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New here and need some insights

post #1 of 14
Thread Starter 
Hi mums,

I'm new here so if there are similar threads that have discussed what I'm asking, pls direct me to them. I am doing some "detective work" to uncover DS2's triggers for eczema and I am positive I'm missing something that's staring at me straight in the face and I would be so grateful if anyone btdt could give me some suggestions.

Basically ds2, turning 3 soon, has really bad eczema on his feet, which will progress upwards towards his knees, bum and inside of his elbows during a flare-up. Each flare-up can last for months. We've been sort of keeping an eye on it for the past two years and it has been getting worse and worse and moving up his body. I kept hoping he would outgrow whatever it was, but nope. He's also developing a constant stuffy nose.

Over the past one year, we have taken him off seafood, fish, eggs and dairy products, and artificial colorings. They seem to be of limited help, but I was not really strict with him (ie he still ate things like milk bread and occasional pastries) until the past few months when his feet was covered with bleeding oozing blisters.

We have brought him to different doctors but stopped shy of going to the homeopath. The last doctor (a month ago) was a paediatric allergist and he declared that ds2 was allergic to dust mite even before the testing. He refused to test for any other food except egg, and prawns after my insistence that ds2 does seem to react to food. According to him, the dust-mite test was positive, the egg and prawns were borderline and he said we would have to rely on our observation. But he believed that dust-mite were the main cause, while food are only secondary causes. His "prescription" was dust-mite prevention, swimming 3x a week, and antiseptic wash 3x a day. However all the dusting and vacuuming don't seem to make much difference.

BUT, our great mystery is that ds2's eczema can clear within a week if he's had a few days of diarrhea/not eating. It has happened twice. The first time, because of a traditional medicine to "clear his system" - it worked amazingly over a few days - the blisters dried up and I can't tell you how excited I was to see scabs on his feet. But one month later, he sneaked a piece of squid and within a week we were back to square one. More recently, he was down with a virus and had diarrhea and stopped eating for a few days, and his bum and knees cleared up within a week, his feet were 90% healed except for a small patch that has been there for over a year. It was amazing. I could shower him without him screaming. He could even go swimming. He could actually sleep for more than four hours at a stretch. Once he went back to his usual diet, again, we were back to the constant scratching at night after two weeks, with troubled sleep (lots of bad dreams), and the whinging.

Ten days ago, I finally started him on a gluten-free diet, but it doesn't seem to make a difference, except that he started wetting his pants during the day a lot more and babbling a lot more. (any connections? His speech had never been a problem.) If anything the itching seem to have intensify. Should I continue with this?

I've just started with the Failsafe diet to also exclude salicylates, amines and suphites. It's a challenge doing this on top of all the other food, esp since ds2 loves to eat, but I am desperate!

If you made it this far thank you for reading. Please let me know if you have any clues as to what allergen I may be missing. DH and I are convinced it must be food-related, given how quickly it clears up whenever he stops eating and starts purging.
post #2 of 14
Corn is another big one that may be worth trying to eliminate. It is high in sals so if you are starting that you will be eliminating it anyway but that was a big one with my youngest.
post #3 of 14
Quote:
Originally Posted by deminc View Post
Ten days ago, I finally started him on a gluten-free diet, but it doesn't seem to make a difference, except that he started wetting his pants during the day a lot more and babbling a lot more. (any connections? His speech had never been a problem.) If anything the itching seem to have intensify. Should I continue with this?
What did he eat more of when you started gluten-free and he started wetting his pants and babbling? That could be a culprit food.

As pp said, corn is a big one (the most common ones are dairy, gluten, soy, corn, and egg for eczema it seems, though it can be anything). And with the two no-food trials you've had, it definitely sounds food related (and in my mind, more of a possibility than dust mites causing it).

Have you started a food journal yet to record everything he eats, and see if you can make any trends? Write other symptoms down too - sleep, poop, whining, tantrums, bedwetting, etc.
post #4 of 14
Thread Starter 
Thank you both for your replies!
Corn- yes I was starting to suspect that and have just started eliminating it four days ago. But ds2 is still scratching badly if not worse! Is this a 'get worse before it gets better' thingy? Or as pp suggested, I've ended up giving him MORE of the real culprit??

