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It's June 2010 already! Allergy Chat Thread - Page 6

post #101 of 873
Waiting for DH to appear around here. Just past 8am (Central) he took the kids to pick up a trailer so we can throw all the boards/etc from the old deck there and he'll haul them to the dump. It's quarter to 10 and they aren't here (and the deck planks still are). Puzzled. Really long breakfast?

Quote:
Originally Posted by gigismom View Post
He is already taking vit c. 1/4 tsp of the Now brand sodium ascorbate. Can't get up right now to see how much that is. Is this a good form of vit c for him? Is it enough? I chose this bc he reacted to the other vit c we had tried and someone suggested it as an alternative for me (maybe tanya?) Ds doctor thought this might give him too much sodium but I am not convinced.

The amount he needs might've gone up with the products you're using. DS runs higher than most kids, for most of the time he was a baby/young toddler, somewhere aorund 8 grams was good, but when I've done things to mobilize metals (our nemesis), it has skyrocketed. Don't know how high you're comfortable going, I'm not thrilled that he's at 30 grams/day right now, but 1/4 tsp is just 1 gram I think.

The sodium in the SA hasn't acted like salt for me, I think Momtezuma Tuatara's explanation of how it's being immediately used for something else is right (and we'd steal the body's sodium if it wasn't SA). I've had times when supplemental salt made me feel better, and SA has never done that at roughly comparable levels of sodium. FWIW



hmmmm... we have been trying to support methylation for some time. ds was muscle tested for dosing on some VERY expensive methyl b12 and adeno b12 drops and folinic acid that we used for a few months. I think these really helped his reactions lessen and eventually stop. Just in the past week or so I have changed to using less expensive options. Now he is taking Natural Factors sublingual b12 (1 tab 1x per day) and thorne mthf folate (1 capsule 1x per day). So it looks like he is getting way more folate than what you are suggesting. I can't remember now how much is in the thorne supp and again, can't get up right now to check. Maybe I need to cut that back? Also, he chews the sublingual tab, is this ok? I am considering getting the expensive drops just for him and keeping myself and the girls on the other supps. At least the expensive stuff would last longer then and I could keep him on the dose and forms that he was muscle tested for and have been working well.

Have you seen mamafish's link to a cheaper b12 drop? I've got some mega b12 hydroxy drops coming in the mail, cheaper than any other B12 product we've used, I think the ingredients look ok (for us, check for you), and economical. I like economical. You could always buy a bottle and ask your HCP to muscle-test it, either before you use it, or after you've been using it a while, see if the results you get are comparable.

kathy... have a great weekend with your party! Sending healthy, strong and healing thoughts your way!

anyway... i really want to try some clay tomarrow (today) so I can sleep tonight. can someone help me out in that department, please!

Finding local good clay is tricky. Search for Panserbjorne's name (with the double dots over the o) and sodium bentonite and calcium bentonite. I forget which one you want but she explains it. One's only for external use and it's the easier-to-find one.

thanks as always for your guidance and support!

jen
And thanks for the nice words. I sorta knew 10,000 was coming, but it was still something of a shock, and really, I've gone blah-blah-blah that often? Because I don't really feel like an expert at anything.

Still no DH, no kids. Strange. Bet they'll be back really soon, hopefully with full tummies and bearing leftovers (taco cabana, a local chain--gonna miss TC when we move to Colorado. No idea on timing of said move, positive thinking at this point, but still, it's the plan).

Oh, and interesting. This morning, when I woke late, I took my temp, it was 98.0F. Went to the bathroom, washed my face, came back and it was 98.2F. These are better, higher numbers than I've seen in a long time. The 2nd number was higher than the first--sometimes if your adrenals are messed up, your body temp can drop below your BBT, when you first get up/get going, and take maybe half an hour to go up to its regular daytime temp, whatever that may be. I have no idea if this happens for other people, it seems analogous to dropping BP upon standing, but I don't know if it happens to others.

