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HUGE milestone :) PERFECT TIMING

post #1 of 22
Thread Starter 
My daughter is 13 months old and is still undiagnosed. she is profoundly deaf, global delays, spasmus nutans, nystagmus, strabismus, cogenital ptosis, among many other things. The past couple weeks have taken an emotional toll on me. She is getting cochlear implants in two weeks and we have had therapy and doctors appointments AT LEAST every day sometimes twice a day. Well tonight I broke down and started crying. It kills me that she has to struggle so hard with the smiplest things while other kids find them so easy. As I was crying to my husband my daughter rolled over to me so I picked her up. (Rolling is her only means of getting around as she cannot sit up or crawl). I picked her up and set her on the floor in front of me. and it happened! She sat up BY HERSELF and played for 37 minutes. THIRTY SEVEN!!!!!! She only fell a couple of times but she wanted to sit right back up on her own and keep playing. And she kept looking over at me as if she were saying "see mamma, I can do it, don't be sad". Of course this just made me cry more. I don't think there has ever been such a proud mamma! She just knew I needed something and she showed me her strength and she was soooo proud of herself. and so was I. It is definitely moments like this that keep me going.
post #2 of 22
That's so exciting (and beautiful)! You'll remember that moment for the rest of your life.
post #3 of 22
Quote:
Originally Posted by hdirks View Post
She sat up BY HERSELF and played for 37 minutes. THIRTY SEVEN!!!!!!
I *love* how you wrote 37 minutes...not a nice round 35 or 40...truly only mamas of special needs kids would be so precise

Congratulations little girl, that is quite the milestone!!! (and good job giving your mama just what she needed )

I SO understand the feeling of just being overwhelmed and eventually it all just spills out. About a year ago I had had a rough string of appts with Connor, I was pregnant, scared, doubtful, etc. I was in the shower just bawling. It felt so cleansing and really helped me to get it all out so I could focus again. I truly think we need that once in a while!!!

Cochlear implants are no small things. Having an undiagnosed child is a BIG thing too! Give yourself the freedom to break down sometimes, you'll be better off in the long run for it.
post #4 of 22


That's wonderful!
post #5 of 22
Oh mama! I totally understand everything you wrote. We have been there with our daughter (also still undiagnosed). The proud look on her face when she learned to sit up, and more recently crawl, make up for all the desapair and dark times. I'm so happy for you!
post #6 of 22
that's wonderful!!
post #7 of 22
Thread Starter 
Quote:
Originally Posted by 2boyzmama View Post
I *love* how you wrote 37 minutes...not a nice round 35 or 40...truly only mamas of special needs kids would be so precise
Ha! I know. But she worked hard for those 37 minutes and I wanted to giver her credit for EVERY one of them!
post #8 of 22
This bought tears to MY eyes, I COMPLETELY UNDERSTAND!!!!!!!

post #9 of 22
Oooh, how amazing!!! What a wondeful story. (And I think I understand a little where you are coming from. Last week me and LoveBug`s dad talked about how proud we were because LoveBug (9 YO) was outside in the garden with his cousins, without on of us parents needing to be right there with him. Huuuge milestone for him/us, nothing special at all for "everyone" else.)
post #10 of 22
Awww (((hugs))) to you and congratulations on her monumental milestone!!!
post #11 of 22
Yeah!
post #12 of 22
What a great achievement!!!!
post #13 of 22
Thread Starter 
I'm super proud of her
post #14 of 22
Yay!! It is a big milestone. Here's to many more such milestones.
post #15 of 22
Thread Starter 
post #16 of 22
that is just awesome
post #17 of 22
Wonderful!

I can tell your little girl is very LUCKY to have you as her mother.
post #18 of 22
Thread Starter 
Quote:
Originally Posted by Pepe View Post
Wonderful!

I can tell your little girl is very LUCKY to have you as her mother.
Thank you!
post #19 of 22
Go her!!!

Does she want to sit up all the time now?
post #20 of 22
Thread Starter 
Quote:
Originally Posted by sapphire_chan View Post
Go her!!!

Does she want to sit up all the time now?
Yes! she hasn't stopped yet. Yesterday she even had her first big girl bath with no bath seat!
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