Geez! It's driving me up the wall - the entire scratching, sleepless nights, whinging and constant arguing from ds2!!

I looked through the food diary and the things that have been added/ increased are sweet potatos, potatoes, tahini/ sesame oil and oat-based product, apple juice, tapioca flour and bananas. Ever since we took out the banana, juice, sweet potatoes and tapioca, his pants wetting have stopped. But I just don't understand it. I am incredulous to find out that sesame seeds can be quite allergenic, so I'm going to test it out this week.

In the meantime, should I still stick with the gluten- free diet? His oats intake was not high - a few spoonfuls each day and a cup of organic oat's milk. I did not see any difference.
post #5 of 14
With those symptoms, I would suspect it could be a lot of foods (or food chemical like saliyclates). You might consider doing IgG testing (something like the ELISA or ALCAT) to help you narrow it down faster. There can be false negatives and positives on the test, but it might get you to a list of reactive foods more quickly, which sounds like it would be a blessing for your son.
post #6 of 14
Sweet potatoes were the biggest trigger for ds2, and he's sensitive to sals. His main symptom is eczema, with other reactions being frequent urination and night waking (awake for an hour in the middle of the night and/or very frequent waking).
I added some supps (magnesium, b's, and probiotics), and the next time I tried sals (including sweet potato) his reaction was much milder.

At this point, I'd suggest either doing a more limited ED, or doing the IgG testing. Mamafish- do food chemical sensitivities show up on IgG tests?
post #7 of 14
Thread Starter 
Argh... I know it has to be some innocent looking everyday 'healthy' food that's waltzing on the plate taunting me.

I forgot to add two more symptoms that stood out - slightly greasy pale stools that show up occasionally and his eczema starts with blistering. I was looking up gluten intolerance (hoping I can ditch the trial) and learnt that watery blisters are associated with celiac disease. I have spoken to a mum whose five yr old has eczema and severe food allergies and this blistering is new to her.

Do these ring a bell for anyone?
post #8 of 14
Both those would definitely chase me to a celiac test... (do that before you take him off gluten). Lots of celiacs react to a bunch of other foods as well, particularly when their guts are most inflamed by gluten.
post #9 of 14
Look up Dermatitis Herpetiformis. It is a very severe form of Celiac which results in blisters all over the body.
post #10 of 14
Thread Starter 
Thanks for the responses!

Yes I did just learn about dermatitis herpetiformis, and some of the photos do actually look like ds2's feet and knees, though it's hard to get a good look over the internet. I'm not too sure about the watery blisters because they are very quickly scratched off by ds2, so I just see red circles all over. Is this not the same for other eczema kids? I'm getting quite worried now.

It's been two weeks into the attempt at gluten-free, and a week into Failsafe and there's still no improvement. DH is already caving in, and it's only dinner, and not 100% for him, argh!! He just bought ds2 some "natural" gummies with wheat and corn syrup in it. *bang head* I realised I've made a few mistakes along the way - mainly the golden syrup allowed in failsafe diet but still, was hoping to see SOME improvement... I'm pretty close to giving up the failsafe diet and just cutting out the suspects (gluten/corn/dairy/sesame/soy/artificial additives) - in other words, bring back the broccoli, grapes and basil. Too hasty? He's been off eggs since weaning. It gave him diarrhea through the day, and it took us one month to realise it was a food rx and which food. It stopped the very next day after we cut it out. I guess I was expecting to see the same swift response with the current situation.
post #11 of 14
Thread Starter 
Can someone tell me what "normal" eczema looks like? I googled eczema and most of the photos showed red, sometimes scaly, patches, which is very different from ds2's. He gets blistering and AFTER that, the skin will be inflamed from the scratching and bleeding. Scabs are circular, because of the blisters. Normal? Another child who saw him before his blisters were scratched off actually asked if he had hand-foot-mouth disease.
post #12 of 14
I think part of the problem is that the term eczema is applied kind of across the board to all different skin patches that a parent might see, so it is kind of hard to compare cases.

