has been doing well without any oxygen and off nebs (back to baseline). Two weeks ago she spiked a temp, and we took her to the Dr. who said she had an ear infection, so we started 10 days of abx.
The past 5 days she has been getting very upset, crying, increased tone, increased heart rate. Her ears are clear (she got a clean bill of health sat). She is fine when she is asleep, the pain/discomfort seems to come & go. Neither of our diets have changed (she is tube fed foods I make for her and EBM). Her tummy is soft, and her poops are normal. I can not see any teeth. Until today, the episodes were infrequent, and resolved with Tylenol or Motrin. Today she has been upset all day, does not want to be held, her heartrate is high, the tylenol & motrin do not seem to do anything. She even cried through a bath (which she usually loves).
Any thoughts? Suggestions? We will call the doc tomorrow morning (her specialist does not have anyone on call), but I would like to see if I can come up with anything that might help.