This is a nice thing for me. My plummeting body temp was one of the things that kept me sane early on; I KNEW something physical, something real was wrong when I saw that my BBTs were in the high 95s, low 96s, and my daytime temps were always in the 96F range. I didn't break 97.0 for a couple years there. So this is very cool.
post #102 of 873
Quote:
Originally Posted by tanyalynn View Post
This is a nice thing for me. My plummeting body temp was one of the things that kept me sane early on; I KNEW something physical, something real was wrong when I saw that my BBTs were in the high 95s, low 96s, and my daytime temps were always in the 96F range. I didn't break 97.0 for a couple years there. So this is very cool.
Cool! My temps have always been low, I remember asking at the doctor's office when I was a kid if it was okay that my temp was always low (96-97s), of course they said oh yeah, you're fine!

So, while we're talking about more genetic stuff, has everyone read Genie in Your Genes?

http://www.genieinyourgenes.com/index.html

I am finding it very empowering...
post #103 of 873
Mmmmm Taco Cabana breakfast tacos.... Dh (grew up in TX) wishes he could live in the land of both TC and In N Out. But CO doesn't have either, does it? I'm sure it's got something local-er, yummier and healthier instead.

I've got my '6 week' followup with the midwife this morning. Not looking forward to relating ds's bloody poop, etc, followed by 'but it's a good thing, really! It's cause I'm dumping aluminum and who know what else into him!'
post #104 of 873
Quote:
Originally Posted by gigismom View Post
yeah, I wasn't sure about the dosages. I actually lost the paper that his doctor gave me that had all that info. I thought she said start with 1/2 so that is where we started. I have such a hard time getting her to call me back with the right info and she is not in the office on thurs and fri this week. I did not want to wait until Monday. Anyway, thanks for the info. He pooped again tonight about an hour after taking the enzymes. Still no cramping. However, you might note that I am typing with a very restless half asleep and nursing ds in my lap right now at 4 am. We have not been up at night for a loooong time. I am thinking about getting some clay tomarrow. I have never used this. What do I look for? How do I give it and how much do I give? He is already taking vit c. 1/4 tsp of the Now brand sodium ascorbate. Can't get up right now to see how much that is. Is this a good form of vit c for him? Is it enough? I chose this bc he reacted to the other vit c we had tried and someone suggested it as an alternative for me (maybe tanya?) Ds doctor thought this might give him too much sodium but I am not convinced.

hmmmm... we have been trying to support methylation for some time. ds was muscle tested for dosing on some VERY expensive methyl b12 and adeno b12 drops and folinic acid that we used for a few months. I think these really helped his reactions lessen and eventually stop. Just in the past week or so I have changed to using less expensive options. Now he is taking Natural Factors sublingual b12 (1 tab 1x per day) and thorne mthf folate (1 capsule 1x per day). So it looks like he is getting way more folate than what you are suggesting. I can't remember now how much is in the thorne supp and again, can't get up right now to check. Maybe I need to cut that back? Also, he chews the sublingual tab, is this ok? I am considering getting the expensive drops just for him and keeping myself and the girls on the other supps. At least the expensive stuff would last longer then and I could keep him on the dose and forms that he was muscle tested for and have been working well.
I use 1/6 of a thorne mthf folate for my little guy, in case that's helpful reference. Don't worry about the SA, or the sodium - definitely not enough in what you are giving him to be a problem. If 4am wakings is all you're getting, it should go away in 3-4 days, and honestly, if he's not feeling really bad, I'd just ride it out. Seen 4am plenty myself .

Chewing the sublingual is OK, he just might need more to equal the drops. Or you can crush the sublinguals into powder. What form of b12 is the source naturals (methyl, cyano, etc?). I think I'd linked you to the Yasko drops before, as Tanya says, they're the cheapest I've found, and very effective. I don't think there's any reason to use expensive B12!

Quote:
Originally Posted by chlobo View Post
Are those the dosages for an adult? Or for a kid? For myself I figure just one of each but is that too much?

I give my 6 year old one whole MegaFood. Is that too much for her? Haven't started her on the other ones yet, except for the b12.
It's her standard dose for everyone. I think the "risk" of too much varies by person. Excess folate can convert to glutamate, which is really bad for ASD kids (but can be excitatory & inflammatory) for everyone. I suspect it depends on you.