I have three girls with it and the oldest one does not have food triggers. Her patches are on her face, the crooks of her arms, behind her knees, and sometimes on her back. They are somewhat circular in pattern and look very dry and scaly. When they come on, they stay for a long time. We've used steroids in the past to clean them up but they also do react well to CLO or Flax-Seed Oil. It has gotten better with time.

DD3 has gluten-related eczema. It covered most of her body, worse on her face. She had it for several months before we realized what was causing it. Once it was removed she cleared up really well.

DD4 was broken out almost from birth and it covered her body but not her face. Her biggest problem area is her bottom and for awhile the skin on that area was literally melting off when she would poop. This was from foods high in sals, specifically corn. She has also reacted to latex (on hubbies clothing) and latex-cross reactive foods like bananas and avocados. Before I went 100% gf, she would throw up every time I ate it and then nursed her. We are still working with her because she has not been clear 100% ever and she is 17mo.

Anyway, no I have not seen blisters with any of them except on the baby's butt which I think was from the poop burning her skin, not from something coming out of the skin.

Gluten-Free does have to be 100% especially if he is celiac. Every little amount of gluten going into his body is doing damage to the lining of his gut.
post #13 of 14
My son has food-allergy caused "eczema". My doctor usually calls it atopic dermatitis - same thing, I guess. It doesn't seem like eczema to me, either!

When he has a reaction to something, he gets a bumpy rash. At first, the bumps are just dry and pink, but if it's a strong reaction or continues, the bumps get wet like little blisters and ooze. They'll ooze any time they get rubbed or irritated. The ooze seems to make the whole area red, so then the bumps all melt together until the patch becomes one big red wet patch. Once that happens, it will get dry and peel or flake when it's getting better, or get red and wet when it's flaring worse.

One thing I've noticed on my son is that these areas do not improve with any kind of lotions. The skin is not actually dry. When the trigger is gone, they dry up and flake away very quickly. They also respond very well to the hydrocortisone cream that we use.

By the way, my son's is not due to gluten. I was grain-free for a couple of months when it was at its worst. His triggers are nuts, some fruits and green vegetables, and possibly dairy and soy. We've removed so many foods that we're not sure which ones were the biggest culprits.

He recently started also getting small spots of what I think of as eczema - small dry pink rough patches here and there. I get those occasionally myself. These spots probably would improve with lotion.

Now here's another weird thought to add to your confusion - before we figured out any of my son's food triggers, there was a day when he sddenly and dramatically cleared up. He had a fever the day before from teething. I think his body got busy elsewhere and gave the skin a break. I wonder if your situation could be similar?

Good luck, I know how hard this is!
post #14 of 14
Thread Starter 
Thank you for sharing your stories! I'm filled with admiration for all the perserverance, detective work and sleepless nights you mamas have gone through! I'm concerned that ds2's legs sounds more and more like DH or something celiac-related!

Confused I am! We went to grandma's house today and of course ds2 got his little fingers on a small banana and had happily munched up three huge slices of cantaloupe (literally ear to ear in a big smiley slice) while I was slaving away in the kitchen.

I've been worrying myself, avidly reading up on DH, celiac and gluten intolerance and the list of horrible prognosis. I found yet another sympton in celiac that rings familiar - strong smelling urine (sorry if I"m grossing you out.) It was like...cat's pee, ifykwim. It comes and goes, and some days I go into the toilet and think there must be a foul diaper in there, check the pipe, but find nothing. Eventually I realised that ds2 peed on the toilet floor.

I did a "crash course" reading on leaky gut, SCD and GAPS, and that really resonated. I "remembered" that I never do well on a lot of starches or fruits. I discovered this when I went vegan for two years (chronic bloatedness and indigestion). I think there's also an element of sensitivity to chemicals which may have been inherited from me, but it makes sense that a leaking gut will simply amplify everything. His condition has progressively worsened over 2 years, and he was really pale for a while. That improved after we started giving him a lot of meat broth which he took to with a gusto and actually started to put on some weight, but his legs just got worse and worse. Perhaps it's all the corn in the soup. I have noticed that he doesn't want a lot of starch but prefers meat and soup. Perhaps that's an indication towards the body's innate wisdom. (But he does really want those gummies! and corn!)
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