Originally Posted by whoMe
Certain levels of one of the antibodies is supposed to be diagnostic, but I forget which one. Ttg?
I'm assuming you've played with supps like zinc and mag and stuff? Watching dd and myself, I swear, a bunch of the sensitive kid stuff ties in to the nutritional stuff as well...
It sounds like IgG + IgA both positive is about 95% predictive of celiac (which would be plenty close enough for me).
She's fine on supps, and we hair tested, she's not zinc or mag deficient. I've never really impacted her much with supps, she's like me, doesn't seem that affected. She's just tiny, and I'm not convinced it's normal. I think with how thin she is after whooping cough, it's just a lot more disturbing than normal, and I'm taking it as motivation to go rule out a few things.
Originally Posted by kjbrown92
Wasn't there a stool test for celiac or gluten intolerance from some lab?
I didn't think celiac showed up on a IgG screen either. It's autoimmune, but is it just antibodies that the tests are showing?
Does she not eat meat because she's a vegetarian? Or not eat meat because she doesn't like it? Or... just curious. ALCAT doesn't require a doctor either... (I'm biased because I haven't taken the other ones, and ALCAT was good for us).
Enterolabs will stool test and gene test, but I figured I'd start with a wider food intolerance panel - I have no reason to believe gluten is a more likely culprit than dairy, for example.
She's never liked meat. I always assumed it was texture related. I don't eat a lot of meat, it makes me feel full and blecky. But she'll eat bacon, meatballs, and calamari no problem. And happily eat beans, dairy, eggs.
I just figured out I can order the US Biotek panel through Directlabs, so no doc needed, and with the autism-mercury discount, it will only cost about $175. The ALCAT looks great, it's just really expensive, and it requires a blood test (which honestly scares me more than the cost!). I have a sister who passes out and goes into shock (and takes about 48 hours to recover) every time they draw her blood - and DD is sooooooo like her. They can have all of my blood they want, but DH, DD, or DS, it would be a MAJOR calamity. So trying to start easy here
From what I've read here, it seems like the ELISA stuff people do can often be false negative/positive on things like corn, or more exotic fruits, stuff like that - does anyone have a story of the ELISA being wrong on gluten or dairy?