I use 1/3 a Megafood a day for DS - it's easy for me because I grind up everything and put in capsules, and I do it all 6 days at a time, so I just throw 2 in his 6 day blend. If she's tolerating it, probably don't make your life difficult .
post #105 of 873
Quote:
Originally Posted by mamafish9 View Post
I use 1/6 of a thorne mthf folate for my little guy, in case that's helpful reference. Don't worry about the SA, or the sodium - definitely not enough in what you are giving him to be a problem. If 4am wakings is all you're getting, it should go away in 3-4 days, and honestly, if he's not feeling really bad, I'd just ride it out. Seen 4am plenty myself .

Chewing the sublingual is OK, he just might need more to equal the drops. Or you can crush the sublinguals into powder. What form of b12 is the source naturals (methyl, cyano, etc?). I think I'd linked you to the Yasko drops before, as Tanya says, they're the cheapest I've found, and very effective. I don't think there's any reason to use expensive B12!



It's her standard dose for everyone. I think the "risk" of too much varies by person. Excess folate can convert to glutamate, which is really bad for ASD kids (but can be excitatory & inflammatory) for everyone. I suspect it depends on you.

I use 1/3 a Megafood a day for DS - it's easy for me because I grind up everything and put in capsules, and I do it all 6 days at a time, so I just throw 2 in his 6 day blend. If she's tolerating it, probably don't make your life difficult .
How do you grind them?
post #106 of 873
Deb,
We did the US Biotek combination (IgE/IgG) panel for both DS1 and myself. I suspect that my results were skewed by a supplement that I take (Adrenal Support) or just by my naturally high cortisone levels because I hardly reacted to ANYthing. Which is why I sort of "exaggerate" the things to which I was shown to react at all. The only thing which came back in the problematic range was dairy and that was just barely.
post #107 of 873
Quote:
Originally Posted by mamafish9 View Post
I use 1/6 of a thorne mthf folate for my little guy, in case that's helpful reference. Don't worry about the SA, or the sodium - definitely not enough in what you are giving him to be a problem. If 4am wakings is all you're getting, it should go away in 3-4 days, and honestly, if he's not feeling really bad, I'd just ride it out. Seen 4am plenty myself .

Chewing the sublingual is OK, he just might need more to equal the drops. Or you can crush the sublinguals into powder. What form of b12 is the source naturals (methyl, cyano, etc?). I think I'd linked you to the Yasko drops before, as Tanya says, they're the cheapest I've found, and very effective. I don't think there's any reason to use expensive B12!



It's her standard dose for everyone. I think the "risk" of too much varies by person. Excess folate can convert to glutamate, which is really bad for ASD kids (but can be excitatory & inflammatory) for everyone. I suspect it depends on you.

I use 1/3 a Megafood a day for DS - it's easy for me because I grind up everything and put in capsules, and I do it all 6 days at a time, so I just throw 2 in his 6 day blend. If she's tolerating it, probably don't make your life difficult .
Yes you had linked me to the yasko drops, i may go for that but currently have the tabs (methyl b12) so i guess we will stick with that for now. He is a bit crazy today. Everything is a crises and resulting in crying and anger. can't find the right train, his sister won't let him play, he ate the last bite of his watermelon (despite there being a entire watermelon on the counter)....yikes! he ws running around the house just little while ago yelling "hit! hit!" and hitting furniture, walls, sisters, etc... you get the picture. Also, stuttering a bit more, maybe. Maybe he is hungry. I am behind the ball today and everybody is hungry. My dd1 was also out of sorts. I gave everybody some vit c and mag and now the girls are playing upstairs together happily (not fighting) and ds is calmer and playing by himself with his trains. don't know how long this will last. Still hope I can find some clay today at our local hfs or our chiro. Both places carry good supps so I am hopeful.

jen
post #108 of 873
Hi all, once again this month I'm going to try oh so hard to do the chat. Yes I am. Truth be told though, it is jam pack full of info and hard to keep up on. Although the info *is* great.

Also, wanted to say, appreciating the good info that keeps coming up lately in the media. It's nice to have some affirmation in more mainstream avenues so that my family will stop thinking I'm crazy

Karen
post #109 of 873
Thread Starter 
GAH! I just ranted in the "Real Folate" thread, had to do it. I've been so squirrely lately anyways.

Hi Karen!

