I checked the book and my condition is not listed; but I'm not surprised. It's pretty rare (1 in 100,000 for the general population and 20 in 100,000 for overweight women of childbearing age). Most people have never even heard of it. It's Idiopathic Intracranial Hypertension (Pseudotumor Cerebri).
Essentially, it's when spinal fluid is not properly absorbed, so there is too much in the areas that surround the brain, putting pressure on the brain and optic nerves. It's extremely painful and can even lead to blindness in severe cases that are left untreated. Many patients have vision loss. My visual acuity is down significantly, there's no guarantee that it will improve either (though it probably will).
Anyway, my husband has a friend at work who is a medical professional and has experience with disability cases. He said he is pretty much sure that I'd be approved with this condition. It's just a matter of applying. I was just curious if I would even qualify since I definitely haven't really worked in the past 5 years; but I did work for most of my teen years and my early 20s.
I have other health issues too, but the IIH is the most pressing. At this point we need the money to cover the medical costs which are starting to pile up. We have good insurance, but the co pays alone. Every ER visit is $50 and at this point, I am going 2-4 times a month because of the pain. Unfortunately, I have Kaiser and past 5pm or before 8am it's ER or nothing.