Prayers please--we're losing our sweet baby

[tngirl11]

I just wanted to update, and I don't want to scare anyone or bring anyone down, but we found out yesterday that our new baby, Josiah, does have trisomy 13. We knew it was a possibility based on the complications that we knew about during the pregnancy, but we had hoped for the best. He is still in the NICU. I came home today, but we had to rush back to the hospital because he started doing a lot worse. They were able to stabilize him, but it is requiring more and more intervention to do that, and at best the doctor believes that we will only have a few more days. We are so thankful for the time that we are able to spend with him. We were able to take our whole family in today, take pictures, have our pastor baptize him, and have our children hold him and have some professional pictures taken by a lady who volunteers her time to do that for families with terminally sick babies. We have come home again tonight briefly to shower and rest just a little. I'm still really sore from my c-section, so we'd just appreciate prayers for strength, especially for our kids. I wish they didn't have to deal with something like this at such a young age.
Thanks everyone and hugs to you all.

[MuslimMama]

I am so sorry for the difficult time you and your family are going through. You and your kids are in my thoughts and prayers! I believe that even in hardship God only wants good for us and I hope that you will all find healing and comfort!

[aslyn]

mamma..I am so sorry and keeping you and your family in my thoughts and prayers

[neveryoumindthere]

Oh honey, our prayers are with you. :heart:

I pray, first, that he pulls through and seconds that God blesses him and your entire family with patience and strength during this time.

[sunflower.mama]

I am so so sorry. How devastating. You have my prayers.

[broodymama]

I am so sorry, mama, you and your family are in my prayers. I hope you have as many moments as possible with your sweet boy in the time that he has.

[bananabee]

Praying for you all.

[UberMama]

Oh mama, I am so sorry!! Many thoughts and prayers for your son, you, your family.. ::HUGS::

[teenyxdoodlez]

So sorry for you momma! We're all here to support you in your time of need!! Hopefully things turn around for you and your family!

[SeattleRain]

I'm so sorry! I'll definitely have you in my thoughts. Have an easy recovery and enjoy these days with your son.

[soso-lynn]

I'm so sorry. I hope you have a good support system to help you through this.

Please keep us updated, do not worry about scaring us or bringing down the mood here.

[sept04mama]

I'm so sorry. I went through a very similar situation with my son in October. I've been through it and still don't know what to say except I'm so sorry.

[curvyred]

I'm so sorry.

[cadejaxellamom]

I am so so sorry your family is having to go through this, thoughts and prayers coming your way

[RedOakMomma]

I'm so sorry. Don't worry too much about your older kids ...our son was 5 when he died, and his brothers were 5 and 19 months. I've been amazed at their strength, understanding, and sensitivity. I think we give kids far too little credit for being able to grasp and understand the hard parts of life. If the hospital you're at has a childhood grief counselor, it might be worth talking to him or her about the ways to talk with your children. It really helped us.

Be so gentle with yourself, and with your partner. Peace and grace and love to you, mama, and to your beautiful Josiah.

[Multimomma]

DDCC to say how very sorry I am. Those pictures will be awesome to have in the future, our family unfortunately had to do the same in March for my SIL. Thankfully we have this memory. Bless you all...

[angela1435]

I'm so sorry. s

[azdaisy]

I am so very sorry to hear about this. I hope you have strength and love to surround you and your family at this time.

[at_the_hip]

I am so very sorry, Gayle. There's no way to prepare a heart for something so devestating. I pray that you will have many tender moments and memories as well as pictures to bring you peace to transcend understanding. Josiah is blessed to have such a loving family surrounding him.

[Yaliina]

Thoughts and prayers are with you!

What a difficult thing to face, but you are strong and it sounds like you have family to help you through this time. Lean on them, and us. Know that although it sometimes seems otherwise, God would not put something on you that you were incapable of bearing. And there is always a rainbow after the rain.

Utilize the support you have available to you. There is a grief and loss thread, but if you would like personal support or someone you can cry with and scream at, please feel free to PM me. I lost an infant son 11 years ago and have some perspective.

God bless you and your family.