Good info in media, what am I missing?

We're crazy in a GOOD way.
post #110 of 873
Thread Starter 
Jen, is he salicylate sensitive? That would be the reaction in this house.
post #111 of 873
Quote:
Originally Posted by changingseasons View Post
Quick question- why does the Nutricology pancreas glandular fact sheet say specifically, "Caution: Glandulars should be avoided by pregnant women, nursing mothers and children."

I've seen the standard, "use caution when prengnant or nursing" which is on almost every supplement out there... but I've rarely seen children specified, which makes me nervous about getting this for DD.

Any ideas why they would say that?
Don't know, but I took both adrenal and thyroid glandulars both pregnant and nursing with dd2 and am on adrenal glandulars this time too. My mw seriously got after me when I ran out for a week. To DH: Make sure she orders them today. She needs to be on them.
I am hugely better on them than off. I think it's helped me not pass some of this stuff on to my babes as well (Adrenal ect.) I know most supps have that cuationary warning, which makes it difficult to determine which ones truly are contraindicated in pregnancy, nursing...
My MIL is going in for an angiogram on Tues. And possible stint. She is young--55 yrs old. Makes me sick. How do you get past the "well my dad was this way so it's inevitable" stuff with someone? Isn't it pretty well known that lifestyle is just as important as genetics? I mean, couldn't we let go the margerine?
Does anyone know if the iodine used is radioactive? I am not going anywhere near her if so. NOr are the kids. I've never said anything, but I watched a child for someone I know while the parent was getting some tests done and it wasn't until they got home and I'd sat next to them for 30 minutes or so that I found out they were radioactive. I miscarried the week after...always wondered if there wasn't a correlation there...
post #112 of 873
Quote:
Originally Posted by JaneS View Post
Jen, is he salicylate sensitive? That would be the reaction in this house.
hmmmm... he has reacted to sals in the past but then suddenly stopped reacting to sals. i think at the time he was reacting to sals he was processing some metals I inadvertently dumped into him. once he had processed the metals (hopefully out) he stopped reacting to sals. maybe starting the new enzymes has made him start reacting to sals again? I thought this was just part of the whole die off process since starting the new enzymes and viracin. I hope he does not start reacting to sals again

re reading the dosage suggestions on the folate by mamafish, i think i need to re examine his folate dose. maybe this is causing some excitability too

jen
post #113 of 873
Thread Starter 
I think lifestyle changes our genetics! Margerine and other vegetable oils, processed food, sugar... suggesting to people to change their diet and go against conventional wisdom and their own food addictions are like asking them to change their religion! It takes a real leap of faith and commitment that has to come from within. I would wait until asked and just model by your actions or with simple comments if someone seems open to why you do things differently.

Iodine for a CT scan? that is not radioactive b/c it would really destroy the thyroid. But CT scans do emit radiation. I have no idea if that is "carried" by the body at all for a time or not.

Check on NAC for kidney protection before CT scans
http://www.biology-online.org/articl...am-people.html
post #114 of 873
Quote:
Originally Posted by JaneS View Post
GAH! I just ranted in the "Real Folate" thread, had to do it. I've been so squirrely lately anyways.
Yeah... I'm sorta tearing into some guy on the article link who's trying to say that folic acid and folate are interchangeable.

eta: (Ok, I know there was a police smiley, but I can't find it now) MargArine.
post #115 of 873
Quote:
Originally Posted by JacquelineR View Post
Yeah... I'm sorta tearing into some guy on the article link who's trying to say that folic acid and folate are interchangeable.

eta: olice MargArine.
Link?
post #116 of 873
Quote:
Originally Posted by dannic View Post
How do you get past the "well my dad was this way so it's inevitable" stuff with someone? Isn't it pretty well known that lifestyle is just as important as genetics? I mean, couldn't we let go the margerine?
Get her to read Genie in Your Genes that I linked above
post #117 of 873
post #118 of 873
Quote:
Originally Posted by whoMe View Post
I'm confused. What is the urine test? Did you find a more scientific description?

And I love the 'advanced behavioural therapy' for a GI issue.

Pat
post #119 of 873
Quote:
Originally Posted by WuWei View Post
And I love the 'advanced behavioural therapy' for a GI issue.

Pat
Believing that food affects our health and behavior IS a form of advanced behavioral therapy. Right?
post #120 of 873
Quote:
Originally Posted by chlobo View Post
How do you grind them?
They smash quite easily. I use a small concave stainless steel bowl and wack them with the end of my knife sharpener (it's never had a use before, it's quite handy for this!)

Quote:
Originally Posted by JacquelineR View Post
Deb,
We did the US Biotek combination (IgE/IgG) panel for both DS1 and myself. I suspect that my results were skewed by a supplement that I take (Adrenal Support) or just by my naturally high cortisone levels because I hardly reacted to ANYthing. Which is why I sort of "exaggerate" the things to which I was shown to react at all. The only thing which came back in the problematic range was dairy and that was just barely.
la la la la la (fingers still in ears, LOL) - how did it do for DS1?

Quote:
Originally Posted by gigismom View Post
Yes you had linked me to the yasko drops, i may go for that but currently have the tabs (methyl b12) so i guess we will stick with that for now. He is a bit crazy today. Everything is a crises and resulting in crying and anger. can't find the right train, his sister won't let him play, he ate the last bite of his watermelon (despite there being a entire watermelon on the counter)....yikes! he ws running around the house just little while ago yelling "hit! hit!" and hitting furniture, walls, sisters, etc... you get the picture. Also, stuttering a bit more, maybe. Maybe he is hungry. I am behind the ball today and everybody is hungry. My dd1 was also out of sorts. I gave everybody some vit c and mag and now the girls are playing upstairs together happily (not fighting) and ds is calmer and playing by himself with his trains. don't know how long this will last. Still hope I can find some clay today at our local hfs or our chiro. Both places carry good supps so I am hopeful.

jen
Jen, that is absolutely typical die off/detox. The good news is, you're doing something that is making a difference. If it's more extreme than you want to deal with, back off on the enzymes and viracin for a bit (either stop entirely for a day or two, and resume at a lower dose, or cut the dose in half now). Generally things will get better in 3-4 days, so figure out what you can handle for that long.

Quote:
Originally Posted by gigismom View Post
hmmmm... he has reacted to sals in the past but then suddenly stopped reacting to sals. i think at the time he was reacting to sals he was processing some metals I inadvertently dumped into him. once he had processed the metals (hopefully out) he stopped reacting to sals. maybe starting the new enzymes has made him start reacting to sals again? I thought this was just part of the whole die off process since starting the new enzymes and viracin. I hope he does not start reacting to sals again

re reading the dosage suggestions on the folate by mamafish, i think i need to re examine his folate dose. maybe this is causing some excitability too

jen
Yes, too much folate could be converted to glutamate, which won't help - but I think you're seeing die off. I wouldn't change too many things right now, or read too much into these behaviors. Starting the new enzymes & viracin is causing gut die off, and lots of gut bacteria & yeast hold metals. So he is moving metals again (the stuttering is a BIG sign of metals moving for lots of spectrum kids - not saying he's autistic, just that's where I know most of the symptoms from!). I do tend to feed DS less sals when he is in acute metals detox - lots of metals clear through the same pathway as sals, so it will stress his body a little less.

Is he still pooping? If he's clearing metals, it's really critical he poop at least once a day, ideally more. (This is where I go straight to an enema if need be, I don't mess around. I get the cheap drugstore ones and use about 20% of the liquid in them, save the rest in a jar for later use). These days I up his mag before I do something I suspect will move metals, so it rarely is necessary, but I do it if I need to.

Quote:
Originally Posted by whoMe View Post
Yeah. And what is funny is that Yasko does a very similar pee test and most of our kids are sky high in glutamates . I think using pee test markers is helpful, but I think concluding they can prevent those kids from "becoming" autistic, especially with behavioral therapy, is pretty darn ridiculous. Use the pee test to predict which kids shouldn't get vaccines, now maybe that would make sense!

However, my son is autistic and has relatively normal glutamates and very low taurine, so he doesn't fit their results at all.

Quote:
Originally Posted by tanyalynn View Post
Believing that food affects our health and behavior IS a form of advanced behavioral therapy. Right?
Advanced something!!
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